Davieb Cosentyx

[Caroline]

Hi Davieb,

Read your story.
Seems to me you have been the victim of the rheumatologists. They don't know how to treat PsA.
A dermatologist would have given you, Acetretin, Cyclosporine, also MTX, or Dimethylfumarates, and would then have gone to the bio's like Humira, Enbrel, Stelara and finally Cosentyx.

[Davieb]

Hi Davieb,

Read your story.
Seems to me you have been the victim of the rheumatologists. They don't know how to treat PsA.
A dermatologist would have given you, Acetretin, Cyclosporine, also MTX, or Dimethylfumarates, and would then have gone to the bio's like Humira, Enbrel, Stelara and finally Cosentyx.

I cant use MTX as it damaged my liver before, however I started on Leflunomide in 2010, which actually worked ok up until around 2015. I noticed then the arthritis was getting worse, it was in my feet shoulder and spinal area, to be fair to my rheumatologist, she kept asking  at my visits if any other areas were affected and up until then it was mainly my hands.
As in my long post in addition to my Leflunomide I was given first of all naproxen, then offered cyclosporine but after reading the possible side effects which could affect my driving (i'm a service engineer) so i do a lot of driving I was not in favour of this, so i was then offered sulfasalzine, which funnily enough was one of the options I was given at the very start of my PSA. It was combination of the lefl.. and sul... that caused all my illness, but in the end got me onto Cosentyx.
When I was in hospital I found out later that my blood tests showed no sign of toxins , so they still don't know what caused my illness, but I'm convinced it was a combo of lefl... and sulf.. that did it.
I only seen a dermatologist at the start in 1978 and then 1989, as my psoriasis is not the common type, I don't have plate type, my skin is virtually clear and has been since around 1978/9, it's my finger and toenails that are affected mostly and then developed PSA in 2009.

[Davieb]

Hi All,
For people using Cosentyx in the uk, does anyone have a phone number that I can call to arrange a new order of same, I'm not registered with the lets go cosentyx. 
I go on holiday a week today and my next injection will be due a few days after my return, much appreciate if anyone can give me phone number as a PM.

[Fred]

Hi All,
For people using Cosentyx in the uk, does anyone have a phone number that I can call to arrange a new order of same, I'm not registered with the lets go cosentyx. 
I go on holiday a week today and my next injection will be due a few days after my return, much appreciate if anyone can give me phone number as a PM.

Wouldn't you have to get a prescription from your dermatologist, or contact your pharmacie ?

I don't think phoning Cosentyx directly would be the way to go, but I could be wrong.

[Davieb]

Hi All,
For people using Cosentyx in the uk, does anyone have a phone number that I can call to arrange a new order of same, I'm not registered with the lets go cosentyx. 
I go on holiday a week today and my next injection will be due a few days after my return, much appreciate if anyone can give me phone number as a PM.

Wouldn't you have to get a prescription from your dermatologist, or contact your pharmacie ?

I don't think phoning Cosentyx directly would be the way to go, but I could be wrong.

Hi Fred,
My Cosentyx has been delivered to my home since I first started using. I do have the Cosentyx at home pack, the only phone number on these is Novartis. Unfortunately I misplaced my last delivery receipt which I assumed would've had the contact number. No probs I can always phone my Rhuematolgy LED nurse in worse case scenario. There is a website that you can be registered on called Lets go Cosentyx  and order through that,but I haven't been through the hospital I attend for whatever reason.
Anyway, thanks for the response.

[Fred]

Hi All,
For people using Cosentyx in the uk, does anyone have a phone number that I can call to arrange a new order of same, I'm not registered with the lets go cosentyx. 
I go on holiday a week today and my next injection will be due a few days after my return, much appreciate if anyone can give me phone number as a PM.

Wouldn't you have to get a prescription from your dermatologist, or contact your pharmacie ?

I don't think phoning Cosentyx directly would be the way to go, but I could be wrong.

Hi Fred,
My Cosentyx has been delivered to my home since I first started using. I do have the Cosentyx at home pack, the only phone number on these is Novartis. Unfortunately I misplaced my last delivery receipt which I assumed would've had the contact number. No probs I can always phone my Rhuematolgy LED nurse in worse case scenario. There is a website that you can be registered on called Lets go Cosentyx  and order through that,but I haven't been through the hospital I attend for whatever reason.
Anyway, thanks for the response.

As your not registered with the site I doubt they would be able to help but I will PM you an Email contact, it could be worth a try.

[Davieb]

Hi All,
For people using Cosentyx in the uk, does anyone have a phone number that I can call to arrange a new order of same, I'm not registered with the lets go cosentyx. 
I go on holiday a week today and my next injection will be due a few days after my return, much appreciate if anyone can give me phone number as a PM.

Wouldn't you have to get a prescription from your dermatologist, or contact your pharmacie ?
Thanks Fred,just received your PM.
I don't think phoning Cosentyx directly would be the way to go, but I could be wrong.

Hi Fred,
My Cosentyx has been delivered to my home since I first started using. I do have the Cosentyx at home pack, the only phone number on these is Novartis. Unfortunately I misplaced my last delivery receipt which I assumed would've had the contact number. No probs I can always phone my Rhuematolgy LED nurse in worse case scenario. There is a website that you can be registered on called Lets go Cosentyx  and order through that,but I haven't been through the hospital I attend for whatever reason.
Anyway, thanks for the response.

As your not registered with the site I doubt they would be able to help but I will PM you an Email contact, it could be worth a try.

[Davieb]

Hi All,
Found my last receipt of my Cosentyx. My Cosentyx is through Healthcare at home, I take it comes from Burton on Trent, long way for a delivery!! although that's probably their main office.
Thanks for any responses.

[Fred]

Hi All,
Found my last receipt of my Cosentyx. My Cosentyx is through Healthcare at home, I take it comes from Burton on Trent, long way for a delivery!! although that's probably their main office.
Thanks for any responses.

I'll PM you their number.