My cosentyx story

[Marcia1966]

  Hi all.   I am waiting for a nurse to arrive from Oxford ( I am in Somerset) to give me training on how to use cosentyx, it will be my first injection today after an incredibly long wait.  I feel very anxious. She should be here within the hour and I have taken the syringes out if the fridge.  Please wish me luck!   

I first had psoriasis about 20 years ago, in my ears, which developed into chronic plaque psoriasis over time.   I have tried many treatments, all the usual creams and moisturisers. Light therapy, acitretin, methotrexate for past 6 years and it stopped working about 6  onths ago.

My worst time ever came in 2008.     I had phototherapy with such a bad reaction resulting in third degree burns after (5 low dose treatments)  I was extremely ill when everywhere got infected,  bedridden and then hospitalised. Housebound for 5 months.   ( the consultant I was under threatened me not to take legal action - there was suspicion that the nurse set the machine wrong, we did later take legal action ) anyway, the outcome was It left me in a wheelchair for a year with severely damaged and scarred backs of both legs. I still cannot walk far and still need a wheelchair. 

I changed hospitals and was started on methotrexate which has kept thing mainly in check with occasional blips.  This year I have another serious outbreak which has led to me being started on the cosentyx.  I have been housebound since August, and can only wear very very soft clothes.  As you will all know, the pain and soreness can be unbearable especially when completely covered in psoriasis.  The wired thing is that this time my outbreak was the guttate type, she had then all joined up to make huge areas like the plaques.  

I have a wonderful husband   who helps me, and some lovely neighbours and friends.   I often wonder what would of happened to me without their help. I feel very lucky.   I am so glad to have found this group, everyone is very friendly.  I no longer feel alone with others who understand.

Thank you for taking the time to read my post, you all have a good day