Health Boards
Thu-28-01-2016, 16:09 PM
Hello
Back again on behalf of my 77 year old husband, desperate for help and to find out if anyone has had anything similar experience wise. Fumaderm started in July and built up to full dose - 2x monthly blood tests - took a while, but the psoriasis did subside. In October consultant found blood in urine and sent us to the GP who thought it was an infection. Saw consultant on 9th and again blood in the urine. He then said he would refer to a haematologist. I then got a letter yesterday saying my husband had been referred to the Nephrology Team and the Heamaturia Clinic - the figure from the Urinalysis PCR showed protein to creatine ratio 72 - I think it should be below 30? My husband also has anaemia and low sodium.
I was somewhat surprised to read that proteinuria is a very rare side affect of Fumaderm. The Dermo has asked the Clinic Consultant Nephrologist if my husband should continue to take the Fumaderm but has said to stay on it until he hears back. I am concerned because my husband also has Lupus which I think puts him at higher risk anyway of kidney problems yet I do not want him to come off the Fumaderm unless really necessary.
GP is also suggesting a bladder scan - he also did extra tests on Tuesday for something but laughingly said he would not tell me what he was testing for because I would only 'google it'. !!!! My husband is 77 and weighs less than 8st - lost 3st since the Summer so I do not honestly think I am being neurotic. These test results seem to suggest a potential kidney problem to me! Also the blood test end of December showed a borderline Urea result and that is the one the GP wanted re tested. I am struggling to try and work out how these medical people work together and who is responsible for what! I guess I just wait for the appointments to come through and take it from there? I cannot easily go with my husband although he is quite deaf, because the ambulance service won't take me and a taxi would be £70 return. I think I will phone when I get the appointments and ask exactly what is going on because if he does have kidney disease and advice is given on how to manage it, I think I may well need to be there with him. Sorry for rant - basically I know some of you have been on Fumaderm long term and wondered how common this is or could it even be totally unconnected and more likely due to the Lupus. On the bright side, maybe the consultant is just being cautious and if there is kidney disease it is very mild. Thanks for reading.
Back again on behalf of my 77 year old husband, desperate for help and to find out if anyone has had anything similar experience wise. Fumaderm started in July and built up to full dose - 2x monthly blood tests - took a while, but the psoriasis did subside. In October consultant found blood in urine and sent us to the GP who thought it was an infection. Saw consultant on 9th and again blood in the urine. He then said he would refer to a haematologist. I then got a letter yesterday saying my husband had been referred to the Nephrology Team and the Heamaturia Clinic - the figure from the Urinalysis PCR showed protein to creatine ratio 72 - I think it should be below 30? My husband also has anaemia and low sodium.
I was somewhat surprised to read that proteinuria is a very rare side affect of Fumaderm. The Dermo has asked the Clinic Consultant Nephrologist if my husband should continue to take the Fumaderm but has said to stay on it until he hears back. I am concerned because my husband also has Lupus which I think puts him at higher risk anyway of kidney problems yet I do not want him to come off the Fumaderm unless really necessary.
GP is also suggesting a bladder scan - he also did extra tests on Tuesday for something but laughingly said he would not tell me what he was testing for because I would only 'google it'. !!!! My husband is 77 and weighs less than 8st - lost 3st since the Summer so I do not honestly think I am being neurotic. These test results seem to suggest a potential kidney problem to me! Also the blood test end of December showed a borderline Urea result and that is the one the GP wanted re tested. I am struggling to try and work out how these medical people work together and who is responsible for what! I guess I just wait for the appointments to come through and take it from there? I cannot easily go with my husband although he is quite deaf, because the ambulance service won't take me and a taxi would be £70 return. I think I will phone when I get the appointments and ask exactly what is going on because if he does have kidney disease and advice is given on how to manage it, I think I may well need to be there with him. Sorry for rant - basically I know some of you have been on Fumaderm long term and wondered how common this is or could it even be totally unconnected and more likely due to the Lupus. On the bright side, maybe the consultant is just being cautious and if there is kidney disease it is very mild. Thanks for reading.