the end of ciclosporin....the beginning of fumaderm

[jiml]

Hi everyone,

I can't believe that it's been over a year since I last posted!

Fumaderm was working brilliantly, I almost had 100% clear skin..... Then I got a lower respiratory tract infection, my lymphocytes virtually disappeared (0.18 I think at lowest) my neutrophils weren't much better (0.2) and my white count was almost non existent. Cue a week long stay in hospital, a further 6weeks off work essentially house bound, 12 weeks with no meds and a nice flare up, from the soles of my feet to the top of my head - only the palms of my hands are currently P free!

I'm now back on Fumaderm, done the three weeks on the initial tablets, a week of 1 120mg, now at the end of my first week of alternating between 1 & 2 tablets a day (equates to 1 & 1/2 tablets a day) last Tuesday my lymphocytes were at 0.87, hence the reason for the dodgy dose pattern, if they go to 0.5 I'll have to be taken off them again.

Oh yeah, my holiday was amazing, legs out and even a bikini a couple of days!

So that's the last year in a nut shell.

Hope everyone is ok and that no-one is suffering like I am at the minute.

MaDbEaR xx

Hey it's great to see you back ......is it really that long ....well if things were going well I can't say I blame you not rushing back ...seems like the year went well for you, and I'm glad you were able to get your skin out

What a shame they let your white blood count drop so low .....were you having monthly blood testing? Was it a sudden drop?

I suppose it's water under the bridge and at least your bloods are recovering and you are back on Fumaderm. I hope your blood levels continue to rise so you can increase the dose to get clear again

Thanks for the update do let us know how it continues to work .....and no I'm not suffering at the moment but can feel your pain

Jim