Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Introductions v
« Previous 1 … 3 4 5 6 7 … 31 Next »

New member here - just started on Siliq

Thread Closed 
Threaded Mode
New member here - just started on Siliq
hithere2233 Offline
Newbie


Posts: 3
Threads: 1
Joined: Sep 2018
Gender: Male
Location: San Francisco
Treatment: Siliq
#1
Thu-13-09-2018, 23:08 PM
Hi All-

Have had severe psoriasis for about 15 years.  Started around the age of 35 or so.  Tried a bunch of steroid ointments which helps minimally.  I was my derms first patient for biologics many years ago.  I believe it was Enbrel.  Can't remember I've gone through so many.  Most of them work for me for a couple of years, then start to lose their effects.  Start to see positive results in a few weeks, then about 4 months for about 80-90% clearances.

After Enbrel, started Humira, then Stelara, then Cosentyx.  Cosentyx worked for about 3 years until the beginning of this year.  Was about to start Taltz, but my derm said I could try Humira again since Taltz doesn't work too well, from his experience.  Went back on Humira for a couple of months, but didn't see any improvement this time around.

My derm suggested I try giving my body a break from the biologics.  So after a few weeks of weening myself from those, and my psoriasis flaring up like crazy...worst I've ever experienced because I've always had the various drug treatments, I started on Otezla(oral pill). 

Well, about 4 weeks into Otezla, I became severely allergic.  I mean, rashes and bumps all over my body.  The itchiest experience you can imagine.  Many, many times worse than any psoriasis itchiness I've experienced.  

I ended taking over 100mg of Claritin a day for 3 weeks.  And of course, immediately stopped taking the Otezla.  Had to rid my system of all traces, so went cold turkey without any psoriasis meds for another couple of months, so you can imagine how bad the psoriasis became.

Anyhow, started on Siliq about a month ago and the results are promising.  Truth be told, other than the Humira on the 2nd round, all the injection treatments have worked pretty well.  I just hope Siliq works as well as the others in clearing up my condition.  And, that it continues to work for years to come or until another (or better) solution is developed.

Thanks for reading and letting me share my experience.
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#2
Fri-14-09-2018, 02:20 AM
Welcome!

Wow you have quite the experience with biologics!

I hope you have good luck with Siliq. I hope you'll keep us updated on how you're doing!
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Fri-14-09-2018, 07:13 AM
Hi there,

Welcome to Psoriasisclub.

You have had quite a series of treatments, very unfortunate for you that they all stop working. Hope you will do well on Siliq again. Did you ever take a look at alternative treatments ? Like food, etc. ?

Cheers.
Caroline
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#4
Fri-14-09-2018, 07:30 AM
Hi, nice to meet you Wave

I notice you say it was suggested to have a break from biologics - was it from a health and safety point of view or the idea they may work better after a break?

Hope you like the forum Thumb
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#5
Fri-14-09-2018, 10:29 AM (This post was last modified: Fri-14-09-2018, 10:35 AM by jiml. Edited 1 time in total.)
Hi and a big  Welcome to the forum, here you will learn the experiences of others on various treatments without bias towards any particular treatment, here it’s all about sharing experiences and learning from each other.
I hope you enjoy the forum and what we have to offer and also I hope Siliq is the one to give you long term clearance .... it seems as if you have been through the current list of biologicals so really hope it works for you.
I don’t think the treatment I’m on is a available in the USA yet but it’s something you could look at for the future as if you could get it it could give long lasting clearance as it has for me see Skilarence it’s a similar drug to the one I’m on which is Fumaderm and I’ve had over 6 years clear on it

Good luck and hope to hear more of your experience
Jim

A great way to keep up to date with what’s new in treatments and members experiences is to subscribe to our free monthly newsletter you can do that by clicking Groups and then click join group  Thumb
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#6
Fri-14-09-2018, 12:08 PM
Hello hithere2233  Welcome to Psoriasis Club.

You story just goes to prove how difficult it is to find the right treatment, there is no one suit fits all.

I hope you get a good result from Siliq (aka Kynteum in the EU)

Don't hesitate to start another thread in Prescribed Treatments For Psoriasis about your treatment if you wish, it's a good way of keeping track and your information could help others.

Regards.

Fred.
hithere2233 Offline Author
Newbie


Posts: 3
Threads: 1
Joined: Sep 2018
Gender: Male
Location: San Francisco
Treatment: Siliq
#7
Fri-14-09-2018, 19:00 PM
(Fri-14-09-2018, 07:13 AM)Caroline Wrote: Hi there,

Welcome to Psoriasisclub.

You have had quite a series of treatments, very unfortunate for you that they all stop working. Hope you will do well on Siliq again. Did you ever take a look at alternative treatments ? Like food, etc. ?

Cheers.
Caroline

Yes, I've alternated between different diets, food groups, etc.  Haven't experienced any noticeable differences.  Have not tried a lot of alternative treatments.  But those I have, didn't work for me.
hithere2233 Offline Author
Newbie


Posts: 3
Threads: 1
Joined: Sep 2018
Gender: Male
Location: San Francisco
Treatment: Siliq
#8
Fri-14-09-2018, 19:03 PM
(Fri-14-09-2018, 07:30 AM)Turnedlight Wrote: Hi, nice to meet you  Wave

I notice you say it was suggested to have a break from biologics - was it from a health and safety point of view or the idea they may work better after a break?

Hope you like the forum  Thumb

The break was because the second round of Humira had very little(5%) improvement.  I was otherwise healthy and without side effects.  So we went with Otezla, which is an oral administration(pill).  Won't be doing that again!

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
« Next Oldest | Next Newest »
Thread Closed 


Possibly Related Threads…
Thread Author Replies Views Last Post
  New here Sharonlgass1 6 4,864 Sun-19-02-2023, 21:12 PM
Last Post: D Foster
  New here Wintrman Sheila 23 22,005 Mon-10-05-2021, 22:07 PM
Last Post: mickyfinn007
  New member proudmary1951 proudmary1951 24 22,792 Mon-16-03-2020, 02:03 AM
Last Post: proudmary1951
  New here Hanksmom Hanksmom 9 8,800 Thu-02-01-2020, 19:39 PM
Last Post: KyPrincess
  new member saying hi Bubbles 12 11,175 Wed-29-05-2019, 20:26 PM
Last Post: JohnB



Users browsing this thread:
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode