Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Introductions v
« Previous 1 2 3 4 5 6 … 31 Next »

Long time psoriasis sufferer

Pages (3): 1 2 3 Next »
Thread Closed 
Threaded Mode
Long time psoriasis sufferer
SnarkyTexan Offline
Member


Posts: 24
Threads: 3
Joined: May 2019
Gender: Female
Location: Temple, TX
Psoriasis Score: 39
PQOLS: 23
Treatment: Taltz
#1
Mon-20-05-2019, 15:50 PM
Hi all,

I have joined this board in hopes of finding some info on the treatments for psoriasis.

I first experienced psoriasis when I was a teen. At the time, I didn't realize what it was. I just itched a lot on my arms and legs and didn't know why. After a change in detergents, it went away. I've had various short episodes since then. Most of the time my flare-ups are triggered by an allergic reaction to detergents or fabric softeners. That alone has limited me to using only All Free & Clear to wash my clothes.  I have a reaction to ALL box soaps and anything scented. Recently, All released their new Free & Clear softener and I was hoping I could use that since I pretty much live off the detergent. That was a big fat NOPE. It resulted in a flare-up that I'm currently dealing with.

How do I know it was psoriasis you ask? Besides a Dr's diagnosis, my mother is a lifetime psoriasis sufferer as well. We have worked through this fight together to find out what works and what doesn't. I also have an aunt and an uncle on my dad's side who has psoriasis but I don't interact with them very much. 

I have had inverse psoriasis most of my life. I live in Texas and the heat (sweating) makes it worse. Sweating, in general, makes it worse. It makes me miserable, unhappy, and in a lot of pain. So I tend to avoid exercise because sweat = pain. When I say I have had a flare up I'm referring to plaque and guttate psoriasis. The inverse is ever-present in my life and quickly rears it's head if I sweat too much. 

With this new and most recent flare-up, I was finally able to get a real dermatology referral. Past dermatology experiences have had me doing creams only. A few times, I had done light therapy. With my current schedule of kids, being a full-time student, and a full-time job, light therapy isn't an option. So, I am now on methotrexate as the "first step" towards biologics. I feel like I am struggling with this medication and so here I am hoping to find support.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Mon-20-05-2019, 16:04 PM
Hello SnarkyTexan  Welcome to Psoriasis Club.

One thing we have loads of apart from all the information is bucket loads of support. You will find a very friendly bunch of people from around the world and if you want to get to know some of our members, I can recommend the [Group Specific] where you will find all sorts of conversation going on.

It's great that you have finally got a dermatologist that is starting to treat you better. Yes they usually start on one of the Oral Treatments For Psoriasis before moving on to Biological Treatments For Psoriasis

Just dive on in and if you get stuck finding your way around just shout out and someone will find you.

Regards.

Fred.
SnarkyTexan Offline Author
Member


Posts: 24
Threads: 3
Joined: May 2019
Gender: Female
Location: Temple, TX
Psoriasis Score: 39
PQOLS: 23
Treatment: Taltz
#3
Mon-20-05-2019, 16:12 PM
Thank you Fred. Y'all are awesome.  Thumb
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#4
Mon-20-05-2019, 16:16 PM
(Mon-20-05-2019, 16:12 PM)SnarkyTexan Wrote: Thank you Fred. Y'all are awesome.  Thumb

We like a happy ship. Smile
Caroline Online
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,593
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#5
Mon-20-05-2019, 16:55 PM
Hi SnarkyTexan,

Welcome to Psoriasisclub from the Netherlands, which you probably don’t know where it is located.. Big Grin

There is a lot around here on the forum.
You are on the standard “start” medication of systemics. Over here we have two sides, the ones who can cope with it and the ones who hate it. I am in the last category as I have used it.

Anyway, lots of things to talk about.

Enjoy yourself over here with us.
Cheers,
Caroline
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#6
Mon-20-05-2019, 17:04 PM
Hi snarky and welcome - methotrexate can be a bit hard to get along with and you can feel tired and washed out but if it works you may be able to reduce the dose to maintain, and at lower doses can be not too bad (well, preferable to the psoriasis.)
Anyway nice to meet you, hope you like it here!
SnarkyTexan Offline Author
Member


Posts: 24
Threads: 3
Joined: May 2019
Gender: Female
Location: Temple, TX
Psoriasis Score: 39
PQOLS: 23
Treatment: Taltz
#7
Mon-20-05-2019, 17:06 PM
(Mon-20-05-2019, 16:55 PM)Caroline Wrote: You are on the standard “start” medication of systemics.  Over here we have two sides, the ones who can cope with it and the ones who hate it. I am in the last category as I have used it.

I was on the "cope with it" team when I started 5 weeks ago. I was excited to finally get somewhere beyond creams! But I am quickly moving over to the "hate it" team. I made a post of my symptoms already in the treatments section. However, my Dr seems to be loathed to take me off the MTX before our follow up in July. She did say she would if it affects my job further. But I don't know how it could get worse than it is now.  Huh  She said it takes a while for improvement but IDK if I can last that long.
SnarkyTexan Offline Author
Member


Posts: 24
Threads: 3
Joined: May 2019
Gender: Female
Location: Temple, TX
Psoriasis Score: 39
PQOLS: 23
Treatment: Taltz
#8
Mon-20-05-2019, 17:07 PM
(Mon-20-05-2019, 17:04 PM)Turnedlight Wrote: Hi snarky and welcome - methotrexate can be a bit hard to get along with and you can feel tired and washed out but if it works you may be able to reduce the dose to maintain, and at lower doses can be not too bad (well, preferable to the psoriasis.)
Anyway nice to meet you, hope you like it here!

Thank you! Love the kitty in your avatar. It looks like my kitty!
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#9
Mon-20-05-2019, 17:20 PM
(Mon-20-05-2019, 17:07 PM)SnarkyTexan Wrote:
(Mon-20-05-2019, 17:04 PM)Turnedlight Wrote: Hi snarky and welcome - methotrexate can be a bit hard to get along with and you can feel tired and washed out but if it works you may be able to reduce the dose to maintain, and at lower doses can be not too bad (well, preferable to the psoriasis.)
Anyway nice to meet you, hope you like it here!

Thank you! Love the kitty in your avatar. It looks like my kitty!

Thanks! he’s called Humbug (like the mint sweet) and is a bit nuts.
Caroline Online
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,593
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#10
Mon-20-05-2019, 17:28 PM
(Mon-20-05-2019, 17:06 PM)SnarkyTexan Wrote:
(Mon-20-05-2019, 16:55 PM)Caroline Wrote: You are on the standard “start” medication of systemics.  Over here we have two sides, the ones who can cope with it and the ones who hate it. I am in the last category as I have used it.

I was on the "cope with it" team when I started 5 weeks ago. I was excited to finally get somewhere beyond creams! But I am quickly moving over to the "hate it" team. I made a post of my symptoms already in the treatments section. However, my Dr seems to be loathed to take me off the MTX before our follow up in July. She did say she would if it affects my job further. But I don't know how it could get worse than it is now.  Huh  She said it takes a while for improvement but IDK if I can last that long.

Long time ago I already wrote my experiences in post MTX. Big Grin
I have gone a totally different way that worked for me.
« Next Oldest | Next Newest »
Pages (3): 1 2 3 Next »
Thread Closed 


Possibly Related Threads…
Thread Author Replies Views Last Post
  Long time sufferer, first time forum poster IAmNotMySkin 7 2,222 Sat-01-02-2025, 01:01 AM
Last Post: Turnedlight
  This forum active? My introduction LONG SquidBro 19 12,740 Sun-13-08-2023, 02:08 AM
Last Post: bav101
  First time having psoriasis, I need someone to tell me how to to cure this odin 7 7,496 Thu-02-08-2018, 11:31 AM
Last Post: KyPrincess
  Hi trying Acitretin for first time Meggy 15 17,510 Tue-24-07-2018, 03:29 AM
Last Post: KyPrincess
  New here. Had this 2 long Just-Chris 10 10,101 Tue-24-07-2018, 03:29 AM
Last Post: KyPrincess



Users browsing this thread:
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode