Health Boards
Sat-08-02-2014, 17:39 PM
Hello there,
Before I start, I'd like to express my sheer relief at the stories I've been reading on here of fellow psoriasis sufferers and their experiences; not that I feel good about other people suffering, just that it is *so* good not to feel so isolated with this very lonely condition.
I've had psoriasis from a very young age, but nothing more dramatic than a scaly scalp and a bit of itching behind the ears.
Five years ago it flared up and I had it all over my scalp and on my arms and body ... again, it wasn't particularly dramatic - just redness and itching - and coal tar shampoo plus some gooey medicated oinkment (the name of which escapes me) sorted it out.
This time, it has kindly enveloped my whole body (bar my face, thankfully) in painful redness and plaques, and has decided for extra measure to infect my right shin. It has been dramatic and life-changing, and has greatly reduced my quality of life. I can get no relief from the pain and everything I do causes pain, ie standing up, sitting down, walking, going to the Ladies, getting dressed, getting undressed and so on. I am here because I have reached a level of desperation ... not being one to generally feel sorry for myself, I have twice in a week burst into tears from the unremitting pain and the futility of the several medications I've tried, none of which have worked.
I have an appointment with a dermatologist next Friday, which I am hoping (praying!) will help ... so far I have seen 6 doctors and am on my fourth dose of antibiotics since 3 December 2013. The steroid creams are too painful to use, and I had an allergic reaction to one of the bath lotions I was prescribed. I have also tried two different (prescribed) antihistamines, neither of which have worked.
I'm sorry to whinge, but was hoping there might be someone out there who could maybe identify with what I am going through, who might be able to suggest something ... I have wonderful supportive friends, but don't know anyone who has this condition to the degree that I am experiencing it. Any advice would be greatly appreciated ...................... thanks x
Before I start, I'd like to express my sheer relief at the stories I've been reading on here of fellow psoriasis sufferers and their experiences; not that I feel good about other people suffering, just that it is *so* good not to feel so isolated with this very lonely condition.
I've had psoriasis from a very young age, but nothing more dramatic than a scaly scalp and a bit of itching behind the ears.
Five years ago it flared up and I had it all over my scalp and on my arms and body ... again, it wasn't particularly dramatic - just redness and itching - and coal tar shampoo plus some gooey medicated oinkment (the name of which escapes me) sorted it out.
This time, it has kindly enveloped my whole body (bar my face, thankfully) in painful redness and plaques, and has decided for extra measure to infect my right shin. It has been dramatic and life-changing, and has greatly reduced my quality of life. I can get no relief from the pain and everything I do causes pain, ie standing up, sitting down, walking, going to the Ladies, getting dressed, getting undressed and so on. I am here because I have reached a level of desperation ... not being one to generally feel sorry for myself, I have twice in a week burst into tears from the unremitting pain and the futility of the several medications I've tried, none of which have worked.
I have an appointment with a dermatologist next Friday, which I am hoping (praying!) will help ... so far I have seen 6 doctors and am on my fourth dose of antibiotics since 3 December 2013. The steroid creams are too painful to use, and I had an allergic reaction to one of the bath lotions I was prescribed. I have also tried two different (prescribed) antihistamines, neither of which have worked.
I'm sorry to whinge, but was hoping there might be someone out there who could maybe identify with what I am going through, who might be able to suggest something ... I have wonderful supportive friends, but don't know anyone who has this condition to the degree that I am experiencing it. Any advice would be greatly appreciated ...................... thanks x
