Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Psoriasis And Psoriatic Arthritis Topics v
« Previous 1 … 6 7 8 9 10 … 24 Next »

Did you receive a TREATMENT that failed to work?

Threaded Mode
Did you receive a TREATMENT that failed to work?
PsA_PTT Offline
Newbie


Posts: 1
Threads: 1
Joined: Apr 2017
Gender: Female
Location: Glasgow, KY
Treatment: Medication
#1
Thu-20-04-2017, 21:10 PM
To: those with Psoriaticarthritis who may have received treatment that did not work

Today I am reporting a serious ‘Error’ made by Radiology Interpreters
that has been causing the physicians who had ordered the tests to choose 'wrong' treatments - thereby placing patients in a harmful situation.
 
 (fact) Some people were diagnosed as having Psoriaticarthritis by Rheumatologists and Osteoarthritis by Radiologists. 
I am one of them. Fact is I have Psoriaticarthritis only, not both.  Please read on:

MAGNITUDE OF SERIOUSNESS
The problem that I am reporting here is not considered to be limited to two U.S. states that I experienced in but is estimated to be in many other states within the United States, evidenced by people reporting the same problem in several patient forum websites.
 
"ERROR" BY RADIOLOGY READING DOCTORS
Radiology Interpreters are Medical Doctors.
These doctors read and then interpret the MRI, X-ray, and other radiological test results ‘without’ much knowing the medical history of individual patients.
Although they know that there are different types of Arthritis [ (1)  Rheumatoid Arthritis. (2) Psoriaticarthritis. (3) Osteoarthritis], they simply base their interpretation on the patient’s age – making the Physicians who had ordered the test choose ‘wrong’ treatments.
 
For example:
I have a history of treatment for Psoriasis and have had Psoriaticarthritis pain in hip joints. When I had a lower back pain, an Orthopedic physician,Tennessee ordered MRI. Without knowing me having Psoriatic Arthritis, the interpreter (name undisclosed, Medical Doctor, Cookeville, TN 38501) diagnosed me as having Osteoarthritis simply based on my age, in addition to a condition in my lumbar spine. 
The wrong interpretation made my Orthopedic physician to send me where I ended up receiving injections, which not only failed to work on me but put me in increasing pain. I did not find the causation until after the second incident as below.
 
Years later after my engineering job relocated me to Kentucky,  my new primary care physician (Glasgow, KY 42141) ordered me to take a hip X-ray test. Without knowing my history of having Psoriaticarthritis, the interpreter (name undisclosed, Medical Doctor, Glasgow, KY 42141) read the X-ray test result and diagnosed me as having Osteoarthritis, simply based on my age.
 
Recently, a pain intervention specialist, whom I was referred to by my primary care, prescribed me a medication for Osteoarthritis (cost me hundreds of dollars out of pocket) which I found out later after having a serious side effect. The medication did not alleviate my pain at all after more than a week of taking two types of prescribed pain killers.  7 days later I reported the specialist through his nurse that the drugs not working at all or worse. Did they (doctor's nurse and doctor) tell me to stop or to replace with other medication? No. They instead told me to continue on for 5 more weeks.  It was not until 11 days after started taking when they finally told me to discontinue because I had a serious side effect and reported.  I then had my primary care to check the side effect who told me that I was prescribed to a wrong medication.  It was a scary experience. It was all caused by 'erroneous' radiology interpretation by the medical doctor of Radiology.   
My fellow patients with Psoriaticarthritis, please be aware!   Hope that you all are doing well.
 
Radiology Interpreters must quit writing diagnostic assumption in Arthritis. Or, it can cause a serious consequence  <<  I say it aloud!
Quote
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,200
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Thu-20-04-2017, 21:20 PM
Sounds shoddy to me. Here the results are sent to the doctor that ordered the test and they make the decision.

I'll move this thread to Psoriasis And Psoriatic Arthritis Topics as it's better suited there.

Welcome to Psoriasis Club by the way.  Wave
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,589
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Thu-20-04-2017, 21:44 PM
(Thu-20-04-2017, 21:10 PM)PsA_PTT Wrote: To: those with Psoriaticarthritis who may have received treatment that did not work

Today I am reporting a serious ‘Error’ made by Radiology Interpreters
that has been causing the physicians who had ordered the tests to choose 'wrong' treatments - thereby placing patients in a harmful situation.
 
 (fact) Some people were diagnosed as having Psoriaticarthritis by Rheumatologists and Osteoarthritis by Radiologists. 
I am one of them. Fact is I have Psoriaticarthritis only, not both.  Please read on:

MAGNITUDE OF SERIOUSNESS
The problem that I am reporting here is not considered to be limited to two U.S. states that I experienced in but is estimated to be in many other states within the United States, evidenced by people reporting the same problem in several patient forum websites.
 
"ERROR" BY RADIOLOGY READING DOCTORS
Radiology Interpreters are Medical Doctors.
These doctors read and then interpret the MRI, X-ray, and other radiological test results ‘without’ much knowing the medical history of individual patients.
Although they know that there are different types of Arthritis [ (1)  Rheumatoid Arthritis. (2) Psoriaticarthritis. (3) Osteoarthritis], they simply base their interpretation on the patient’s age – making the Physicians who had ordered the test choose ‘wrong’ treatments.
 
For example:
I have a history of treatment for Psoriasis and have had Psoriaticarthritis pain in hip joints. When I had a lower back pain, an Orthopedic physician,Tennessee ordered MRI. Without knowing me having Psoriatic Arthritis, the interpreter (name undisclosed, Medical Doctor, Cookeville, TN 38501) diagnosed me as having Osteoarthritis simply based on my age, in addition to a condition in my lumbar spine. 
The wrong interpretation made my Orthopedic physician to send me where I ended up receiving injections, which not only failed to work on me but put me in increasing pain. I did not find the causation until after the second incident as below.
 
Years later after my engineering job relocated me to Kentucky,  my new primary care physician (Glasgow, KY 42141) ordered me to take a hip X-ray test. Without knowing my history of having Psoriaticarthritis, the interpreter (name undisclosed, Medical Doctor, Glasgow, KY 42141) read the X-ray test result and diagnosed me as having Osteoarthritis, simply based on my age.
 
Recently, a pain intervention specialist, whom I was referred to by my primary care, prescribed me a medication for Osteoarthritis (cost me hundreds of dollars out of pocket) which I found out later after having a serious side effect. The medication did not alleviate my pain at all after more than a week of taking two types of prescribed pain killers.  7 days later I reported the specialist through his nurse that the drugs not working at all or worse. Did they (doctor's nurse and doctor) tell me to stop or to replace with other medication? No. They instead told me to continue on for 5 more weeks.  It was not until 11 days after started taking when they finally told me to discontinue because I had a serious side effect and reported.  I then had my primary care to check the side effect who told me that I was prescribed to a wrong medication.  It was a scary experience. It was all caused by 'erroneous' radiology interpretation by the medical doctor of Radiology.   
My fellow patients with Psoriaticarthritis, please be aware!   Hope that you all are doing well.
 
Radiology Interpreters must quit writing diagnostic assumption in Arthritis. Or, it can cause a serious consequence  <<  I say it aloud!

Welcome to Psoriasisclub.

Doctors are more often wrong, we sometimes discuss on this, look over here RE: Road to Cosentyx, or should I say Co$entyx.
You always should be very critical, take someone with you when going to the doctors, and search the internet. The internet is often wrong too, but on average you can do some reasonable research on the diseases that a doctor says you are suffering from.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#4
Thu-20-04-2017, 21:51 PM
Hi and welcome Welcome to the club. You certainly have had a rough deal by the medical radiographers... you could understand one mistake but it seems as if they have kept repeating the mistakes and put it down age .....no mater where you went....my question is ....have they eventually got it right and what treatment are you on now

Thanks for the warning and I hope that here in the U.K. They dont make similar mistakes

I hope you find our forum interesting and I look forward to reading more from you

Jim
Quote
mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#5
Fri-21-04-2017, 04:05 AM (This post was last modified: Fri-21-04-2017, 04:06 AM by mataribot.)
Radiology or whatever is difficult task for most doctor offices around the world. Not only the tech giving the test need know what they are looking for, the doctor also has to understand it. Only 85% of offices that are trained with the special classes are able to succeed at it. Knowing where the disease is located (in then SI area or hip) is vitally important to treatment options. For the back, the only pill the will help pain is NSAIDs. Physical therapy (if you can afford it) also may help. Surgery should be the last option. In terms of disease modification TNFs, IL23 are best treatment options for back disease.
Quote
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#6
Fri-21-04-2017, 09:34 AM
Hi PsA_PTT,

Are you sure the radiographic OA diagnosis was based on your age? A report on a radiograph is but one source of information. It is up to the treating physician to collect sufficient information to make a diagnosis and determine a treatment plan.

I am at a loss to think of any disease that would respond either uniformly or predictably to a treatment. It would be great if it were so for psoriasis, then all you would need to read would be "Psoriasis? Use ************!". Too easy.

Cheers and welcome,

Bill
Quote
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#7
Sun-23-04-2017, 15:47 PM
Welcome! Your experience sounds very frustrating.

Radiologists report what they "see" as they don't deal with you directly, and from my understanding (which I admit is limited as I'm not a medical person) psoriatic arthritis has no definitive test. I have osteoarthritis and psoriasis so my primary doctor sent me to a rheumatologist for testing. It was explained to me that they take the patient's history, run test to rule certain things out and then go from there in diagnosing psoriatic arthritis. It was explained a bit better than what I just said, but I can't remember word for word.

I think Bill summed it up pretty good.

I hope you're able to get treatment now and get things sorted out. Smile
Quote
« Next Oldest | Next Newest »


Possibly Related Threads…
Thread Author Replies Views Last Post
  Psoriatic Arthritis and work Steven S 10 8,271 Sat-17-12-2022, 20:35 PM
Last Post: Caroline
  What age did you get psoriasis? Fred 52 94,733 Mon-09-05-2016, 21:03 PM
Last Post: jiml



Users browsing this thread: 1 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode