Health Boards
Wed-02-03-2016, 13:32 PM
Hi all,
I have suffered with P for over 25 years now and have been using all kinds of treatment, most of my P has been pretty low and i have never had a bad case of it until now.
For some strange reason i had a massive flare up never like i have seen before so i went to my local GP and went through all kinds of new ointments of which none of them worked so they sent me to see a specialist at my local hospital.
Once there they said to me i have Guttate P and they advised me to have UVA treatment 3 times a week.
Due to how far the hospital is i could not afford cab/taxi fares and i cannot use local transport....buses/trains (long story due to mental health, crowded places is not my best friend).
I told them i could not do UVA due to costs and they gave me some other new cream, tried it for over 6 weeks and all it done was made it worse
I spoke again to the hospital about this and they said there is nothing they can do right now unless you do UVA treatment so i quit seeing the hospital.
At present the only way i am controlling it is by using the following:
Dovobet for skin
Capasal for shampoo
Dermol for shower moisturizer
Betacap for scalp
Also tried Dovonex but had very little effect.
The only way i can describe what my P looks like is that it's like loads of small blisters but without anything inside, they come and reach a point of size and after 4 weeks they seem to dry out and fade away.
To be honest i don't think Dovobet has any effect on them
i think they just go away on their own.
Anyway onto the question, i have been reading a lot about UVB treatment and the UVB beds out their.....most of them way way out of my price range.
I have been thinking long term that maybe after some saving was to buy a small one for use at home.
The one i was thinking of was this:
72W Lamp for Vitiligo, Psoriasis, Eczema, Acne, Neurodermatitis + TESTER MED!
LINK REMOVED
It seems to conform to all the UK specifications, i.e bulbs.
So i am wondering is it something you's have done and has it worked? or is it somerthing you's would say for me to stay away and not buy it?
I am asking due to me struggling a lot now with P and feel i am getting nowhere, i am at a point of hating waking up.
Look forward to hearing your thoughts.
All the best
JayKay
EDIT By Fred: Link Removed.
I have suffered with P for over 25 years now and have been using all kinds of treatment, most of my P has been pretty low and i have never had a bad case of it until now.
For some strange reason i had a massive flare up never like i have seen before so i went to my local GP and went through all kinds of new ointments of which none of them worked so they sent me to see a specialist at my local hospital.
Once there they said to me i have Guttate P and they advised me to have UVA treatment 3 times a week.
Due to how far the hospital is i could not afford cab/taxi fares and i cannot use local transport....buses/trains (long story due to mental health, crowded places is not my best friend).
I told them i could not do UVA due to costs and they gave me some other new cream, tried it for over 6 weeks and all it done was made it worse
I spoke again to the hospital about this and they said there is nothing they can do right now unless you do UVA treatment so i quit seeing the hospital.
At present the only way i am controlling it is by using the following:
Dovobet for skin
Capasal for shampoo
Dermol for shower moisturizer
Betacap for scalp
Also tried Dovonex but had very little effect.
The only way i can describe what my P looks like is that it's like loads of small blisters but without anything inside, they come and reach a point of size and after 4 weeks they seem to dry out and fade away.
To be honest i don't think Dovobet has any effect on them
i think they just go away on their own.Anyway onto the question, i have been reading a lot about UVB treatment and the UVB beds out their.....most of them way way out of my price range.
I have been thinking long term that maybe after some saving was to buy a small one for use at home.
The one i was thinking of was this:
72W Lamp for Vitiligo, Psoriasis, Eczema, Acne, Neurodermatitis + TESTER MED!
LINK REMOVED
It seems to conform to all the UK specifications, i.e bulbs.
So i am wondering is it something you's have done and has it worked? or is it somerthing you's would say for me to stay away and not buy it?
I am asking due to me struggling a lot now with P and feel i am getting nowhere, i am at a point of hating waking up.
Look forward to hearing your thoughts.
All the best
JayKay
EDIT By Fred: Link Removed.