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[wangfordboy]

Hi To All.

I have had this terrible disease for over 25yrs,and in that time have had all the treatments available. No matter what i take the psorasis always comes back,and at the moment i am at breaking point as my plaque psorasis it is worse than ever I am presently on my 3rd week of fumaderm ,and feel if i have permanent sunburn and prickly heat,has anyone else had these symptons ?

[Fred]

Hello wangforboy to Psoriasis Club.

I'm sure our resident Norfolk Boy (Jim) and the DMF gang will have some answers about fumaderm.

When you say you have tried all treatments, have you tried the Bio's especially Stelara. ?

But don't let it get you down, we know how you feel and you wil always find support here so just dive on in.

Regards.

Fred.

[jiml]

Hi To All.

I have had this terrible disease for over 25yrs,and in that time have had all the treatments available. No matter what i take the psorasis always comes back,and at the moment i am at breaking point as my plaque psorasis it is worse than ever I am presently on my 3rd week of fumaderm ,and feel if i have permanent sunburn and prickly heat,has anyone else had these symptons ?

Hi Wangfordboy...nice to have you on board so    to the club ....it's a while since I was at Wangford being a Norfolk boy    but I do pass through there  sometimes
Make yourself at home here, we are a very friendly group and are happy to receive and offer advice to each other......

I'm also a Fumaderm user and I have not experienced those side effects I do get hot flushes and they were worse at the start of treatment
If you are just at the third week that means you should still be on Fumaderm initial and three white tablets a day  but if you are finding this to much as your body is resisting it go back a step and slow down the increasing dose for a week..
Are you taking your tablets with meal?
Are you taking plenty of fluid with them I usually have a pint of something with mine  
You could try eating some yogurt with your meal
Never take on an empty stomach
But if the prickly heat persists check with your dermatologist
Click the link to read the leaflet
Fumaderm leaflet has a list of side effects

I'm sure there will be others with helpful ideas, but if you can bear the side effects they will get less and then you have a high chance of getting clear....as I have been for over 4 years now

Jim  

[Fiftyplus]

Hello Wang,

Just wanted to say hi and welcome to the P club.

There are lots of great people on here...with lots of good advice.

[Caroline]

Hi To All.

I have had this terrible disease for over 25yrs,and in that time have had all the treatments available. No matter what i take the psorasis always comes back,and at the moment i am at breaking point as my plaque psorasis it is worse than ever I am presently on my 3rd week of fumaderm ,and feel if i have permanent sunburn and prickly heat,has anyone else had these symptons ?

Hello Wang,

Welcome to Psoriasisclub.

Permanent sunburn?
Are you red all over?
And indeed it feels like prickly heat. That is a characteristic of Fumaderm Dimethylfumarate, which is the working substance.

But..... It should only last for 20-30 minutes max, not longer, then you should feel normal again. If you have it permanently then you indeed better reduce the dose. It may be that you are very sensitive for it and need a slower build up.
The disadvantage of DMF is that it is a slow working approach. You need to be patient.

Good luck, and we are here if you have more questions.
Caroline

[Kat]

Welcome Wangfordboy!

I've never felt like sunburn where my psoriasis has been, although it certainly in some places could look a bit like it. Mostly I felt itchy where the patches were at but different types of psoriasis plus different people can make us feel different ways for sure! I hope the Fumaderm helps soon and you get relief.

[JohnB]

Welcome to the Nuthouse

This is THE place to come if you need a straight answer. We have a wide range of inmates with varying forms and severities of this nasty disease.
Rest assured you will never be short of information. If one of us cant reply from experience someone will be able to  point you in the right direction.

Take your time, look around and should you wish get involved in the Off Topic area

[wangfordboy]

I would like to thank you all for your welcome to the club,i should have been more precise and said that i am now approaching my 4th week on the blue full strength fumaderm tablets.

Over the years i have had the light treatment on 4 occasions ,and as im sure you all know the effect is great at first but eventually the psorasis soon comes back..methatrexate was a disaster,but cyclosporine cleared me completely on a full dose of 300mg daily,unfortunately i ran out of tablets ,and could not get to see my dermatologist until the psorasis had returned after 2 mths i was and still am livid as that was the first total clearance of the disease ive had in years.now im worse than ever.,and as we all know keeping positive is one of the hardest things to do with this disease.

[jiml]

I would like to thank you all for your welcome to the club,i should have been more precise and said that i am now approaching my 4th week on the blue full strength fumaderm tablets.

Over the years i have had the light treatment on 4 occasions ,and as im sure you all know the effect is great at first but eventually the psorasis soon comes back..methatrexate was a disaster,but cyclosporine cleared me completely on a full dose of 300mg daily,unfortunately i ran out of tablets ,and could not get to see my dermatologist until the psorasis had returned after 2 mths i was and still am livid as that was the first total clearance of the disease ive had in years.now im worse than ever.,and as we all know keeping positive is one of the hardest things to do with this disease.

Yes it's difficult staying positive when nothing seems to be working, Fumaderm is a great drug if it works for you and it does for over 70% of people that can tolerate the side effects, but four weeks on one tablet a day is unlikely to have much affect if any on the disease, you must get the dermatologist to follow the instructions and increase in line with the recommendations, unless there is a problem with your bloods or liver and kidney function
You will have to up the dose to get any clearance and when you do get it you can then reduce the dose

But in the meantime you do need to be building the drug up in your system and as I have said one tablet is not doing it

Fumaderm if it does work for you is less toxic than cyclosporine, so stick with it if you can
Best of luck ( Norfolk Boy Jim )  

[wangfordboy]

sorry jim i am on the prescribed dosage which increases weekly,and from tomorrow will be on 4 tablets daily