Question about fumaderm

[jiml]

Here's another to read but it tells all about Fumaderm but I can assure you if you can get it and it's not too high a price to pay and you get through the initial side effects you should end up with a clear skin as I have had for getting on for four  and a half years I'm guessing
And practically no side effects but you must be monitored
Fumaderm leaflet

You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine  which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly

Aaaaaaaaaah I see I was assuming you had just started on Fumaderm ... So I don't have to sell you the good points you already know them
I could not get on with methotrexate it was a good drug for clearing but made me feel so ill I had to stop .

My dermatologist told me some time ago that Fumaderm were about £2 a tablet on maximum dose that's around £180 a month .... That's a lot to find each and every month

So have you been getting your Fumaderm in Guernsey up till now?
I don't know the Irish system and how long before you can get to see a dermatologist publicly, hopefully one of our Irish members will know the answer  

Yes, its 7.80 per item. I also get my moisturiser double base as a perscription. It's so much cheaper than at home. I'm hoping my dermatoligist can send a fax back to my old dermatoligist stating that i need to be monitered ect. I had different dermatoligits now that i think of it. I once had an acute attack and went to a and e so that i could get back into the system. It was a horrible time. I'm in my early 20's so it's not easy. It looks like ill be using the drug payment card 144 a month

It's not cheap but I would try to reduce your dose I'm on 4 tablets a day and keep getting a prescription for six a day or is that immoral     then you can have a couple of free months a year

Now you have more than 10 posts you can read the journals here
[Group Specific]

[jiml]

Here's another to read but it tells all about Fumaderm but I can assure you if you can get it and it's not too high a price to pay and you get through the initial side effects you should end up with a clear skin as I have had for getting on for four  and a half years I'm guessing
And practically no side effects but you must be monitored
Fumaderm leaflet

You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine  which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly

Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?

Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......

(A) I don't know if you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it

(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended  

[braye lodge]

Here's another to read but it tells all about Fumaderm but I can assure you if you can get it and it's not too high a price to pay and you get through the initial side effects you should end up with a clear skin as I have had for getting on for four  and a half years I'm guessing
And practically no side effects but you must be monitored
Fumaderm leaflet

You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine  which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly

Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?

Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......

(A) I don't know if  you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it

(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended  

Maybe sounds too good to be true 

[jiml]

Here's another to read but it tells all about Fumaderm but I can assure you if you can get it and it's not too high a price to pay and you get through the initial side effects you should end up with a clear skin as I have had for getting on for four  and a half years I'm guessing
And practically no side effects but you must be monitored
Fumaderm leaflet

You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine  which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly

Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?

Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......

(A) I don't know if  you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it

(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended  

Maybe sounds too good to be true 

Oooh Braye it's true if you mean Bills method... He's in Australia and he doesn't have access to Fumaderm or any DMF tablets..... So he's a do it yourselfer. I have no doubt he will leave you a message later

[braye lodge]

You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine  which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly

Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?

Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......

(A) I don't know if  you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it

(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended  

Maybe sounds too good to be true 

Oooh Braye it's true if you mean Bills method... He's in Australia and he doesn't have access to Fumaderm or any DMF tablets..... So he's a do it yourselfer. I have no doubt he will leave you a message later  

Sounds intriguing

[jiml]

Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?

Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......

(A) I don't know if  you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it

(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended  

Maybe sounds too good to be true 

Oooh Braye it's true if you mean Bills method... He's in Australia and he doesn't have access to Fumaderm or any DMF tablets..... So he's a do it yourselfer. I have no doubt he will leave you a message later  

Sounds intriguing

Read here
Bill's pure dimethylfumarate thread

[Caroline]

Here's another to read but it tells all about Fumaderm but I can assure you if you can get it and it's not too high a price to pay and you get through the initial side effects you should end up with a clear skin as I have had for getting on for four  and a half years I'm guessing
And practically no side effects but you must be monitored
Fumaderm leaflet

You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine  which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly

Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?

Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......

(A) I don't know if  you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it

Hi Braye,

Welcome to the forum.  Hope you will have a good time over here with us.
Up to now I have followed the discussion as Jim and Fred did a very good job and I did not have to step in yet.
Now Jim mentioned my name, so I am really triggered.
I wrote a threat about DMF which is over here Dimethylfumarates and Psoriasis, so there you can read why it works for you and I am glad it does.
The working ingredient of Fumaderm is the DMF. The other substances in it do nothing against your psoriasis. The medication I take, Psorinovo is plain DMF, but contained in a package that protects your stomach and is released slowly in your intestines, and the last thing is very important, as it removes lots of the side effects.
It can be ordered from the Netherlands, that is the only place where it is produced. I think, but am not sure as I normally don't see the invoice as this goes to my insurance, I pay about €400-€500 for 600 pills.  
E.g. Joana from Poland orders it in the Netherlands, that seems to work without complications.

(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended  

Bill is a special case. He is considered as "our Professor" over here at the forum. His starting point is pure DMF, which is very cheap available on the world market.
I think that what he does is doable for any of us, as long as you are secure enough for the detailed steps he takes.
What we certainly can learn from him is the intermittent use of the DMF. So e.g. take the medication during the week and have a rest in the weekend. It has several advantages. Your "system" does not get used to the DMF which is a risk as than it may get less effective and it is better for your lymphocytes, who have the time to recover in the weekend.
keeping an eye on your blood counts remains very important !!!!!

I read you are in your early 20's. You are even younger than me!    Then DMF is a good way to go, here in NL I know more who started very young on DMF and still are going strong. It is a medication with minor problems. Way way better than MTX and cyclosporine.

Cheers,
Caroline

[braye lodge]

Here's another to read but it tells all about Fumaderm but I can assure you if you can get it and it's not too high a price to pay and you get through the initial side effects you should end up with a clear skin as I have had for getting on for four  and a half years I'm guessing
And practically no side effects but you must be monitored
Fumaderm leaflet

You see ive been living in guernsey for 2 years. When i first came i had to go on a waiting list for the dermatolgist. I had previously been on methotrexate and it didnt agree with me. I then went onto cyclosporine  which also didnt agree with me. Now on fumaderm over 6months. Its the best its ever been in 12 years.My quailty of life has improved dramatically, but now im worried about the cost of it in ireland. Im also worried that ill have to wait a long time until i see a dermatoligist publicly

Also from reading another post ive discovered dmf, is this the same as fumaderm. I ask this because, someone has said it was cheaper?

Yes psorinovo just DMF and is cheaper than Fumaderm as is raw DMF....but .......

(A) I don't know if  you can get psorinovo in Ireland although Caroline will tell you how much it costs and if you can purchase it

Hi Braye,

Welcome to the forum.  Hope you will have a good time over here with us.
Up to now I have followed the discussion as Jim and Fred did a very good job and I did not have to step in yet.
Now Jim mentioned my name, so I am really triggered.
I wrote a threat about DMF which is over here Dimethylfumarates and Psoriasis, so there you can read why it works for you and I am glad it does.
The working ingredient of Fumaderm is the DMF. The other substances in it do nothing against your psoriasis. The medication I take, Psorinovo is plain DMF, but contained in a package that protects your stomach and is released slowly in your intestines, and the last thing is very important, as it removes lots of the side effects.
It can be ordered from the Netherlands, that is the only place where it is produced. I think, but am not sure as I normally don't see the invoice as this goes to my insurance, I pay about €400-€500 for 600 pills.  
E.g. Joana from Poland orders it in the Netherlands, that seems to work without complications.

(B) Bills method is fascinating watching and learning from him how effective it is and a fraction of the cost of tablets ... And not to be recommended  

Bill is a special case. He is considered as "our Professor" over here at the forum. His starting point is pure DMF, which is very cheap available on the world market.
I think that what he does is doable for any of us, as long as you are secure enough for the detailed steps he takes.
What we certainly can learn from him is the intermittent use of the DMF. So e.g. take the medication during the week and have a rest in the weekend. It has several advantages. Your "system" does not get used to the DMF which is a risk as than it may get less effective and it is better for your lymphocytes, who have the time to recover in the weekend.
keeping an eye on your blood counts remains very important !!!!!

I read you are in your early 20's. You are even younger than me!    Then DMF is a good way to go, here in NL I know more who started very young on DMF and still are going strong. It is a medication with minor problems. Way way better than MTX and cyclosporine.

Cheers,
Caroline

Thanks caroline, yeah glad to find something thats worked so far. 

Okay so dmf is an ingrediant in fumaderm and psorinovo has less side effects ? 

So can fumaderm become less effective over time?   

I Didn't think you could order from netherlands. Thought it was up to the pharmacy to make thr order?

[jiml]

Yes Braye Fumaderm main ingredient is Dimethyl fumerate, DMF 120mg. with additives ....(ethyl hydrogen fumerate, calcium salt). And (ethyl hydrogen fumerate, magnesium salt) and (ethyl hydrogen fumerate, zinc salt) but the active ingredient is the Dimethyl fumerate

I believe Psorinovo is pure Dimethyl fumerate without the additives

Can it become less sffective over time it's difficult to say, but I have been on it a long time now and my dose is the same as yours .....so there is room to increase it should it become less effective

But we are all different and nobody can say for sure how long a treatment will still work for you.... This is one reason I have been experimenting with taking it 5 days a week and letting my body manage at weekends without DMF .... In the hope that I can stay on the drug longer, as you know I'm not a young man and have struggled all my life with psoriasis, and this is the longest a treatment has worked for me, I've had to adjust the dose when my lymphocyte levels dropped, but they bounced back up and have been fine since ( do have a monthly blood test ) as you don't want a really low lymphocyte count.....

I would hope this is my drug for life, I'm enjoying life more than I ever did before, I hope it's as kind to you as it has been to me, and you get many years flake free with it......

I'm afraid it doesn't seem to matter which drug you are on there's always a chance it will stop working for you

Caroline will hopefully know how people get the Psorinovo  from Holland

[braye lodge]

Yes Braye Fumaderm main ingredient is Dimethyl fumerate, DMF 120mg. with additives ....(ethyl hydrogen fumerate, calcium salt). And (ethyl hydrogen fumerate, magnesium salt) and (ethyl hydrogen fumerate, zinc salt) but the active ingredient is the Dimethyl fumerate

I believe Psorinovo is pure Dimethyl fumerate without the additives

Can it become less sffective over time it's difficult to say, but I have been on it a long time now and my dose is the same as yours .....so there is room to increase it should it become less effective

But we are all different and nobody can say for sure how long a treatment will still work for you.... This is one reason I have been experimenting with taking it 5 days a week and letting my body manage at weekends without DMF .... In the hope that I can stay on the drug longer, as you know I'm not a young man and have struggled all my life with psoriasis, and this is the longest a treatment has worked for me, I've had to adjust the dose when my lymphocyte levels dropped, but they bounced back up and have been fine since ( do have a monthly blood test ) as you don't want a really low lymphocyte count.....

I would hope this is my drug for life, I'm enjoying life more than I ever did before, I hope it's as kind to you as it has been to me, and you get many years flake free with it......

I'm afraid it doesn't seem to matter which drug you are on there's always a chance it will stop working for you  

Caroline will hopefully know how people get the Psorinovo  from Holland

I'd prefere not take additives but not much i can do about that. Sounds like the fumaderm is having positive effects for both of us. 

My sister is on mtx which worries me, especially when she's so young. She's recently had problems with her liver and they just reduce the dose. Trying to inform her about the fumaderm. I haven't seen her in a while so maybe once she sees my improvement, she may convert. 

Psorinovo is additive free?