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Psoriasis Club › HealthHealth Boards › Introductions v
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Hello from Fingers

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Hello from Fingers
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#11
Sat-22-08-2015, 14:20 PM
(Sat-22-08-2015, 13:30 PM)fingers Wrote:
(Sat-22-08-2015, 13:24 PM)Caroline Wrote:
(Sat-22-08-2015, 13:13 PM)fingers Wrote:
(Sat-22-08-2015, 11:22 AM)jiml Wrote:
(Sat-22-08-2015, 10:52 AM)fingers Wrote: Thank you all for the nice welcome!!  Smile 
I have read some of the acitretin threads and must say i feel a bit better about it!!....google can be a bit scary! Lol. 
@ Jim!...haha..no im not a safe cracker!!..i just apparently have large fingers!!!!!!!
I was pretty clear on methotrexate but when they lowered me to a maintainance dose it came back and even upping it again never helped so I was put on cyclosporin which worked great and fast!!....but my hospital only puts people on it for a year so I had to stop!...it has been a year since I took anything but I am pretty bad at the moment so I'm hoping the Acitretin will work!!!

Good luck with that Fingers I hope it gives you clearance if you have problems with it mention Fumaderm that I am on to your dermatologist .... It's a great drug and has had me clear and virtually side effect free for 4 years with just  the odd blip  Thumb

Thanks Jim!!....i think if the acitretin fais the next step will be the Biological drugs!!!!....but they said i have to of failed on 3 conventional drug treatments first.............all down to the  expence i guess! Confused

Well Fumaderm, or DMF, is cheaper than biologicals and if it works for you than it can work for a long time without problems.

Is Fumaderm available in the Uk?  i will definately ask about it!!!!!

Yes it is available in the UK.Jim can tell you more.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#12
Sat-22-08-2015, 14:22 PM (This post was last modified: Sat-22-08-2015, 14:24 PM by jiml.)
(Sat-22-08-2015, 13:30 PM)fingers Wrote:
(Sat-22-08-2015, 13:24 PM)Caroline Wrote:
(Sat-22-08-2015, 13:13 PM)fingers Wrote:
(Sat-22-08-2015, 11:22 AM)jiml Wrote:
(Sat-22-08-2015, 10:52 AM)fingers Wrote: Thank you all for the nice welcome!!  Smile 
I have read some of the acitretin threads and must say i feel a bit better about it!!....google can be a bit scary! Lol. 
@ Jim!...haha..no im not a safe cracker!!..i just apparently have large fingers!!!!!!!
I was pretty clear on methotrexate but when they lowered me to a maintainance dose it came back and even upping it again never helped so I was put on cyclosporin which worked great and fast!!....but my hospital only puts people on it for a year so I had to stop!...it has been a year since I took anything but I am pretty bad at the moment so I'm hoping the Acitretin will work!!!

Good luck with that Fingers I hope it gives you clearance if you have problems with it mention Fumaderm that I am on to your dermatologist .... It's a great drug and has had me clear and virtually side effect free for 4 years with just  the odd blip  Thumb

Thanks Jim!!....i think if the acitretin fais the next step will be the Biological drugs!!!!....but they said i have to of failed on 3 conventional drug treatments first.............all down to the  expence i guess! Confused

Well Fumaderm, or DMF, is cheaper than biologicals and if it works for you than it can work for a long time without problems.

Is Fumaderm available in the Uk?  i will definately ask about it!!!!!

Yes it is available here in the UK but has to be prescribed by your dermatologist if you look through here there are lots of threads about fumaderm
I have been clear on it for four years and if, and  I doubt Acetretin will fail but if it does it's well worth pushing for fumaderm it's been in use in Germany for over 30 years with great success ... It does have to be monitored as most of the treatments do and adjust doses according to blood results.. But You must cross that bridge when you come to it
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#13
Sat-22-08-2015, 14:26 PM (This post was last modified: Sat-22-08-2015, 15:22 PM by Grizzly Bear. Edited 1 time in total.)
Fingers to the loony bin.

99.9 % of people on here are totally in sane.

I'm the only one on here with a brain cell................(the others have more than me)

'Fingers' crossed that you stay on here & enjoy yourself mate.

Watch out for nursey on the wards in here !
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#14
Sat-22-08-2015, 14:58 PM
(Sat-22-08-2015, 14:26 PM)Grizzly Bear Wrote: [Image: m1277.gif] Fingers to the loony bin.

99.9 % of people on here are totally in sane.

I'm the only one on here with a brain cell................(the others have than me)

'Fingers' crossed that you stay on here & enjoy yourself mate.

Watch out for nursey on the wards in here !

[Image: p12004.gif]

Grizzly !!
Time for your next shot  Whistle


[Image: 11354529226_818c2445c8_o.png]
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#15
Sat-22-08-2015, 15:21 PM
(Sat-22-08-2015, 14:58 PM)Caroline Wrote: Grizzly !!
Time for your next shot  Whistle


[Image: 11354529226_818c2445c8_o.png]


Yes dear
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#16
Sat-22-08-2015, 15:57 PM
Hello Fingers  Welcome to Psoriasis Club.

Please do start a thread of your own in Prescribed Treatments For Psoriasis about your journey on Acitretin if you wish, it's a handy way of monitoring your progress and your input could help others.

By the way as you have probably already found out by the other posts on this thread I'm the sensible one around here.

Regards.

Fred.
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,287
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#17
Sat-22-08-2015, 17:10 PM (This post was last modified: Sat-22-08-2015, 17:10 PM by D Foster.)
Welcome fingers to what is a really great site, if you can't find an answer to your question about P on here there is not one, everyone has P and/or PsA as well and they can speak from experience not theory.  Enjoy yourself as the inmates for the majority only are barmy for some of the time apart from several who I will not mention who are barmy all the time and not sensible like what I am.
I was on MTX for 9 years in total and had to give up after increasing side effects but when you mentioned Cyclosporine it brought back nightmares as for me it was horrendous which just shows that everyone is different. I am on Stelara now and for me it has been fantastic with no side effects to speak of and 99% clearance which when I was on MTX 80% was the best I got.
All the best fingers I look forward to hearing how you are getting on.
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#18
Thu-27-08-2015, 18:53 PM
Welcome Fingers!

I'm one of the people here who was on Acitretin and it worked well for me. I agree, searching for any drug on the internet is a bit scary!

This is a great place for asking questions and finding info on treatments, plus it's a nice group of people and Fred does an excellent job keeping the spammers away.
fingers Offline Author
Member


Posts: 58
Threads: 4
Joined: Aug 2015
Gender: Male
Location: UK
Psoriasis Score: 30
Treatment: Otezla!
#19
Thu-27-08-2015, 19:35 PM
(Thu-27-08-2015, 18:53 PM)Kat Wrote: Welcome Fingers!

I'm one of the people here who was on Acitretin and it worked well for me.  I agree, searching for any drug on the internet is a bit scary!  

This is a great place for asking questions and finding info on treatments, plus it's a nice group of people and Fred does an excellent job keeping the spammers away.

Thanks Kat!!  I have started a thread about my Acitretin journey!!... very early days yet!!....9!!...I will post another picture in a few weeks !!...hopefully there will be a change!!...but so far I haven't had a single headache or dry mouth!!!!!..... long may it last!! :-)
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,287
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#20
Thu-27-08-2015, 21:57 PM
(Thu-27-08-2015, 19:35 PM)fingers Wrote:
(Thu-27-08-2015, 18:53 PM)Kat Wrote: Welcome Fingers!

I'm one of the people here who was on Acitretin and it worked well for me.  I agree, searching for any drug on the internet is a bit scary!  

This is a great place for asking questions and finding info on treatments, plus it's a nice group of people and Fred does an excellent job keeping the spammers away.

Thanks Kat!!  I have started a thread about my Acitretin journey!!... very early days yet!!....9!!...I will post another picture in a few weeks !!...hopefully there will be a change!!...but so far I haven't had a single headache or dry mouth!!!!!..... long may it last!! :-)

I have just realised what the Acitretin is, make sure that you have all your nails cut and manicured that was the drug that caused me ingrowing toe nails and I had to have my two big toe nails off.
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