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Why I enjoy Psoriasisclub

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Why I enjoy Psoriasisclub
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#1
Mon-01-08-2016, 00:17 AM
I though I would write a few words about why I joined the club and what it means to me

I joined the forum in October 2013 When I had problems with my psoriasis medication, I didn't know where to get impartial advice, I searched the Internet but was unable to find any answers until I stumbled onto this site..

I had never been on a forum before and found it difficult to pluck up the courage to post my first question and was pleasantly surprised by the fast friendly response I received......it certainly encouraged me to return and reply to the answers I got....up until I joined this club, I had managed alone through my life with this awful disease trying to keep it hidden, ashamed of the flaky trail I left wherever I went....I always felt that I was alone even when in company the psoriasis is always your dark secret ....family try to understand but can't know how it feels to live with the disease

So coming here was a revelation to me that I wasn't alone and there were people out there with the same problems as me
I find the site very helpful as there are updates on a regular basis of the latest developments of psoriasis treatments, and the members generally keep us updated on their progress ...enabling me to understand more about the disease and the best way to treat it, as told by members,

I like the fact there are very few rules and those that there are are to keep the site safe from spammers and advertisers. Most of the rules are just common sense and easy to abide by. I would sometimes like to give an outside link to some information, but I understand the reasons we don't allow it. The site is totally independent and privately funded, giving all members free access to all the information without requests for donations

I'm of the opinion that if the site has been successful since 2011 it must be doing something right.

I love he ease of navigation and how if lost someone will always help.

I have found it rewarding to be able to talk with new members and try to help them deal with the disease and tell of my experience.....

I would say that although this was the first forum  I ever joined I have visited many since but I find this one the most useful and friendly which is why I keep coming back, and am glad that I was made a forum helper

I have watched the forum flourish over the three years I have been here with a steadily growing friendly membership from around the world

After I joined I was soon posting jokes in the off topic section, and after a while started to post photos in the members photos section .....The off topic section is filled with all manner of topics from gardening to pets ..Railways to holidays you name it it's probably there

In summary this is more than just another psoriasis forum ( although in my opinion the best) it is also a place to forge friendships and comradeship with others with the disease
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,200
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Mon-01-08-2016, 09:52 AM
Thank you for the feedback.

I'm glad you plucked up the courage to join us Jim and that you received a fast friendly response from our members. Now you are paying back by being here for others, so thank you for your time.  Thumb
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pingu Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 429
Threads: 19
Joined: Jun 2015
Gender: Male
Location: UK
Treatment: Dovobet
#3
Mon-01-08-2016, 20:47 PM
Agree 100%. The support here is brilliant and even though I do not spend as much time as I would like to I feel it is much more a group of friends with a common problem.

I have no idea where I would be without some of the advice and feedback I have received.
Quote
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,200
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Mon-01-08-2016, 22:24 PM
(Mon-01-08-2016, 20:47 PM)pingu Wrote: Agree 100%. The support here is brilliant and even though I do not spend as much time as I would like to I feel it is much more a group of friends with a common problem.

I have no idea where I would be without some of the advice and feedback I have received.

Thank you Pingu. Nice to hear we have helped, and I'm sure you are helping others too. Don't worry about the time you spend here, we understand that people do have lives to live away from Psoriasis Club. All we ask is if our members can spend a little time as and when they can to see if they can answer questions, offer support, or give quick update on their own threads the better it is for all.

But no one is under any obligation and we will always be here for you and others when needed.

Smile
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