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New to PC, suffering and unable to see a doctor

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New to PC, suffering and unable to see a doctor
araorun Offline Author
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Posts: 16
Threads: 3
Joined: Mar 2018
Gender: Female
Location: Memphis, TN
Treatment: Epsom Salt, Neosporin
#31
Sun-11-03-2018, 05:14 AM
(Sun-11-03-2018, 01:57 AM)Will20 Wrote: Hello Araorun,
I too am Diabetic (Type 2 and on Insulin) and I find when I eat foods which contain sugars my skin goes crazy and I itch like mad. Try to avoid sugar and drink loads of water.
As a suggestion you could put several drops of baby oil in the Bath water and have a 20 minute soak, pat your skin dry with a towel.
Go see your GP and request a referral to see a Dermatologist.

hi and thanks! it's so hard having two autoimmune diseases going crazy at once, and treatment for one exacerbates the other. 
sugar
to your points: i do drink water ALL THE TIME and I rarely ever eat sugar. I'm type 1 insulin-dependent, so sugar is reduced to a rare treat for me, unless I am bottoming out. 
i have been putting coconut oil in the bath as i've not found it helps via direct application. but the minor med doc today told me to avoid baths. because some of the skin on my legs is broken open and bleeding, he said a bath could increase my risk of infection. except to get scales off painlessly, i haven't noticed baths helping and prefer showers anyway. but I shall see. 



did find out when I got to the pharmacy that Medicaid would not pay for the topical steroid without a PA (prior authorization), but did pay for the 47-pill predisone burst ... the doc at the minor med who wrote that will have to call Medicaid and give them a prior authorization. he did advise against taking predisone, but i started it this afternoon. since i didn't fill the scrip til after 2 i didn't take 6 today... took 4 so far. after the first 2 my sugar shot up to 344 but then I took large dose of novolog and ate a pretty light dinner.  took two more pills,fell asleep, checked it upon waking.... 124 and i was hungry, so i took some more insulin and ate the rest of my dinner.



my aunt, the retired RN and knows everything about every specialty, told me rheumatologists treat psoriasis and psoriatic arthritis and they are as hard to get into in Memphis right now as a psychiatrist, a problem we both have had. she also asked why not a rheumatologist and I told her that was for the plaque psoriasis... any thoughts why a rheumatologist was never mentioned before to me?

i must say with the steriod shot last night and the pills today, I am already noticing very slight improvement in the most inflamed areas. I know it's not a fix, but right now even a band-aid will do. the minor med doc mentioned systemics and the ER idiot doc said I probably need the injections, which I've heard diabetics can't take, but I am convinced he didn't remember i was type 1 -- hence the 47-pill predisone burst without any discussion of effect on sugars. 

ankles & feet wrapped in ace bandages, been staying off my feet a lot today.... oh, and to go back to your comment about my PCP for a referral, Baptist got me into their referral system so hopefully i can stay out of his office. like i said in my OP, i have a very demanding job i just started and I'm already on the line for missing 3 days due to son's illness and an incident at his school where he was physically injured by a bully. so Monday this past week I got the "your job is going to be on the line" talk even though they acknowledge I'm doing excellent work. I think with the notes from ED, minor med and urgent referral, they have to understand this is something i have to do. hope hope hope. i've worked hard to get into this company for more than a year. 

thanks for your suggestions and support... i pray for the day I get into that specialist and get a real treatment plan to take this issue down will happen sooner than later.... your suggestions all mean a lot to me and as a recovering addict as well i've joined other online groups and just dropped out. that's not happening here.  Bigarm
araorun Offline Author
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Posts: 16
Threads: 3
Joined: Mar 2018
Gender: Female
Location: Memphis, TN
Treatment: Epsom Salt, Neosporin
#32
Sun-11-03-2018, 05:24 AM (This post was last modified: Sun-11-03-2018, 05:26 AM by araorun. Edited 1 time in total.)
i also started taking again my hair, skin and nail vitamin (2500 mcg of biotin) and was going to ask about fish oil supplements... only took those during pregnancy, anyone experienced help from supplements? Both docs I saw this weekend mentioned omega 3... not taken since my pregnancy but anyone experienced any help from either of those?
Caroline Online
You must hurry if you ever want to catch a chicken...
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#33
Sun-11-03-2018, 07:56 AM
The only additional help I feel in my case is vitamin D.
It softens my joints.

I still don’t get it why you want to go to a rheumatologist, but maybe it is different in the USA. And they treat an auto immune disease more in the place where it should be treated.
Over here, in the Netherlands, the dermatologist is the doc to go to. They have by far more knowledge of Psoriasis than the rheumatologists who almost know only one treatment, methotrexate. The derms understand it more and have a whole scale of possibilities and have less of the MTX reflex.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
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#34
Sun-11-03-2018, 14:04 PM
Yes Omega 3 is good for psoriasis, but I prefer to get mine from foods rather than supplements. I did try them once many years ago, but it didn't make any difference.
Will20 Offline
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Location: York, Yorkshire.
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Treatment: Acitretin. (2nd time)
#35
Sun-11-03-2018, 15:13 PM
Hi Araorun,

I saw a Rheumatologist for a year to have Bone Scans, X Rays and MRI Scan to get a diagnosis for my joint pain. Dermatologist thought it was Psoriatic Arthritis but in fact it is Osteoarthritis I have. I get on prescription Vitamin D drops to take daily which help both my joints and skin. But, I also take one 1000mg of Omega 3 daily.
I have just had stopped 2 weeks ago Apremilast as it caused so many different side effects and it amazes me after all these years how quick my skin erupts in between treatments. 
But, my Psoriasis only turned chronic  when I was diagnosed with Type 2 Diabetes 18 years ago, up and until then I only had a few scattered blemishes that were not visible and needed only moisturizer.
I have taken Prednisone over the years for other Health Conditions and it sends my blood sugars sky high.
I truly hope you get sorted.
araorun Offline Author
Member


Posts: 16
Threads: 3
Joined: Mar 2018
Gender: Female
Location: Memphis, TN
Treatment: Epsom Salt, Neosporin
#36
Mon-12-03-2018, 15:50 PM
yes, rheumatologists here treat autoimmune diseases... however, I don't have psoriatic arthritis (yes). I didn't present with joint pain or anything. The minor med referral center which put me in for an urgent referral called me before 9 a.m. this morning -- amazing, but they did tell me that they were sending the info over to my PCP and the doctor they could get in the faster with was scheduling out in June. I had already called my PCP this morning to advise them of the situation, ask if they could prescribe a different topical and help get me into a rheumatologist, and the nurse said she would get the note to my PCP. With my call and the Baptist referral center calling them, I feel like they may actually get on it. I hope, I hope. 

that being said... i also think a dermatologist is the way to go... don't know why they would both say rheumatology, but perhaps the swelling, etc. makes them think i have arthritis? 

I know I can call a derm directly and get in without a referral from my PCP--my insurance doesn't require referrals, but for some reason, to get into a doc in this particular specialty means i need one. but with my VERY limited time to take for doctor's appointments, I hate to waste my time going to see a derm just to have to take time off in a couple of months to see a rheumatologist. But I feel like it's worth a shot to try to find a derm, because there are more of them. Still conflicted on that. 

i will note that although i know the prednisone is a band-aid fix, the outbreak is so much more improved right now. Walgreens pharmacy also was able to get me 1/4 of my prescription, which cost $25, and the topical steroid cream seems to be helping, too. The pain and broken open skin is visibly improving, and the swelling does seem to be going down. And my legs aren't bright red; they are obviously still covered in psoriasis, but it's in what I call "the white phase..." not bright red, bleeding, itching. 

some relief for now... working with PCP and others to get into specialists... using coconut oil didn't help much when it was so badly broken out, but as it heals up a little during this steroid burst, i'll keep trying to see if it helps
jiml Offline
100 + Member I Just Cant Stop !

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Treatment: Skilarence 5x120mg a day
#37
Mon-12-03-2018, 17:06 PM
It’s great to hear that you feel you are making progress, and you seem to be getting some improvement to the Psoriasis. That in itself is a blessing.... seems like at last you are being taken seriously

The improvement should help your stress levels and that will also hopefully help the Psoriasis. You are sounding more positive now I’m pleased about that.... I hope that you will soon get the treatment you deserve   Thumb
Do keep reading on here about the disease and treatments. That will also help when you meet a rheumatologist or Dermatologist to understand what they are offering and enable you to better discuss options

Good luck
Jim

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