Health Boards
Mon-12-09-2016, 12:04 PM
Hi all,
I have been taking snippets of advice from your site for a good while now and finally got around to joining up.
I have been prescribed Acetretin and if anything my condition seems to be worsening and i wondered if anyone else had experienced this.
My lepery history in brief......
My condition started around 1995 when I was 24 with scalp psoriasis, I have large coverage on both my upper and lower legs, elbows, arms back, scalp, ears, basically all over.
In the last 12 months my condition has worsened and often gets me really down, I am sure you all appreciate the time when summer finally arrives and everyone is in shorts, but you cant wear them or go swimming because your condition looks so unsightly. I could really start moaning, but that wont get me anywhere!
Up until recently I have been using Dovabet ointment and I have tried courses of UVB treatment. The UVB was moderately successful, but it took up so much of time I bought my own UVB machine for home with the same lamps etc, ensuring I recorded my usage and didn't over do it.
I started a course of Acetretin back in July and my back has never been worse, I have a new outbreak on my shoulders and this weekend an outbreak on my chest, I have been to the clinic this morning to see the nurse, who has booked me another appointment and suggested im considered for a course of Methotrexate or Ciclosporin, Im concerned that I cannot consume any alcohol while using Methotrexate, (I'm no heavy drinker, but do enjoy a few beers with my friends and a bottle of wine or so with my wife).
I could waffle on for hours, but I guess my real question is has anyone had any similar experiences to me and can they offer me any advice.
Finally, I have private health (Bupa) has anyone gone down this route and is the treatment any better / quicker?
Thanks in advance
I have been taking snippets of advice from your site for a good while now and finally got around to joining up.
I have been prescribed Acetretin and if anything my condition seems to be worsening and i wondered if anyone else had experienced this.
My lepery history in brief......
My condition started around 1995 when I was 24 with scalp psoriasis, I have large coverage on both my upper and lower legs, elbows, arms back, scalp, ears, basically all over.
In the last 12 months my condition has worsened and often gets me really down, I am sure you all appreciate the time when summer finally arrives and everyone is in shorts, but you cant wear them or go swimming because your condition looks so unsightly. I could really start moaning, but that wont get me anywhere!
Up until recently I have been using Dovabet ointment and I have tried courses of UVB treatment. The UVB was moderately successful, but it took up so much of time I bought my own UVB machine for home with the same lamps etc, ensuring I recorded my usage and didn't over do it.
I started a course of Acetretin back in July and my back has never been worse, I have a new outbreak on my shoulders and this weekend an outbreak on my chest, I have been to the clinic this morning to see the nurse, who has booked me another appointment and suggested im considered for a course of Methotrexate or Ciclosporin, Im concerned that I cannot consume any alcohol while using Methotrexate, (I'm no heavy drinker, but do enjoy a few beers with my friends and a bottle of wine or so with my wife).
I could waffle on for hours, but I guess my real question is has anyone had any similar experiences to me and can they offer me any advice.
Finally, I have private health (Bupa) has anyone gone down this route and is the treatment any better / quicker?
Thanks in advance