Fumaderm and itching

[Caroline]

I have had a quick read of the paperwork I was given - need a medical dictionary to de-code half of it LOL Have to have bloods and other tests tomorrow and IF they are ok then I can start using Adalimumab

What is my doctor saying about the protocols that are followed by dermatologists and rheumatologists, seen from the view of our favorite DMF.

Quote:

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The requesting procedure on DMF does not fit well in the common dermatological treatment protocols and costs extra time. Of course this is known to dermatologists that still are not so convinced on DMF. The effect is that routinely much more expensive and riskful medication is prescribed, like the monoclonal antibodies (....MAB). This all is possible because it is part of the protocol.

[translated]

[tanlou]

sorry caroline - but what is that in English - im starting to get to the end of my tether with this - I have had so much done to me - I just don't know how much more I can cope with - I know I wont do anything silly so don't worry about that - in just so fed up with "not being normal" xxx

[jiml]

sorry caroline - but what is that in English - im starting to get to the end of my tether with this - I have had so much done to me - I just don't know how much more I can cope with - I know I wont do anything silly so don't worry about that - in just so fed up with "not being normal" xxx

I think it means that dermatologists aren't convinced about DMF ( fumaderm) so they would rather prescribe biologicals, even though there are more risks involved.
The MAB drugs are the monoclonal antibodies drugs like the one you will be on they all end with MAB
But if fumaderm isn't working for you your dermatologist has to try something else. That is the way I see things and humira could well be the drug to bring your misery to a close.
I know it's getting you down big time,
when are you due to start the humira ?
Oh Tanlou I remember the desperate feelings of wanting to be normal, just hang in there a bit longer, because there is a drug out there that will work on you,
And you are not alone here but among friendly fellow sufferers
I am sorry that the side effects on fumaderm were to bad for you
Keep talking I found that a great comfort to know I wasn't alone

[Fred]

just so fed up with "not being normal" xxx

You are normal. We all are, it's just that some things work for some people and some don't. It's a matter of finding the right thing that will suit you, I was on Humira and it was great but I had a reaction to it and had to stop (that doesn't mean you will have a reaction) and I know of some people who are still getting great results from it.

This post explains about Humira Humira (adalimumab) the whole thread has all the bio treatments so it may be worth reading it all.

And if you're not normal, I don't know what that makes me.

[tanlou]

Firstly let me apologise for my last post - I was feeling very down when I posted it SORRY xxxx and Caroline - thankyou for explaining it to me better than my doctor xxxxx and Fred - cheers - I do know we are all normal - I just don't feel it some times - I know im no oil painting but I used to live in shorts and tee shirt - I just wish I could again - especially with the weather we are having - maybe one day LOL - once again please accept my apology - I think I ranted on here as none of my friends or family suffer with this - and I suppose I knew you would all give positive answers - THANKYOU ALL VERY MUCH XXXXXX

[Fred]

Firstly let me apologise for my last post - I was feeling very down when I posted it SORRY xxxx and Caroline - thankyou for explaining it to me better than my doctor xxxxx and Fred - cheers - I do know we are all normal - I just don't feel it some times - I know im no oil painting but I used to live in shorts and tee shirt - I just wish I could again - especially with the weather we are having - maybe one day LOL - once again please accept my apology - I think I ranted on here as none of my friends or family suffer with this - and I suppose I knew you would all give positive answers - THANKYOU ALL VERY MUCH XXXXXX

Hey you don't need to apologise and you can rant as much as you like, it's people like you that make Psoriasis Club what it is.

[jiml]

I agree with Fred we all have ranted on here it's a great place to let off steam
I'm sure nobody would take offence
It's good you felt comfortable enough here to have a rant. So no need for apologies,
Keep your chin up and keep posting
Jim

[tanlou]

Thankyou Fred and Jiml - P has a lot to answer for

[Fred]

Thankyou Fred and Jiml - P has a lot to answer for

It sure does, but sharing with others who understand goes a long way to helping us all cope with it.

[jiml]

Thankyou Fred and Jiml - P has a lot to answer for

How true it's a bitch of a disease, have you had results yet to know if you can start on the Humira ?