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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Acitretin journey!

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Acitretin journey!
fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#61
Thu-22-10-2015, 23:48 PM
(Thu-22-10-2015, 23:39 PM)jiml Wrote:
(Thu-22-10-2015, 23:26 PM)fingers Wrote:
(Thu-22-10-2015, 23:21 PM)jiml Wrote: Good news Fingers I hope Fumaderm will work for you, it has certainly been the best drug for me. I have been virtually clear for 4 years on it, you may find it difficult to start with.

If you have any problems or questions feel free to ask, there are several of us on Fumaderm here now and enjoying success with it

You may want to start a new Fumaderm thread
Thanks Jim!! One thing!  do you take it continuesly or stop and start!!....I got the impression she would only put me on it short term until/if it cleared me?

You should be put on it long term, the idea is to get to a level where Fumaderm clears your skin. Gradually increasing the dose to the maximum dose of Six tablets a day. Then after a period of stability, start reducing to a lower dose which still keeps working.
But I wouldn't stop, and when you get clear that will be the time to tell the dermatologist you want to stay on a reduced dose .. Keep dropping the dose slowly over a few months ( in my opinion) if you can reduce to zero without it coming back, great but I doubt you will manage without some Fumaderm in your system.
( we have mateychuck on here who takes one a day as a maintenance dose and it still works for him )
I reduced to 3 a day and psoriasis started coming back so I upped to 4  a day which keeps me virtually clear.

As long as your bloods are good there is no reason to stop, if you lymphocytes drop out of the normal range dropping the dose is usually enough to bring them back up again
Thanks Jim! I will bear that in mind when the time comes!! If I ever get clear I will hang onto it as long as possible!!!!!
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Treatment: Skilarence 5x120mg a day
#62
Thu-22-10-2015, 23:53 PM (This post was last modified: Thu-22-10-2015, 23:53 PM by jiml.)
(Thu-22-10-2015, 23:48 PM)fingers Wrote:
(Thu-22-10-2015, 23:39 PM)jiml Wrote:
(Thu-22-10-2015, 23:26 PM)fingers Wrote:
(Thu-22-10-2015, 23:21 PM)jiml Wrote: Good news Fingers I hope Fumaderm will work for you, it has certainly been the best drug for me. I have been virtually clear for 4 years on it, you may find it difficult to start with.

If you have any problems or questions feel free to ask, there are several of us on Fumaderm here now and enjoying success with it

You may want to start a new Fumaderm thread
Thanks Jim!! One thing!  do you take it continuesly or stop and start!!....I got the impression she would only put me on it short term until/if it cleared me?

You should be put on it long term, the idea is to get to a level where Fumaderm clears your skin. Gradually increasing the dose to the maximum dose of Six tablets a day. Then after a period of stability, start reducing to a lower dose which still keeps working.
But I wouldn't stop, and when you get clear that will be the time to tell the dermatologist you want to stay on a reduced dose .. Keep dropping the dose slowly over a few months ( in my opinion) if you can reduce to zero without it coming back, great but I doubt you will manage without some Fumaderm in your system.
( we have mateychuck on here who takes one a day as a maintenance dose and it still works for him )
I reduced to 3 a day and psoriasis started coming back so I upped to 4  a day which keeps me virtually clear.

As long as your bloods are good there is no reason to stop, if you lymphocytes drop out of the normal range dropping the dose is usually enough to bring them back up again
Thanks Jim!  I will bear that in mind when the time comes!!  If I ever get clear I will hang onto it as long as possible!!!!!

If you can hack the initial side effects it should work and the side effects will then subside
It has been used in Germany for over 30 years with very high success rate ... It is amazing it's not fast but when it works it's like a new life opening for you
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Bill Offline
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100 + Member I Just Cant Stop !
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#63
Fri-23-10-2015, 09:43 AM
Nicely described, Jim.

Cheers,

Bill
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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#64
Fri-23-10-2015, 11:13 AM
(Thu-22-10-2015, 23:13 PM)fingers Wrote: Well folks!...I may need to change the title of this thread to Acitretin/ Fumaderm journey!!....

Fingers just start a new one like Jim said in Prescribed Treatments For Psoriasis and put a link here to it. *Don't title the new thread "Fumaderm" though as we have a lot of Fumaderm threads. Maybe something like "Fingers Fumaderm Journey" or something.

Good luck with it mate, it sounds like you have a good dermatologist.
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Kat Offline
Take my advice; I don't use it anyway.

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#65
Fri-23-10-2015, 13:11 PM
Looking forward to following your Fumaderm journey and hoping it's the one that works for you. Smile
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
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#66
Fri-23-10-2015, 22:03 PM
(Fri-23-10-2015, 13:11 PM)Kat Wrote: Looking forward to following your Fumaderm journey and hoping it's the one that works for you.  Smile

Me too will carefully follow you Smile
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kh924 Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 261
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Joined: Jul 2014
Gender: Female
Location: Boston, MA (USA)
Treatment: Acitretin/Soritane
#67
Fri-23-10-2015, 22:23 PM
Yes, Fingers - we will all be following your journey. Hope this is the answer for you.

On a side note, We are so lucky to have this forum and the advice/experiences of others like Jim. Please do document your journey. It will undoubtedly help another user.
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fingers Offline Author
Member


Posts: 58
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Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#68
Fri-23-10-2015, 22:23 PM
(Fri-23-10-2015, 22:03 PM)Caroline Wrote:
(Fri-23-10-2015, 13:11 PM)Kat Wrote: Looking forward to following your Fumaderm journey and hoping it's the one that works for you.  Smile

Me too will carefully follow you Smile
Thank you ladies!!...I take my first tablet Monday the dermatologist wanted to give a few days break from Acitretin first!!...bloods in 3 weeks!!!!!!
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fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#69
Fri-23-10-2015, 22:26 PM
(Fri-23-10-2015, 22:23 PM)kh924 Wrote: Yes, Fingers - we will all be following your journey. Hope this is the answer for you.  

On a side note, We are so lucky to have this forum and the advice/experiences of others like Jim. Please do document your journey. It will undoubtedly help another user.
Thanks KH!!!....I'm greatful for everyone's advice and am glad to help!!!
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#70
Fri-23-10-2015, 22:28 PM
Hi fingers you say you start on Monday, is that with Fumaderm initial ?
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