Hello There

[Kaden]

I am a wife, mother and grandmother whose paycheck job is very stressful but decompresses through crafts and a non-profit that benefits foster children. Have been living with psoriasis for so long I have forgotten exactly what life was like before. Have had different meds tested over the years, most with little success. I has created problems with my job as well as home life. Some crafts are gathering dust because my hands are so chewed up it is impossible to not leave blood behind or destroy threads and yarn. It has created problems internally as well. I am hoping by joining this club I can meet others who have or are experiencing like problems and gain the strength that is sometimes needed to deal with this disease.

[Fred]

Hello Kaden   to Psoriasis Club.

You are right, sometimes a lot of strength is needed to cope. But now you have found us, you will always find someone willing to listen if you want to unload and share.

It's a shame about your crafts because having a hobby you enjoy can take your mind off things, have you tried Coconut Oil for your hands? I'm a big fan of its powers to heal, it could be worth rubbing loads of good qulity virgin coconut oil in your hands at least twice a day to see if it heals and goes supple again.

Just shout anywhere around here and you will find a small but friendly bunch of people, and if you do want to chill out we have the members only boards. The Off Topic section is popular for chat, laughs, debates, etc, if you do go there I'm the sensible one.

Regards.

Fred.  

[Kat]

Welcome Kaden! I'm also a wife, mother and grandmother who enjoys crafting. I've only had psoriasis for a couple of years now, so I'm still a bit new to the disease. My crafting has slowed down considerably (due to other health problems.)

There's lots of information here as well as a friendly group of people. It's been a large help to me to be able to talk to people who understand. I'm glad you found your way here.

[jiml]

Hi Kaden and a big psoriasis club   to you I'm glad you have found your way here as has been said by both Fred and Kat we are a small but friendly group of psoriasis sufferers and we are happy to share our experience of treatments and what works and what doesn't. It's a great place for support as well,..... there's usually someone not too far away . I'm clear at the moment and have been lucky with my hands and feet so can't help with advice except to say please get to see a dermatologist who should be able to offer one of the many drugs on the market now and be able to get you to a better state, I don't know what meds you have been on, but I'm sure that a good dermatologist should be able to offer something to clear or at least improve your quality of life
I'm glad you have joined and I look forward to hearing what you are treating yourself with at the moment
Best wishes Jim

[Quest4Cure]

I am very sympathetic with palmoplantar psoriasis. It is painful and can be very difficult to manage.

I suffered for years until I finally found a method that works for me.

Keep your hands out of water. Water will pull all the moisture out of your hands . Use a OTC hand wash for P. My derm said washing in soap & water with P. is like a chemical bath. Or use glycerin soap only. Always moisturize after cleaning hands. There are a lot of chemicals in city water and well water. These chemicals can cause P. to become worse or infected. My derm said water is like a chemical bath. Add a water softener if possible.

ALWAYS keep hands heavily moisturized, wear cotton gloves 24/7 to protect them from any type of injury bigotry small.

At first I started with 7 times a week useing occlusion . I applied a steroid hand cream from my derm and wore silicone gloves over them overnight. This was a steroid cream that was approved by my derm to use with occlusion.This would allow the meds to penetrate deep into the derm layers to the stop the small capability blood vessels that feed the P.cells. Then 4 times a week ... I would alternate the steroid cream with a heavy moisturizer, coconut oil or any fav moisturizer..or coal tar 1.25% OTC, used with occlusion over night. The cracks would begin to heal and the bleeding stopped. It takes time.

Always keep your hands protected day and night with gloves. Cotton, garden, or silicone. Everything you do always protect UR hands. Keep them dry and moisturized. Be careful not to use steroid cream too much in succession, it can thin the skin. That's why I alternate steroid creams with coal tar and moisturizers while using the occlusion method.

Two days a week I went to the derm for light therapy . Also took vit-D3 daily.

At times had the derm used surgical glue to hold the splits in the palm cracks together. That seems to be a place where the splitting was the worse as well as the tip of my fingers. They were just raw . All the splits and cracks healed using his method in a few weeks. That was 4 years ago. Been in remission ever since and I still protect my hands.

Every time I spot something starting I take care of it right away. I have not used steroids for 4 years now, and my skin has not thinned.

I hope you can find a way to clear your hands. Today there are many new bio drugs and Derms are much better at treating P. than in the past where there were very few options in comparison with today's treatments.

[Caroline]

Hi Kaden,

Welcome to the forum.
There is a lot to read, any questions will be answered by the one that is available, and we all help each other to see the bright side of life.

Mingle in and have fun

Caroline

[Kaden]

It looks like I have indeed found a good place to find support. And a place to have questions answered. Even after being with the disease for so many years, I still have so many questions. I look forward to reading more threads and becoming more educated.

[jiml]

It looks like I have indeed found a good place to find support.    And a place to have questions answered.  Even after being with the disease for so many years, I still have so many questions.  I look forward to reading more threads and becoming more educated.

A very early good morning to you in the U.S. Kaden   you are right here is a great place, questions don't go unanswered for very long. If only any of us knew the answer to how to rid ourselves for good it would be great. But while we wait for that elusive cure, we can take comfort here in knowing we aren't alone and the advice often given can reassure your own thinking .
I know we suggest you get to a dermatologist to get a change of treatment if Humira and methotrexate aren't working, but I'm sure you have thought this yourself..... How long have you been on your current treatment and has there been any improvement ?
Re getting educated here, we tend to learn from each other's experience which to my mind is often better than a new dermatologist who has no real idea how desperate we can feel at times
Great to see you back
Jim

[Troll]

Belated hello Kaden

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