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hi everyone

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hi everyone
pangolin88 Offline
Newbie


Posts: 2
Threads: 1
Joined: Jun 2013
Gender: Male
Location: Johor, Malaysia
Treatment: methotrexate
#1
Mon-10-06-2013, 03:53 AM
Hi everyone
I stumbled onto this site whilst googling Apremilast. Spent some time browsing through and it looked like a friendly and informative place.

I am staying in the East and was trained in the West (UK) so I have the opportunity to treat my psoriasis with both Eastern and Western medicines.

During my 40 years of living with psoriasis, I have tried ayurvedic medicines, traditional Chinese therapies ( imbalance in the Ying and Yang) and even gone to Thailand to drink snake bile.

I have smeared myself with all sorts of creams ( steroids, Daivonex, moisturizers, herbal products). UV light therapy only helped for a short time.

I tried a course of cyclosporine... I suffered every known side effect and it did not help my skin a single bit.

So far I have avoided anti-TNF medication and the only thing that controls my skin is Methotrexate which I have been taking every 2 - 3 weeks for the past 30 years.

I am considering trying apremilast but it is still not available here. So I am still struggling to live with my itchy, scaly and often painful skin and hoping some day someone will find a cure.



Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Mon-10-06-2013, 11:20 AM
Hello and Welcome to Psoriasis Club

Thank you for your kind words, we do pride ourselves of keeping Psoriasis Club friendly. Living with psoriasis is bad enough, so having somewhere free from spam, trolls, & bullies can only have beneficial affects. Thumb

I have heard of a lot of the natural treatments, unfortunately a lot of scams also but I have never known anyone trying "Snake Bile" Would you be interested in starting a new thread in Natural Treatments For Psoriasis about your experience of using snake bile? Like you said Psoriasis Club is an informative place for people with psoriasis and your input is very welcome.

Regards.

Fred.

EDIT: Micky has recently started a new thread about Ciclosporin here: Ciclosporine if you would again like to share your experiance.

AND: You may be interested in this Apremilast thread too: Apremilast phase III for psoriasis

Sorry I'll shut up now. Wave
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Mon-10-06-2013, 20:42 PM
welcome to the Forum Pangolin... Wave
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#4
Tue-11-06-2013, 03:19 AM
Hi. Welcome to the forum.
pangolin88 Offline Author
Newbie


Posts: 2
Threads: 1
Joined: Jun 2013
Gender: Male
Location: Johor, Malaysia
Treatment: methotrexate
#5
Tue-11-06-2013, 05:59 AM
hello Fred
Many thanks for the warm welcome and the link to apremilast.
As for snake bile, it was just one of the many things I tried in a desperate attempt to cure my psoriasis. Since I am here today, it obviously did not work.

The whole process was an adventure in itself. It involved putting a sliver of finger nail and a flake on a "boat" during the loy krathong festival so that all the negative skin would disappear. Then the monk took me to a roadside stall where the gallbladder was removed form a live snake (to avoid fake bile sold elsewhere.)
The bile was supposed to detoxify the blood.

BTW I am Christian though brought up in Buddhist and Taoist family and in my country we are also exposed to Malay and Indian religions.
Searching for the elusive cure was just a sign of my desperation and had nothing to do with the religions involved.

Troll Offline
I can see you in the dark.

100 + Member I Just Cant Stop !
Posts: 527
Threads: 12
Joined: Sep 2011
Gender: Female
Location: On the fence
Psoriasis Score: 32
Treatment: Sandpaper
#6
Wed-12-06-2013, 17:14 PM
Hello Wave

*This thread is closed. All introductions are closed after 90 days to save confusion.
You are welcome to start new threads in any other sections of your choice.
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