Health Boards
Fri-21-08-2015, 13:56 PM
Thanks Jiml and Caroline - very touched by your replies. The Lymphocyte count was 0.68 in June which I realise is low. Not sure what latest is, but he has to have more blood tests after 2 weeks. I think we see the dermo in a month and then he will discuss weaning down the acitretin but he was very insistent that Eric keeps taking it initially - I did check this. The psoriasis is quite bad on his legs and I know the dermo wants to try and avoid a flare up - the acitretin is only just keeping it under control.
He also has to have more tests and an endoscopy to try and rule out anything sinister such as internal bleeding - he has lost over 2st in weight but initially we put this down to the ciclosporin which caused a loss of appetite.
I do find it frustrating that GP's and Consultants do not talk to one another! We do have a long wait to see the Dermo so I now ask nurse to send copy of blood tests to the GP in case there is anything sinister. I know that the creatine was dangerously high on the Ciclosporin to the extent that the GP told us to stop taking it immediately and that he would fax the Dermo. He duly did but the fax 'went missing' and Dermo never got it. He does a lot of private work so in fairness, is not at the hospital that often. So frankly, if blood tests are bad, not sure I would trust the Dermo to pick it up quickly! I do realise that with some of these medications the side affects can be quite bad, especially given Eric;s age and co morbidities but the various creams did not do anything!
At the last appointment, Eric's file was 'missing' - it was at the infirmary where he saw the specialist for the anaemia investigations! I sort of hoped the blood tests would be on the computer?
Yes, we start on a tablet a day for a week, then 2 tablets, then 3, then we go onto the higher strength ones.
I will see if I can encourage him to at least have a quick look at this site - it would really help him I think.
Thank you again, just knowing others are going through what Eric is going through really helps.
He also has to have more tests and an endoscopy to try and rule out anything sinister such as internal bleeding - he has lost over 2st in weight but initially we put this down to the ciclosporin which caused a loss of appetite.
I do find it frustrating that GP's and Consultants do not talk to one another! We do have a long wait to see the Dermo so I now ask nurse to send copy of blood tests to the GP in case there is anything sinister. I know that the creatine was dangerously high on the Ciclosporin to the extent that the GP told us to stop taking it immediately and that he would fax the Dermo. He duly did but the fax 'went missing' and Dermo never got it. He does a lot of private work so in fairness, is not at the hospital that often. So frankly, if blood tests are bad, not sure I would trust the Dermo to pick it up quickly! I do realise that with some of these medications the side affects can be quite bad, especially given Eric;s age and co morbidities but the various creams did not do anything!
At the last appointment, Eric's file was 'missing' - it was at the infirmary where he saw the specialist for the anaemia investigations! I sort of hoped the blood tests would be on the computer?
Yes, we start on a tablet a day for a week, then 2 tablets, then 3, then we go onto the higher strength ones.
I will see if I can encourage him to at least have a quick look at this site - it would really help him I think.
Thank you again, just knowing others are going through what Eric is going through really helps.