[split] the end of ciclosporin....the beginning of fumaderm

[Chris]

Hi Chris good to see you back, you say your blood count is Low .....do you know what your lymphocyte count is and what it was before you started,
If you can find what your lymphocyte and neutrophil counts are you will be able to see the trends for yourself
Usually if your blood count is Low cutting the dose will reverse the trend  if it's Low try taking one tablet every other day until they come back in the normal range rather than stopping ...unless the level is really Low  

I hope you are able to stay on it as you know how successful it can be, and I hope it clears your feet soon

Jim

Hi Jim

Thanks for your reply.

My lymphocyte count was down to 0.2 when I came off Fumaderm in the summer of 2014 and it took 18 months to get to 0.9.  I haven't been above 1.0.  In fact my dermatologist at the time referred me to an immunologist.  Basically it was a case of waiting, but I was told if I felt ill to go and see them and they would treat me with intravenous antibiotics which had been developed for those suffering with HIV+.  However we didn't go down that root and the count slowly improved.  I think my count on 16th was 0.7 and I have been asked to have fortnightly blood tests.  If I am lucky I will be able to have (say) six months on the treatment and then take a break.  I had a anti-pneumonia jab last year and I have been having flu jabs each year in order to protect my immunity.

What was interesting the immunologist request blood test that profiled all of my blood counts in detail, not just the broad details of Lymphocytes and she looked at the component parts to see if anything was contributing to the low count, but nothing was obvious. 

I have always been susceptible to the common cold and my psoriasis is always worse when I have one.  What was interesting to me during my first period on Fumaderm was that despite my fall in the lympocyte count I was relatively free of colds...................which seems at olds with how it should have been. 

My platelets was also marginally below the range, which again is normal for me.