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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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My journey on furmederm starts

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My journey on furmederm starts
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,211
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#21
Mon-27-10-2014, 13:15 PM
(Mon-27-10-2014, 10:43 AM)Caroline Wrote: Btw the belly is below the stomach, am I right Fred? Big Grin

[fred.]No it's a big thing you can rest you beer on, our do Belly Bumps on small framed people sending them flying across the room.
Big Grin[/fred.]

The Belly is a term for the lump with your belly button, if we say we have belly ache technically we mean stomach ache.

The Stomach is the round sack located inside the belly where we digest our food, before sending it off to our intestines.

The intestines is all the tubing that takes the digested food down to the escape hatch.

We also sometimes use the word Guts to mean the belly, the stomach, or the intestines.

So although Cheryl said Stomach she is using it as a term of feeling uncomfortable in that area, but maybe not specifically the stomach or the belly or the intestines.

It's a British thing, we know what she means. Big Grin

Jim has tried with "Abdominal Cramps" but if one got diarrhoea for example then we would probably say. My Guts hurt, My Belly Hurts, My Stomach Hurts, or We've got the Squits. Big Grin

Hope that helps.

Smile
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#22
Mon-27-10-2014, 16:17 PM
(Mon-27-10-2014, 13:15 PM)Fred Wrote:
(Mon-27-10-2014, 10:43 AM)Caroline Wrote: Btw the belly is below the stomach, am I right Fred? Big Grin

[fred.]No it's a big thing you can rest you beer on, our do Belly Bumps on small framed people sending them flying across the room.
Big Grin[/fred.]

The Belly is a term for the lump with your belly button, if we say we have belly ache technically we mean stomach ache.

The Stomach is the round sack located inside the belly where we digest our food, before sending it off to our intestines.

The intestines is all the tubing that takes the digested food down to the escape hatch.

We also sometimes use the word Guts to mean the belly, the stomach, or the intestines.

So although Cheryl said Stomach she is using it as a term of feeling uncomfortable in that area, but maybe not specifically the stomach or the belly or the intestines.

It's a British thing, we know what she means. Big Grin

Jim has tried with "Abdominal Cramps" but if one got diarrhoea for example then we would probably say. My Guts hurt, My Belly Hurts, My Stomach Hurts, or We've got the Squits. Big Grin

Hope that helps.

Smile

It helps a little yes.
But for me there are only two things. The stomach, where food gets mixed to get it ready for digesting and the intestines, where the food is really digested and where the necessary energy, vitamines, and other stuff, is transferred to our body.
I mean the last part. That is the part where DMF can be a bit inconvenient.
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Cheryl75 Offline Author
Member


Posts: 31
Threads: 2
Joined: Sep 2014
Gender: Female
Location: England
Treatment: Fumaderm
#23
Mon-27-10-2014, 19:03 PM
So, the saga continues....

Went to see the doctor today. Waited over an hour to see him, to be confronted with a different doctor. To say I wasn't happy was an understatement. She, the doctor there, apologised for the delay and the fact She wasn't who I was expecting to see. She asked me if I had had blood tests taken to which I said no, she said I should have had baseline bloods taken at the start of treatment, to which I replied the whole process had been a shambles and I was surprised that she even knew anything about me.

Long story, very short, I have another appointment in 4 weeks time....this time I made sure they booked it before I left, and I have to have my baseline bloods taken before this appointment.

What a nightmare this whole situation has been. NHS, I know it's free treatment, but really, they need to get their act together and sort out patient care!

Day 6, and after loads of stress today, I wouldn't be surprised if my psoriasis flared up!

Rant over......Angry
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#24
Mon-27-10-2014, 20:11 PM
(Mon-27-10-2014, 19:03 PM)Cheryl75 Wrote: So, the saga continues....

Went to see the doctor today. Waited over an hour to see him, to be confronted with a different doctor. To say I wasn't happy was an understatement. She, the doctor there, apologised for the delay and the fact She wasn't who I was expecting to see. She asked me if I had had blood tests taken to which I said no, she said I should have had baseline bloods taken at the start of treatment, to which I replied the whole process had been a shambles and I was surprised that she even knew anything about me.

Long story, very short, I have another appointment in 4 weeks time....this time I made sure they booked it before I left, and I have to have my baseline bloods taken before this appointment.

What a nightmare this whole situation has been. NHS, I know it's free treatment, but really, they need to get their act together and sort out patient care!

Day 6, and after loads of stress today, I wouldn't be surprised if my psoriasis flared up!

Rant over......Angry

Oh Cheryl just let it go don't be stressed about it at least you have the tablets, but what a chaotic system as you say not the best result for you. But you will know in future that you need your bloods done every four weeks. It would have been useful to know what the levels were at the outset ........... But I recon it's too late now to worry about it whats done is done ...
I find it better to be ahead of them .....and after a while you will know what's required.... And during the consultation ask for blood forms and prescriptions ask what previous bloods were so you, as well as them can keep an eye on them...
Oh well in another four weeks you may well begin to see changes hopefully.....
Good luck
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#25
Mon-27-10-2014, 21:16 PM
(Mon-27-10-2014, 20:11 PM)jiml Wrote:
(Mon-27-10-2014, 19:03 PM)Cheryl75 Wrote: So, the saga continues....

Went to see the doctor today. Waited over an hour to see him, to be confronted with a different doctor. To say I wasn't happy was an understatement. She, the doctor there, apologised for the delay and the fact She wasn't who I was expecting to see. She asked me if I had had blood tests taken to which I said no, she said I should have had baseline bloods taken at the start of treatment, to which I replied the whole process had been a shambles and I was surprised that she even knew anything about me.

Long story, very short, I have another appointment in 4 weeks time....this time I made sure they booked it before I left, and I have to have my baseline bloods taken before this appointment.

What a nightmare this whole situation has been. NHS, I know it's free treatment, but really, they need to get their act together and sort out patient care!

Day 6, and after loads of stress today, I wouldn't be surprised if my psoriasis flared up!

Rant over......Angry

Oh Cheryl just let it go don't be stressed about it at least you have the tablets, but what a chaotic system as you say not the best result for you. But you will know in future that you need your bloods done every four weeks. It would have been useful to know what the levels were at the outset ........... But I recon it's too late now to worry about it whats done is done ...
I find it better to be ahead of them .....and after a while you will know what's required.... And during the consultation ask for blood forms and prescriptions ask what previous bloods were so you, as well as them can keep an eye on them...
Oh well in another four weeks you may well begin to see changes hopefully.....
Good luck

Oh, yes, and ask for the results. You have to have a copy for your own administration. Can't leave it in their hands.
Having it yourself makes it possible to make a analysis of eventual changes.
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,211
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#26
Tue-28-10-2014, 12:12 PM
(Mon-27-10-2014, 21:16 PM)Caroline Wrote: Oh, yes, and ask for the results. You have to have a copy for your own administration. Can't leave it in their hands.
Having it yourself makes it possible to make a analysis of eventual changes.

I agree, I had forgotten the old ways of the NHS Wall

Here we get our own copy of blood results usually next day by post, I also have a standing order for the Nurse to come and take bloods every two months.

It's not just blood tests, they class all test results x-rays, scans, etc as your property and you keep them. It does mean you build up a collection, but you have them in your possession and the doctor treating you will also have a copy.

Plus your GP is sent a letter to keep him informed of what is going on.
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Cheryl75 Offline Author
Member


Posts: 31
Threads: 2
Joined: Sep 2014
Gender: Female
Location: England
Treatment: Fumaderm
#27
Tue-28-10-2014, 19:29 PM
Thanks guys for all the comments.Smile

Day 7 and not much to report again. I have now started taking the tablet with my food and that seems to have made a difference. I start with 2 tablets tomorrow so will keep you updated on any symptoms as and when they happen.

Thumb
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#28
Tue-28-10-2014, 19:32 PM
Thanks Thumb
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Cheryl75 Offline Author
Member


Posts: 31
Threads: 2
Joined: Sep 2014
Gender: Female
Location: England
Treatment: Fumaderm
#29
Wed-29-10-2014, 18:56 PM
Day 8

Today started well, awake early with stomach ache and flushy face again. Time for 2 tablets today. I made sure and had breakfast and took it while eating. Probably about 2 hours later the flushing started with a vengeance! It's good to know that this is a side effect or I might have had a worse panic attack that what occurred! Flushing went away though and have just taken tablet 2 with my dinner, here's waiting for the effects.
Confused
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#30
Wed-29-10-2014, 19:10 PM
(Wed-29-10-2014, 18:56 PM)Cheryl75 Wrote: Day 8

Today started well, awake early with stomach ache and flushy face again. Time for 2 tablets today. I made sure and had breakfast and took it while eating. Probably about 2 hours later the flushing started with a vengeance! It's good to know that this is a side effect or I might have had a worse panic attack that what occurred! Flushing went away though and have just taken tablet 2 with my dinner, here's waiting for the effects.
Confused

Big Grin yes it's nice to know what to expect although it still comes as a shock when the effects start...
I hope you can tollerate them..... They will get easier eating and plenty of fluid will get them through faster
Good luck again...........
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