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[split] Dimethylfumarates and Psoriasis

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[split] Dimethylfumarates and Psoriasis
Maryam Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 260
Threads: 9
Joined: Jun 2017
Gender: Female
Location: The Netherlands
Psoriasis Score: 0!!!
Treatment: Stelara
#361
Thu-17-08-2017, 13:40 PM
(Thu-17-08-2017, 13:17 PM)Fred Wrote:
(Thu-17-08-2017, 13:10 PM)Maryam Wrote: I don't know if I can place any links?

No sorry, we have a "No link policy"

I thought so Smile. I read it somewhere but wasn't sure anymore, tnx for the reply!
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Cory Offline
Cory


Posts: 34
Threads: 2
Joined: Aug 2017
Gender: Male
Location: Illinois
Treatment: Over the counter products.
#362
Thu-17-08-2017, 14:42 PM
(Thu-17-08-2017, 13:10 PM)Maryam Wrote: More people get their own DMF. I don't know if I can place any links? But if you google "making dmf capsules" you'll find some blogs and people on fora who make them, mostly for MS. Maybe you can find a doctor who can help you and do the bloodtests?

  Probably wouldn't be a good idea for me. Sometimes I mess up scrambled eggs.  Sad
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Caroline Offline Author
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#363
Thu-17-08-2017, 17:16 PM
(Thu-17-08-2017, 14:42 PM)Cory Wrote:
(Thu-17-08-2017, 13:10 PM)Maryam Wrote: More people get their own DMF. I don't know if I can place any links? But if you google "making dmf capsules" you'll find some blogs and people on fora who make them, mostly for MS. Maybe you can find a doctor who can help you and do the bloodtests?

  Probably wouldn't be a good idea for me. Sometimes I mess up scrambled eggs.  Sad

You can also read Bill's pure dimethylfumarate thread.
Bill is our local, he is from Australia, self-made pills expert. Big Grin
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#364
Fri-18-08-2017, 13:01 PM
DMF as a raw chemical is extremely cheap. It is sold by the tonne, and the last stuff I bought was marketed as an agricultural fungicide. I got more DMF than I will ever need for a bit over $600 US. I use less than $2 US worth a year. I have experimented with various ways of taking the drug: There is no fun way to take it, but a bit of unpleasantness far outweighs the disease. I think it by far the best treatment available for my p, psa, and ankylosing spondylitis. The main drawback of the drug for me is that a dosage that gives the best control of my disease will drop my lymphocytes too low. I am looking for ways to have my cake and eat it.
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#365
Fri-30-03-2018, 03:30 AM
On the subject of DMF availability in the European Union, I note that it is available in 500g quantities for 88GBP/120Euros from a chemical supplier in the UK (stock is in Belgium).
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jiml Offline
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Posts: 47,972
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#366
Fri-30-03-2018, 08:40 AM
(Fri-30-03-2018, 03:30 AM)Bill Wrote: On the subject of DMF availability in the European Union, I note that it is available in 500g quantities for 88GBP/120Euros from a chemical supplier in the UK (stock is in Belgium).

That’s interesting Bill for anyone that wants to try the DIY route..
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Caroline Offline Author
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#367
Fri-30-03-2018, 08:41 AM
(Fri-30-03-2018, 08:40 AM)jiml Wrote:
(Fri-30-03-2018, 03:30 AM)Bill Wrote: On the subject of DMF availability in the European Union, I note that it is available in 500g quantities for 88GBP/120Euros from a chemical supplier in the UK (stock is in Belgium).

That’s interesting Bill for anyone that wants to try the DIY route..

Indeed, very good to know. Thanks.
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#368
Fri-30-03-2018, 12:20 PM
No worries, Jim and Caroline. Whether they would sell it to you is another matter. I had my account canceled when I first tried to buy DMF, which is why I ended up buying from a Chinese supplier.

Cheers
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LadyBug Offline
Member


Posts: 66
Threads: 1
Joined: Sep 2014
Gender: Female
Location: Poland
Treatment: started Psorinovo
#369
Sat-31-03-2018, 21:05 PM
(Fri-30-03-2018, 12:20 PM)Bill Wrote: No worries, Jim and Caroline. Whether they would sell it to you is another matter. I had my account canceled when I first tried to buy DMF, which is why I ended up buying from a Chinese supplier.

Cheers

Exactly same problem here, theres no way to purchase it. They check if you are running lab or any special company that might need it, purpose or purchase etc... Its harder than getting real drugs... ridiculous and I have no idea why? Theres no such demand to even protect people from it...
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Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#370
Sun-01-04-2018, 00:54 AM
Hi Jo,

Maybe if you told them that you wanted to treat your disease as per diy advice from Dr Erhardt? I cannot understand why you would be refused. Officious buggers. Angry
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