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Hi from Sandra

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Hi from Sandra
Sandra Offline
Member


Posts: 63
Threads: 5
Joined: Nov 2013
Gender: Female
Location: Scotland
Psoriasis Score: 32
Treatment: Epiderm, diprosalic, bentnovate, silkis, dermovate, diprobase, UVA
#1
Mon-04-11-2013, 23:58 PM
Hello,
I have only had psoriasis for the last seven years and my first time on a forum.
Just about to start 3rd course of phototherapy. It has been really difficult to manage/control, though consultant is really good. For all those who are perhaps using Dead Sea salt, I thought I would let you know what my consultant had to say. He was involved in extensive research into the affect of Dead Sea salt and the results were it has no effect on psoriasis whatsoever. He also said why pay for sea salt if you believe salt works, just use table salt as cheaper! It appears there is still a lot to learn about psoriasis and a lot of new treatments. I have so far refused to use anything but topical and phototherapy treatments even though I am currently experiencing my worst outbreak yet! However I don't let it stop me doing anything, I even went to work in bare feet, because the psoriasis meant wearing shoes was agony, thank goodness we had a great summer!
Glad to have found you.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,211
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Tue-05-11-2013, 13:00 PM
Hello Sandra Welcome to Psoriasis Club.

Don't worry about it being your first time on a forum, just shout out somewhere if you get stuck and someone will find you. You will find us a small but friendly bunch, so just dive on in.

Re Dead Sea Salt: I think if you could bath in the Dead Sea each day it could have some affect, but I'm of the opinion that it wouldn't work at home. Having said that I do believe in the placebo effect (if you think it's working it will) Rolleyes

Well done you for not letting psoriasis stop you doing things, a positive attitude is one of the best treatments out there.

We're glad you found us too, and don't hesitate to share your treatment / experience with others Smile

Regards.

Fred.
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#3
Tue-05-11-2013, 13:25 PM
Hello Sandra,

Welcome to psoriasisclub, we are the best placebo if you are feeling a little uncomfortable on your psoriasis. We always work !

Have fun, hope to read more from you.

Caroline
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#4
Tue-05-11-2013, 19:50 PM
Hi Sandra andWelcome I hope you enjoy the forum as much as I do I have only been on here just over 1 month and find everyone very friendly. Regarding Dead Sea salt I think it would work if you were on the shores of the Dead Sea and enjoying the sunshine.
I do try to get into the. North Sea in the summer when I can , it does help my psoriasis although I come out purple with cold.
Hope you keep contributingWink
mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#5
Wed-06-11-2013, 06:29 AM
Welcome to the forum! There is some research out there that states visiting that region helps with psoriasis. Not sure how much I believe it, but maybe if you believe, it will help!
Sandra Offline Author
Member


Posts: 63
Threads: 5
Joined: Nov 2013
Gender: Female
Location: Scotland
Psoriasis Score: 32
Treatment: Epiderm, diprosalic, bentnovate, silkis, dermovate, diprobase, UVA
#6
Wed-06-11-2013, 09:20 AM
Hi
Apparently, it's not the salt in the Dead Sea but the sunshine that is doing the job. Any sunny climate will help with the symptoms (according to my consultant).
There are such a lot of products out there claiming to do this or that, it is big business! The only time my psoriasis has been infected was when it was suggested I use aloe vera. Not a good idea for me took several courses of antibiotics to clear the infection. I know we are all different, what works for some does not work for others. I personally stear clear of any products claiming to do this or that for psoriasis. Mine is genetic, thought I was lucky and it had skipped me, then at 45 it started with a vengeance, worse than my mother or brother has ever experienced, I now only use what is prescribed and have to say without epiderm my life would be miserable. I soak in it, wash with it and moisturise with it. Great stuff for me!
Just started phototherapy this week again, good news is I shall have a tan this winter!
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,211
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#7
Wed-06-11-2013, 12:30 PM
(Wed-06-11-2013, 09:20 AM)Sandra Wrote: There are such a lot of products out there claiming to do this or that, it is big business! I personally stear clear of any products claiming to do this or that for psoriasis.

Five

You should add that here: Watch out for the Scams!
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#8
Wed-06-11-2013, 19:18 PM
I admit there are certainly scams in the psoriasis business. That even stretches to well known pharma who earn a lot of money on psoriasis treatments that hardly work.

BUT... Keep an open mind for possibilities, there are some that make sense and it would be a pity if you missed them because of limiting yourself.

Caroline
Brighteyes Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 286
Threads: 15
Joined: May 2013
Gender: Female
Location: York
Psoriasis Score: 9
Treatment: MTX
#9
Sun-10-11-2013, 19:27 PM
I use Dead Sea Salts. I'm not saying that they definitively help my psoriasis but I love bathing in them for relaxation. Relaxation = less stress = good for psoriasis. Also, DSS do have beneficial minerals that table salt doesn't (in fact table salt is rubbish for anything IMO). Smile

Sunshine is definitely a big help though. Smile

Welcome to the forum.

Bigarm
Troll Offline
I can see you in the dark.

100 + Member I Just Cant Stop !
Posts: 527
Threads: 12
Joined: Sep 2011
Gender: Female
Location: On the fence
Psoriasis Score: 32
Treatment: Sandpaper
#10
Tue-12-11-2013, 21:23 PM
Hello Sandra Wave
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