Health Boards
Sun-26-07-2015, 19:26 PM
I know I need the blood tests but when I had my first two I was told that unless there was something amiss I would not be contacted. However the letter seems contradictory in that it asks me to get in touch to have them done again and book an appointment for another test in 3 months.
Clearly the surgery are not in tune with my treatment as currently I am on fortnightly tests with my next booked for 5th August. Then it says to make another appointment to repeat the test in 3 months? My consultant said I would be n fortnightly tests for three months, then monthly for three months then three monthly, All clearly detailed in the consultant letter to the GP.
I guess as it's all new it's a little confusing. I will find out tomorrow when I call, probably nothing as I feel fine.
My skin is better than it has been in quite a while, still lots of little patches but thats without applying any other treatments which I chose to do to see if it was MTX working or just the psoriasis responding positively to Dovobet. Certainly less aggressive, less red and less raised.
Given that my skin is usually responsive to sunlight and did quite well while I was in Africa for large portions of the last 8 months the flare up was a little suprise but seeing as we have not or rather are not having a great summer I am relying on MTX.
As a minimum MTX I feel is holding it in check or slowing it.
Surprising how fast things go as it is now halfway through week four. I guess MTX is also dependent on dose and I only had my first 15g dose five days ago so as the dose increases I should see results. I don't have any other dosage increases until after the 10th August which is my next consultation. There may be no need to increase but the consultant did seem to expect that I may need 20-25g. I guess it's a process.
The positives are definitely there, not clear but moderated, I am not leaving in a cloud of dust.
I am now back in the NHS system so won't need ongoing private fees which would be expensive. I have my private follow up on 10th Aug and my NHS appointment on the 27th. Not sure if I just rock up and tell the NHS consultant I am on MTX and hope they continue it, I think I would be gutted if they took me off it, provided I am seeing positive results.
Sorry for the rambling post just some thoughts, it's a little confusing at present, waiting for positive definitive effects, juggling appointments and moving from private to NHS and also less than informative letters.
Clearly the surgery are not in tune with my treatment as currently I am on fortnightly tests with my next booked for 5th August. Then it says to make another appointment to repeat the test in 3 months? My consultant said I would be n fortnightly tests for three months, then monthly for three months then three monthly, All clearly detailed in the consultant letter to the GP.
I guess as it's all new it's a little confusing. I will find out tomorrow when I call, probably nothing as I feel fine.
My skin is better than it has been in quite a while, still lots of little patches but thats without applying any other treatments which I chose to do to see if it was MTX working or just the psoriasis responding positively to Dovobet. Certainly less aggressive, less red and less raised.
Given that my skin is usually responsive to sunlight and did quite well while I was in Africa for large portions of the last 8 months the flare up was a little suprise but seeing as we have not or rather are not having a great summer I am relying on MTX.
As a minimum MTX I feel is holding it in check or slowing it.
Surprising how fast things go as it is now halfway through week four. I guess MTX is also dependent on dose and I only had my first 15g dose five days ago so as the dose increases I should see results. I don't have any other dosage increases until after the 10th August which is my next consultation. There may be no need to increase but the consultant did seem to expect that I may need 20-25g. I guess it's a process.
The positives are definitely there, not clear but moderated, I am not leaving in a cloud of dust.
I am now back in the NHS system so won't need ongoing private fees which would be expensive. I have my private follow up on 10th Aug and my NHS appointment on the 27th. Not sure if I just rock up and tell the NHS consultant I am on MTX and hope they continue it, I think I would be gutted if they took me off it, provided I am seeing positive results.
Sorry for the rambling post just some thoughts, it's a little confusing at present, waiting for positive definitive effects, juggling appointments and moving from private to NHS and also less than informative letters.