Hello from wooleyb

[Wooley]

 Hello everyone......

Thanks for allowing me onto the group, I stumbled across it last night.......it is great to see that there are so many people on here willing to help/listen and share experiences....

So April this year, completely out of the blue, I started to get pustules on my hands and feet.  I was originally misdiagnosed with pompholyx , was given a steroid cream but it just got worse, went back to the doctors who suspected palmoplantar pustulosis psoriasis  (PPP).  Following consultation with Derm Consultant I was indeed diagnosed with PPP.  I have never had any experience with psoriasis, no family members have ever suffered so feel a bit like i have been hit by a bus to be honest!!  

I think the main thing for me is that i feel totally out of control with all the medications/lotions/potions etc, I understand it is a long process trying to find something that works for you personally but I just feel that everything is out of control......  seems every time i go to the hospital i am told to stop taking this and start taking that.  GP prescribed Calcitriol (didn't see any improvement using that) a Coal Tar lotion and Epaderm (which is disgusting), then a month later the Consultant prescribed Lotriderm and Protopic and Dermol 500 lotion then i am not kidding you 10 days later (last Thursday) i had an appointment with the nurse and she tells me to stop taking Lotriderm and Protopic and instead take ClobaDerm and another Coal Tar treatment which is much stronger.......Not only has this all been confusing, but at £8.60 an item would have cost me around £120 so far for all this medication, luckily i got a pre-payment prescription card very early on....but now I also have a bathroom that resembles a pharmacy

So since i started taking ClobaDerm my feet have become unbearable and feels like i am walking on broken glass and the upshot of this is i have stopped using everything prescribed and am using a normal everyday moisturiser....the next step for me is PUVA which i start next week so fingers crossed that helps the condition somewhat.....Has anyone else had this treatment?

Will definitely be looking for advice on natural lotions and potions available or what helps other people on the group.....

Apologies for the huge ramble but boy does it feels good to blurt all this out.....so thanks for reading