Anyone tried Otezla

[mataribot]

I'm not a fan of Otezla at all. I never tried it, so take this post as a grain of salt. Otezla works for psoriasis very slowly. It takes as much as six months to show full benefit compared to 3 months for most biologics. It's gastro side effects and it's depression warning is more than enough not to take it.

[phil]

I have been on it for 3 weeks and I live in England.
at the moment the drug company are supplying it f.o.c
and I get mine from Guys Hospital.30mg tablets twice a day
side affects none at the moment.

Phil

[jiml]

I have been on it for 3 weeks and I live in England.
at the moment the drug company are supplying it f.o.c
and I get mine from Guys Hospital.30mg tablets twice a day
side affects none at the moment.

Phil

Thanks Phil that's good to know ...glad you have got it and hope it works well for you
Will you need the same monitoring as the previous drug you were on ?

[phil]

Hi Jim
yes nurses clinic 4 weeks and 8 weeks then the main clinic 12 weeks.
not sure after that.

Phil

[gokiddo]

I have been on it for 3 weeks and I live in England.
at the moment the drug company are supplying it f.o.c
and I get mine from Guys Hospital.30mg tablets twice a day
side affects none at the moment.

Phil

Hi Phil

How did you get Otezla? I too am being treated at Guys and it was quite a definite "no" from the derm I saw there this week. How do you get it free?

Thanks

[Fred]

I have been on it for 3 weeks and I live in England.
at the moment the drug company are supplying it f.o.c
and I get mine from Guys Hospital.30mg tablets twice a day
side affects none at the moment.

Phil

Hi Phil

How did you get Otezla? I too am being treated at Guys and it was quite a definite "no" from the derm I saw there this week. How do you get it free?

Thanks

Otezla u turn by NICE

[phil]

I have been on it for 3 weeks and I live in England.
at the moment the drug company are supplying it f.o.c
and I get mine from Guys Hospital.30mg tablets twice a day
side affects none at the moment.

Phil

Hi Phil

How did you get Otezla? I too am being treated at Guys and it was quite a definite "no" from the derm I saw there this week. How do you get it free?

Thanks

Hi gokiddo
i was on Fumaderm on and off  for about 13 years but this time last year had to stop.
after a break they told me they would start me on Otezla which they have.
Fred has posted why i get it free.

[Sandra]

Hi everyone
Sorry I have not posted in months! So last time I posted, I had been very poorly with the side effects of Acitretin. I had no choice but to stop taking and luckily things eventually resolved themselves.

So 2 months ago and after refusing all other drugs I was offered Ortezla and I agreed. What can I say, it has been like a miracle! At the point of starting 3/4 of my body was covered in psoriasis, my joints were swollen, stiff and sore. I was told it was extremely aggressive and I was having to be covered in tar and bandages.

I sit here 2 months later and the only psoriasis that remains is just above my ankles and my feet and it continues to clear.

The only side effects have been nausea and an upset tummy, quite full on to begin with but is less as the weeks go by. For me this has been a wonder drug, with minimal side effects or should I say side effects that I can cope with. I cannot describe the difference this has made to my life! I no longer itch or flake. I require the minimum amount of creams ( just my old faithful epiderm and a minimal amount of diprosalic). For the first time in years I am able to wear a sleeveless dress.

My consultant has been amazing as she realised I had such a phobia around drugs and side effects, she has seen me regularly just for reassurance more than anything.

So I am going to say the advice that I was given on here which was to not give up, was the right advice. I am sorry I have not kept in touch but to be honest for many months I was all doom and gloom.

Hope you are all keeping well.

Sandra

[Sandra]

Sorry forgot to say..
Also no swollen, stiff, sore joints!! All gone!
Sandra

[jiml]

Sorry forgot to say..
Also no swollen, stiff, sore joints!! All gone!
Sandra

Hi Sandra I'm so glad to wake up to this news this morning, I know you were at an all time low last time you were here. That makes it all the nicer to read of your experience since, I'm so glad you didn't give in and have turned your life around .
Thank you for taking the trouble to come and tell us of the transformation. I'm so glad you are able to wear sleeveless tops now and feel comfortable
Please let us know of your continued clearance, as your experience will undoubtedly give hope to others

Jim