Health Boards
Wed-05-10-2016, 08:06 AM
I don't know if the survey is biased or not, I do know that the psoriasis affected my mood. Years of battling it resulted in fatigue, my self esteem was rock bottom due to my appearance. I have never been diagnosed with depression but have had real low moments/weeks.
Since starting the new medication, it is amazing the difference it has made to my life. I have bags of energy, I am happy, nothing is getting me down.
I did face discrimination in the work place, to the point I had to request a staff meeting to explain my condition and the effect that looks, commments, moving away from had. I have been stopped on a beach in Cornwall because I had uncovered my arms and asked should I be there with children around! I have been asked if I have been in a fire and worse whilst waiting in a hospital waiting room people chose to stand rather than sit in a seat next to me!
So for me the survey is representative of my experience with psoriasis.
I believe more education is needed and not just the public, my experience is that doctors have no concept of how psoriasis affects those on a daily basis and my experience is, they see it as just a 'skin' issue. Only when I got to a consultant did that attitude change.
Sandra
Since starting the new medication, it is amazing the difference it has made to my life. I have bags of energy, I am happy, nothing is getting me down.
I did face discrimination in the work place, to the point I had to request a staff meeting to explain my condition and the effect that looks, commments, moving away from had. I have been stopped on a beach in Cornwall because I had uncovered my arms and asked should I be there with children around! I have been asked if I have been in a fire and worse whilst waiting in a hospital waiting room people chose to stand rather than sit in a seat next to me!
So for me the survey is representative of my experience with psoriasis.
I believe more education is needed and not just the public, my experience is that doctors have no concept of how psoriasis affects those on a daily basis and my experience is, they see it as just a 'skin' issue. Only when I got to a consultant did that attitude change.
Sandra
