Health Boards
Sun-15-11-2015, 11:31 AM
Thanks Bill
Well I did ask them why they had zero records when I was there and their answer was that half the surgerys in my town connect to half the hospitals in the trust but the other half, obviously my GPs connect to the other half. Which I feel is um suspect to say the least as the hospital trust should have access across the whole trust.
Now as I work in IT I understand that this national database is a challenge plus its a government run project so limited joined up thinking but certainly locally it should and I have worked enough NHS projects to smell a rat.
As regards having your records on your smart phone I don't see them allowing that for the point of security, even though it is my records.
Additionally I have thought about this over the weekend and the drug protocol should be designed to work for me not what works for the consultant. I do recognise that if I was a new patient on MTX then it may be a little trial and error but I see absolutely no need to start on 5mg and ramp it up at 2.5mg every second week when previously it worked ramping it up at 5mg per week with zero side effects.
Secondly taking FA everyday is not something I really want to do.
I am going to suggest an alternative of starting on 10mg if they want to keep it ramping up at 2.5mg we can do that per week until we get to 20mg and then back down to 15mg and see if it keeps my P at bay. With FA taken two days later.
This should be fun simply getting to talk to someone that will listen as the GPs surgery will blame the hospital the hospital will blame the system etc however I feel there should have been some due diligence from my GP to ensure that they had my records. I mean if the case is there is a disconnect in their records system surely this is not the first time and they should have a process in place to ensure these things do not happen.
I can see why private consultants get the big bucks. They actually do a good job.
Well I did ask them why they had zero records when I was there and their answer was that half the surgerys in my town connect to half the hospitals in the trust but the other half, obviously my GPs connect to the other half. Which I feel is um suspect to say the least as the hospital trust should have access across the whole trust.
Now as I work in IT I understand that this national database is a challenge plus its a government run project so limited joined up thinking but certainly locally it should and I have worked enough NHS projects to smell a rat.
As regards having your records on your smart phone I don't see them allowing that for the point of security, even though it is my records.
Additionally I have thought about this over the weekend and the drug protocol should be designed to work for me not what works for the consultant. I do recognise that if I was a new patient on MTX then it may be a little trial and error but I see absolutely no need to start on 5mg and ramp it up at 2.5mg every second week when previously it worked ramping it up at 5mg per week with zero side effects.
Secondly taking FA everyday is not something I really want to do.
I am going to suggest an alternative of starting on 10mg if they want to keep it ramping up at 2.5mg we can do that per week until we get to 20mg and then back down to 15mg and see if it keeps my P at bay. With FA taken two days later.
This should be fun simply getting to talk to someone that will listen as the GPs surgery will blame the hospital the hospital will blame the system etc however I feel there should have been some due diligence from my GP to ensure that they had my records. I mean if the case is there is a disconnect in their records system surely this is not the first time and they should have a process in place to ensure these things do not happen.
I can see why private consultants get the big bucks. They actually do a good job.