Health Boards
Wed-18-05-2016, 09:52 AM
I am writing again on behalf of my husband who is 77. He was taken off the Ciclosporin and the Fumaderm because although it helped his psoriasis very much, it apparently caused liver kidney problems. He had been tried on various creams for a period of two years and also Acitretin before these more potent drugs were offered.
His kidney function went down to 9% and he was in hospital for a week - he is now out and his kidney function is slowly rising. Not sure of cause of drop from 50-9% over two weeks - could be painkillers, antibiotics psoriasis drugs.
To cut a long story short he is on the very lowest dose of ACitretin of 25g a day. Last year the dermatologist said that if the Fumaderm did not work he would have to go for the Bio injections. Well he has been for initial assessment and the man said his condition was not bad enough for it to be considered. His skin is peeling off in sheets of his feet, risk of infection a nightmare especially as antibiotics could cause kidney problems and neither of us have any quality of life as he is struggling to walk.
I know Bio's are a last resort and I know they cost the NHS a lot of money. I did contact Eric's dermatologist by phone just to make sure I understood correctly that he had wanted to progress the Bio option, and he said he did given the circumstances and the fact we had tried the other options. He did say he would write urgently to the Head of the Bio Unit and put our case forward. This was 2 weeks ago. The Nephrologist has said she will contact the Dermo so we can try and get some kind of treatment plan as I understand that Bio's can take a while to kick in.
I just wonder if anyone had to fight to this degree? I do know Eric is difficult with his co-morbidities and also his Lupus but we are literally looking at having to buy a wheelchair soon or he will be totally housebound.
Any comments gratefully received. WE cannot afford to go privately with the Bio injections and forgive me, we have both been high rate tax payers for most of our lives. Is this just NHS lack of communication between Departments? Helena
His kidney function went down to 9% and he was in hospital for a week - he is now out and his kidney function is slowly rising. Not sure of cause of drop from 50-9% over two weeks - could be painkillers, antibiotics psoriasis drugs.
To cut a long story short he is on the very lowest dose of ACitretin of 25g a day. Last year the dermatologist said that if the Fumaderm did not work he would have to go for the Bio injections. Well he has been for initial assessment and the man said his condition was not bad enough for it to be considered. His skin is peeling off in sheets of his feet, risk of infection a nightmare especially as antibiotics could cause kidney problems and neither of us have any quality of life as he is struggling to walk.
I know Bio's are a last resort and I know they cost the NHS a lot of money. I did contact Eric's dermatologist by phone just to make sure I understood correctly that he had wanted to progress the Bio option, and he said he did given the circumstances and the fact we had tried the other options. He did say he would write urgently to the Head of the Bio Unit and put our case forward. This was 2 weeks ago. The Nephrologist has said she will contact the Dermo so we can try and get some kind of treatment plan as I understand that Bio's can take a while to kick in.
I just wonder if anyone had to fight to this degree? I do know Eric is difficult with his co-morbidities and also his Lupus but we are literally looking at having to buy a wheelchair soon or he will be totally housebound.
Any comments gratefully received. WE cannot afford to go privately with the Bio injections and forgive me, we have both been high rate tax payers for most of our lives. Is this just NHS lack of communication between Departments? Helena
