Glenda's journey with prescribed treatments

[glenda grant]

I wouldn't have thought the Enbrel caused the cirrhosis Glenda.

It's shame your doctors is closed, could you get in touch with them on the phone or via email ?

As you have a bathtub can you get hold of some Wheat Starch ? They gave me baths with that in hosiptal once and it helped a lot. Not sure where you would buy it though.

Hope you get to see a doctor soon, and when you do I would suggest you ask about Stelara, Cosentyx or Tremfya.

Good luck

Fred.

Fred I did call my DR and talked to his nurse and she went to his office he told her to tell me he doesn't want to put me on any biologics just yet!He said it would lower my immune system and get the Corona Virus.So after all this quiets down i will go see him at his office.All the Dr's are closed they want to prevent spreading of the Virus.I have several health issues gastroparesis,stage three kidney disease,high blood pressure,cirrhosis,thyroid,lots of anxiety meds.I am a hot mess but will keep on keeping on! Hopefully my health issues will improve once on new biologics!

[Kat]

Good luck Glenda, hope you get some relief soon.

I would call back and ask for a topical at the very least to see if that gives you some relief. Surely they don't expect to just do nothing right now!

[glenda grant]

Good luck Glenda, hope you get some relief soon.

I would call back and ask for a topical at the very least to see if that gives you some relief.  Surely they don't expect to just do nothing right now!

 

Caroline i finally got in to see my Dermatology Dr she checked me out and said i am covered 60% so she is trying to get me a new biologic drug Skirizzi don't know how to spell it' my Dr ordered it and we are waiting to see if my insurance will pay for it.Also my Primary Dr wants to see me right away.My platelets are low,kidneys are acting up,sugar was high,Liver is stage 4 stage  and kidneys are stage 3,I will let you know what the Dr has to say!
.

[Kat]

Good luck Glenda, hope you get some relief soon.

I would call back and ask for a topical at the very least to see if that gives you some relief.  Surely they don't expect to just do nothing right now!

 

Caroline finally got in to see my Dermatology Dr she checked me out and said i am covered 60% so she is trying to get me a new biologic drug Skirizzi don't know how to spell it' my Dr ordered it and we are waiting to see if my insurance will pay for it.Also my Primary Dr wants to see me right away.My platelets are low,kidneys are acting up,sugar was high,Liver is stage 4 stage  and kidneys are stage 3,I will let you know what the Dr has to see!
.

Glad to hear they are doing something for you. Skyrizi is one of the newer ones I think, you'll have to let us know how it works for you.

Kat

[jiml]

Hi Glenda seems you have a lot going on health wise, its a great idea to get it all checked out and hope they can do something for your other problems as well as give you skyrizi for the psoriasis see here Skyrizi (risankizumab)
It will be interesting to hear how well it works for you as I haven't seen any members using it yet as it's quite new
Hope it works quickly for you and gives you one thing less to worry about

[Fred]

Yes Skyrizi is one of the new kids on the block and goes after IL23

I think you will find it much better than Enbrel.

Good luck Glenda.

[glenda grant]

Thanks for all the well wishes my body is healing up nicely.My bones still hurt hopefully it will get better,My achy Bones act up in cold weather it was in the 30's last night and full moon to boot.I was walking around all night long.Then i got a Charley Horse i took two potassium and it did help. I asked my Dr to take me off Gabapentin. Neurontin is the trade for it used for nerve pain and I have been on it for years.I got off it because it wasn't heiping and heard it could cause weight pain! I have lost about 9 lbs i need to take another 20 lbs.I hope the Take care all my friends 

[KatT]

Did you start Skyrizi?  If so when?

Glad you're healing up and congratulations on the weight loss    


Slowly but surely!  It takes time! 


Will look into potassium for cramps as I get those on a regular basis....and it's painful 

[Fred]

Good luck with shedding some weight Glenda, I take my hat off to those that can. I gave up trying in the end as I only put it back on again.

[jiml]

Great that it's working Glenda and your skin is clearing. Hopefully the arthritis will be cleared for you as well soon. Fingers crossed

Good that you are losing weight Glenda that will be good for your other health problems I'm sure