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Hi Everyone
Filmbuff Offline
Member


Posts: 14
Threads: 4
Joined: Jul 2013
Gender: Male
Location: Manchester
Treatment: T-Gel, Calcipotriol, Hydromol, Betnovate
#1
Mon-01-07-2013, 13:02 PM
Hi all,

Just joined this forum, found it while browsing psoriasis, (can just about spell it now) and treatments.
I'm 48 and have had this condition for around 10 years now, it started in my scalp but spreads to different bits of me and in different forms - whenerver and wherever it pleases.
At the moment I've got the scalp flaky patches in my scalp (they are a constant). Elsewhere there are some red blotches and large reddish spots in other places.
I don't get how it changes though - other times I've had scaly and flaky blotches but not now, instead they are red and sore.
I use T Gel on my scalp - I heard olive oil was good, has anyone tried this, also that you should wash your hair and scalp in cool water, not hot??
I've used creams but don't remember what they were - once used a steroid cream, which seemed to make it worse so I stopped. Anyone any tips for complementary medicine?

Cheers folks,

FilmbuffWink
Lady Bugley-Ah Offline
Every day's a sunny day but sometimes clouds get in the way

100 + Member I Just Cant Stop !
Posts: 215
Threads: 2
Joined: Mar 2012
Gender: Female
Location: Wiltshire
Treatment: Silkis, lotions and potions
#2
Mon-01-07-2013, 13:38 PM
Hi Filmbuff!
Welcome to the forum! The best complimentry medicine is sunshine!
There are lots of tips in the forum from diet to different lotions and potions if you want to go down the medication free route. I would suggest a trip to the doctor but that's up to you.
Have a good rummage around and if you are not baffled by the information overload you may find something that works for you.
I haven't tried olive oil but coconut oil is good!
Cheers
Lady-B
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#3
Mon-01-07-2013, 15:11 PM
Hello Filmbuff Welcome to Psoriasis Club

Yes it is difficult to spell, I added it to my Firefox spell checker. I take it you're into films. I like a good old B&W especially the Ealing Comedy's, A good Carry On, and I do like a good horror. Actually I could write a Comedy Horror using some of the members here as characters. Whistle

This thread explains the different types of Psoriasis which may help: Types Of Psoriasis Explained

Olive oil is good but a 50/50 mix of Olive and Peanut oils is better. Though I'm with Lady B and prefer Coconut Oil see this thread: Coconut Oil

This section has a few natural treatments that may interest you: Natural Treatments For Psoriasis

Oh and yes warm water is better than hot Thumb

Regards.

Fred.
aria Offline
Member


Posts: 36
Threads: 9
Joined: Jun 2013
Gender: Female
Location: cardiff
Treatment: exorex
#4
Mon-01-07-2013, 15:15 PM
Hi filmbuff and welcome!Wave

Putting dead sea salt or any salt in your bath water can be very good for your psoriasis and also oatmeal in the bath is supposed to be great too

xx
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#5
Tue-02-07-2013, 00:37 AM
Hi Filmbuff. Welcome to the forum.
Krissie_Wright Offline
Psoriasis Survivor & Domestic Goddess


Posts: 76
Threads: 5
Joined: Mar 2012
Gender: Female
Location: Aberdeenshire, Scotland
Psoriasis Score: 41
Treatment: Dovonex/Dovobet/Methotrexate
#6
Tue-02-07-2013, 12:34 PM
Hi Filmbuff.

Welcome!!

I use warmed olive oil on my scalp once a week, I warm it in the microwave for 30 seconds and rub it into my scalp. After an hour or so I wash it out with a mild shampoo (I personally use lush products due to their natural ingredients) like a baby shampoo. You need to leave the shampoo in for 5 minutes or so and make sure you get a great lather going as otherwise your scalp and hair will remain greasy. It certainly cuts down on the flakiness.

As for temperature of the water, I cannot abide cold/tepid water and always use hot. I also use a porridge based soap for bathing as the flakes are great exfoliators and the gluten in them coats the skin nicely.

Unfortunately our skin can become accustomed to creams and lotions of the prescription variety, and sometimes a break of 3-4 months before using it again is the only way to get over it. which obviously is not what we need when we have large red flaky areas on show every day.

I hope you find something that works for you, but as said before, Sunshine (or UVB) is the best treatment - I use a UVB bed at home and it has helped quite a bit.

Krissie
Filmbuff Offline Author
Member


Posts: 14
Threads: 4
Joined: Jul 2013
Gender: Male
Location: Manchester
Treatment: T-Gel, Calcipotriol, Hydromol, Betnovate
#7
Wed-03-07-2013, 14:27 PM
(Mon-01-07-2013, 13:38 PM)Lady Bugley-Ah Wrote: Hi Filmbuff!
Welcome to the forum! The best complimentry medicine is sunshine!
There are lots of tips in the forum from diet to different lotions and potions if you want to go down the medication free route. I would suggest a trip to the doctor but that's up to you.
Have a good rummage around and if you are not baffled by the information overload you may find something that works for you.
I haven't tried olive oil but coconut oil is good!
Cheers
Lady-B

(Mon-01-07-2013, 15:11 PM)Fred Wrote: Hello Filmbuff Welcome to Psoriasis Club

Yes it is difficult to spell, I added it to my Firefox spell checker. I take it you're into films. I like a good old B&W especially the Ealing Comedy's, A good Carry On, and I do like a good horror. Actually I could write a Comedy Horror using some of the members here as characters. Whistle

Oh and yes warm water is better than hot Thumb

Regards.

Fred.

(Mon-01-07-2013, 15:15 PM)aria Wrote: Hi filmbuff and welcome!Wave

Putting dead sea salt or any salt in your bath water can be very good for your psoriasis and also oatmeal in the bath is supposed to be great too

xx

(Tue-02-07-2013, 00:37 AM)KyPrincess Wrote: Hi Filmbuff. Welcome to the forum.

(Tue-02-07-2013, 12:34 PM)Krissie_Wright Wrote: Hi Filmbuff.

Welcome!!

I use warmed olive oil on my scalp once a week, I warm it in the microwave for 30 seconds and rub it into my scalp. After an hour or so I wash it out with a mild shampoo (I personally use lush products due to their natural ingredients) like a baby shampoo. You need to leave the shampoo in for 5 minutes or so and make sure you get a great lather going as otherwise your scalp and hair will remain greasy. It certainly cuts down on the flakiness.

As for temperature of the water, I cannot abide cold/tepid water and always use hot. I also use a porridge based soap for bathing as the flakes are great exfoliators and the gluten in them coats the skin nicely.

Unfortunately our skin can become accustomed to creams and lotions of the prescription variety, and sometimes a break of 3-4 months before using it again is the only way to get over it. which obviously is not what we need when we have large red flaky areas on show every day.

I hope you find something that works for you, but as said before, Sunshine (or UVB) is the best treatment - I use a UVB bed at home and it has helped quite a bit.

Krissie

Thanks to you all for welcoming me and for all the useful tips. I'll certainly try olive oil. Yes, a trip to the docs is probably called for, I need to get the scalp treatment I ran out of and the creams for the body. I still want to use complementary treatments as well - including sunshine when we get it, finally! Salt or oatmeal in the bath sounds lke a good excuse for an indulgent soak.
Thanks Fred for the links, I'll try those.
I suppose managing stress is also important - my psoriasis always flares up worse when I'm stressed - although the scalp is constant...

Cheers,
Filmbuff

Troll Offline
I can see you in the dark.

100 + Member I Just Cant Stop !
Posts: 527
Threads: 12
Joined: Sep 2011
Gender: Female
Location: On the fence
Psoriasis Score: 32
Treatment: Sandpaper
#8
Thu-04-07-2013, 12:52 PM
Hello Filmbuff Wave
Ikone Offline
Novice


Posts: 6
Threads: 2
Joined: Jul 2013
Gender: Male
Location: Uppsala
Psoriasis Score: 29
Treatment: Daivobet/dovobet
#9
Thu-04-07-2013, 13:01 PM
(Mon-01-07-2013, 13:02 PM)Filmbuff Wrote: Hi all,

Just joined this forum, found it while browsing psoriasis, (can just about spell it now) and treatments.
I'm 48 and have had this condition for around 10 years now, it started in my scalp but spreads to different bits of me and in different forms - whenerver and wherever it pleases.
At the moment I've got the scalp flaky patches in my scalp (they are a constant). Elsewhere there are some red blotches and large reddish spots in other places.
I don't get how it changes though - other times I've had scaly and flaky blotches but not now, instead they are red and sore.
I use T Gel on my scalp - I heard olive oil was good, has anyone tried this, also that you should wash your hair and scalp in cool water, not hot??
I've used creams but don't remember what they were - once used a steroid cream, which seemed to make it worse so I stopped. Anyone any tips for complementary medicine?

Cheers folks,

FilmbuffWink


Hello Filmbuff!

I've been using Betamethasone (in Sweden its called Betnovat) which is a solvent just applied to the scalp. It works wonders on my scalp. Just in case you havent tried Smile
Filmbuff Offline Author
Member


Posts: 14
Threads: 4
Joined: Jul 2013
Gender: Male
Location: Manchester
Treatment: T-Gel, Calcipotriol, Hydromol, Betnovate
#10
Thu-04-07-2013, 13:28 PM
(Thu-04-07-2013, 13:01 PM)Ikone Wrote:
(Mon-01-07-2013, 13:02 PM)Filmbuff Wrote: Hi all,

Just joined this forum, found it while browsing psoriasis, (can just about spell it now) and treatments.
I'm 48 and have had this condition for around 10 years now, it started in my scalp but spreads to different bits of me and in different forms - whenerver and wherever it pleases.
At the moment I've got the scalp flaky patches in my scalp (they are a constant). Elsewhere there are some red blotches and large reddish spots in other places.
I don't get how it changes though - other times I've had scaly and flaky blotches but not now, instead they are red and sore.
I use T Gel on my scalp - I heard olive oil was good, has anyone tried this, also that you should wash your hair and scalp in cool water, not hot??
I've used creams but don't remember what they were - once used a steroid cream, which seemed to make it worse so I stopped. Anyone any tips for complementary medicine?

Cheers folks,

FilmbuffWink


Hello Filmbuff!

I've been using Betamethasone (in Sweden its called Betnovat) which is a solvent just applied to the scalp. It works wonders on my scalp. Just in case you havent tried Smile

Thanks for the tip, Ikone, I'll make a note of the name and give it a go,

Cheers,

Flmbuff
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