Cosentyx Not Working!

[Kevinito]

Hi All:

I've been on Cosentyx for about three months now and it is not getting any better. Lesions are all over and more are appearing in inconspicuous locations. Curious if there are best practices concerning administering the shot (i.e. time of day, location, etc.)?

Any help would be appreciated.

Thanks.

Kevin

[Kat]

Hi All:

I've been on Cosentyx for about three months now and it is not getting any better. Lesions are all over and more are appearing in inconspicuous locations. Curious if there are best practices concerning administering the shot (i.e. time of day, location, etc.)?

Any help would be appreciated.

Thanks.

Kevin

I don't know about time of day or location, I've just finished my loading doses but hopefully someone may have some advice for you!

I hate hearing that it's not working for you though. I haven't had much luck with it for my skin either so far. I'm not sure what the timeframe for clearing skin is with Cosentyx. I did find a picture from a fairly reputable site that showed it working at around 6 months. Also showed it working sooner on some people too though. I'm sorry I'm not much help since you're further along on your Cosentyx journey than I am.

[jiml]

Hi Kevin I'm afraid I can't help but can point you at the search facility here .... Search then type in cosentyx and highlight the  button below which says Search titles only then press search and you will get a list if all the threads with cosentyx in the title to look through
Hope that helps

Here's one to start you Cosentyx maybe the maintenance dose is too low

[Fred]

Hello Kevin. There is no best time of the day as long as you are keeping to 4 weeks between shots then it should work. Also location of the shot makes no difference.

However as you have been on it 3 months I'm afraid it's probably not for you and you will need to try another. People are usually pulled off a Bio if there is no improvement after 12 weeks.

I would speak to your dermatologist if I was you and see what else they have for you to try.

[Kevinito]

I appreciate the feedback and help.

Well, that would be the 6th biologic that I have tried to no avail (some I tried for years with no effect). I am also concerned the physicians are misdiagnosing me for psoriasis in the first place and I've been to a full dozen. All the typical treatments do not work at all (creams, lotions, pills, biologics, light, etc.).

Thanks,
Kevin

[Kevinito]

I've also tried alternative treatments (5 years), homeopathic remedies (5 years), heath food (5 years), vegan diet change (2 years), gluten free (2 years), etc. with no results. Why do I need to torment myself any further with expensive shots and tasteless food and no evidence of effective treatment?

[Kat]

Wow Kevin, you've been dealing with a lot.

May I ask why you think you could be misdiagnosed? If it's only due to medicines not working then .. it could be as simply as your body is one that fights off the medicine. I'm not even sure that's worded correctly but I do know that different meds are more effective on some than others. My daughter can take one Tylenol and be out for the night, she's very susceptible to meds. I could take 8 and not be affected (although I don't!)

I don't know what else you might try, that would be a conversation with your doctor, but please don't give up because maybe the next one is the one that works for you. I know it's disappointing for you to not have had results yet after trying so many different things. I certainly wish I had an answer for you.

[Kevinito]

Thanks for the reply. It is mainly due to the way my skin reacts to the medications and the physicians frequently state, "well, I've never seen that before". I also seem to be the only one who gets the very rare side-effect. There was one med that turned all the lesions on my skin into doughnut shapes. Ever heard that one before?

[Kat]

Thanks for the reply. It is mainly due to the way my skin reacts to the medications and the physicians frequently state, "well, I've never seen that before". I also seem to be the only one who gets the very rare side-effect. There was one med that turned all the lesions on my skin into doughnut shapes. Ever heard that one before?

No, I haven't heard of that before. Hmm, interesting although I'm sure you don't find it so interesting! Any chance of trying to see a new doctor for a second (or third, fourth, etc) opinion??

[Fred]

I may be wrong but treating people for psoriasis when it is not psoriasis is not a good thing.

Have you ever had a biopsy done ? That would definitely give you and your doctors an answer. It is not painful and they only need a tiny bit to find out, so maybe ask for a biopsy and get an answer.