A Hello

[jiml]

Hello all,

Diagnosed in September and treatment was Methotrexate, I did not take this until January this year.. this was just so I could research and get myself in the frame of mind to take this drug, highest dose was 17.5, and I was not going any higher, stopped in mid July to losing hair and frankly it not working. ( personally had a awful time on the drug) Because one has to fit a specific criteria for a biologic ( at my Rheumatologists in Kent) I have now been put on Sulphasalazine, which I have informed the Rheumatologist that this will be started at the end of this month.

My Introduction is now over and tea is much needed , Looking forward to contributing to the discussions on here . Kellie

Hello Kellie,
Thanks for your extensive introduction.

Welcome to the forum. I hope you will have a good time over here. Not only talking about psoriasis, but we also have lots of other subjects in the off-topics, where no-one is really sensible, even not the ones that claim they are.

Good of you to stop with MTX, it makes no sense.
We knew that already, take a look at this post Methotrexate no better than Placebo for Psoriatic Arhtritis which describes that MTX is about as effective as smarties against PsA.

With Fumaderm, or better the working substance Dimethylfumarate, you will have a 70% chance of success, BUT.... in the beginning you will have to live with the side effects that are very innocent, but sometimes a bit difficult to get used to.

Hope to hear more from you.

Caroline

Caroline they have ruled out DMF for Kellie she is waiting to go on sulfasalazine

[Caroline]

Oh yes, I see , I skipped too much sentences during reading hihi. This thread was so quickly emerging.

Probably it is the protocol that they are following.
Hope it works for you Kellie. Anyway you still know that DMF is somewhere around.
Personally I don't understand why they don't go for the most harmless stuff, but I think they don't look far enough ahead, the insurance I mean.

[mataribot]

Hello and welcome to the forum! I have been on sulfasalazine for my PsA. My PsA is primarily axial and the majority of the DRAMDs do not show efficacy with axial symptoms. I'll skip to the end; it helped a bit with back, but my stomach did not survive it. However, my stomach was bad shape due to make doses of NSAIDs.

[Kellie71]

Hello Caroline and Martaribot, and Jim .. Thank you all for making me feel welcome....sorry for not being on sooner, been a week so far of busy busy busy.. then collapsing and trying to rest ( never successful at that ).. pain makes everything so much more difficult.. and so so sloowww.

I know I can be rather descriptive - but hopefully not so it becomes boring

I am going to write a letter to consultant and my GP, because it seems to be more trial and error rather than a plan, and no one has mentioned if I should take folic acid with the Sulphasalazine, or in fact if how many DMARD's are going to be tried. Very eager to hear peoples experiences on the Sulphasalazine, but am planning on going through even more threads thats on here about the drug. ( been through a few already)

[mataribot]

Folic Acid is not necessary with sulfasalazine unless your blood work shows signs of anemia. As for it helping with side effects, it did not for me. You will have blood work done approximately month to check for rare side effects.

[jiml]

Hello Caroline and Martaribot, and Jim .. Thank you all for making me feel welcome....sorry for not being on sooner, been a week so far of busy busy busy.. then collapsing and trying to rest ( never successful at that ).. pain makes everything so much more difficult.. and so so sloowww.

I know I can be rather descriptive - but hopefully not so it becomes boring

I am going to write a letter to consultant and my GP, because it seems to be more trial and error rather than a plan, and no one has mentioned if I should take folic acid with the Sulphasalazine, or in fact if how many DMARD's are going to be tried. Very eager to hear peoples experiences on the Sulphasalazine, but am planning on going through even more threads thats on here about the drug. ( been through a few already)

Nice to see you back, it's good to be busy it tends to take your mind off the discomfort...
As far as being rather descriptive on the contrary it's not boring it makes your posts more interesting ( I tend to run on a bit myself)
I know Paul9 on here started with sulphasalazine but it had a bad effect on him .
I'm sure you will fit in here very nicely and I look forward to following your progress

[Kellie71]

I do try to do as much as possible as and when my body allows. thank you for the post about Folic Acid, I had such a horrible time on Methotrexate it has pretty much spooked me for life

I am hoping that it is less toxic than the methodevil.. and when I take the Sulphasalazine I will do a post diary of the effects or lack thereof .. which will be in the next week I suspect, more pains in various places than last week... this steroid injection hasn't worked quite as well as the previous one.. Thank you for the kind words I suspect this forum will be a constant companion for me.

[Caroline]

Indeed MTX is terrible stuff, it should be forbidden to give it to human beings, or only after the dermatologist takes it first him or herself.

We will wait for your results.

And I can assure you that the forum is a nice companion, certainly after you have found the off topic section when you feel you have approached that point.

[mataribot]

Sulfasalazine is hard on your stomach. If NSAIDs hurt your stomach, then Sulfasalazine might as well. You start off with one tablet for a week your way to four. I couldn't handle more than two tablets.

[Fred]

Indeed MTX is terrible stuff, it should be forbidden to give it to human beings, or only after the dermatologist takes it first him or herself.

Or to terminate a pregnancy.