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Psoriasis Club › HealthHealth Boards › Introductions v
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been there; done that

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been there; done that
crazilady Offline
Member


Posts: 10
Threads: 4
Joined: Jan 2015
Gender: Female
Location: Missouri
Treatment: Enbrel
#1
Tue-20-01-2015, 00:46 AM
Hi everybody! Im not really crazy! Ive had psoriasis for 44 years ago. Ran the gamut of treatment. Just wanted to see what y'all do. Wall
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#2
Tue-20-01-2015, 00:58 AM
(Tue-20-01-2015, 00:46 AM)crazilady Wrote: Hi everybody! Im not really crazy!  Ive had psoriasis for 44 years ago. Ran the gamut of treatment.  Just wanted to see what y'all do. Wall

Well crazilady you will be made very  Welcome  here. You will find a lot of genuine people on here always willing to discuss and share our problems, we all have psoriasis in common and can get good advice on the latest medical advances and the latest trial results. We have an active membership and this is a happy friendly place to come.
What treatment are you on for the psoriasis, and are you suffering at the moment ?
Keep coming and checking us out and if you come into the members section there are many interesting posts in the off topic... I hope to see you there  Thumb
crazilady Offline Author
Member


Posts: 10
Threads: 4
Joined: Jan 2015
Gender: Female
Location: Missouri
Treatment: Enbrel
#3
Tue-20-01-2015, 01:17 AM
Sorry I took so long to reply; but Im trying to figure all of this out and well, let's just say, I'm not quite so computer savvy! lol

I was in a study, Phase III for Brodalumab, until last May; it still has two years or more before it even gets to FDA! It was a miracle drug for me treating psoriasis!. Only problem is it didn't help psoriatic arthritis pain. Currently, I just went back on Enbrel for the pain. My skin is completely broken out and it's winter here and I couldn't be more miserable. Id rather live with the pain, than have this nasty skin!

What you using?
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#4
Tue-20-01-2015, 01:29 AM
Well you say you're not savvy you're getting around the site rather well ( even been to the bar) btw there's a drink waiting for you there ....
I hope the Enbrell kicks in nice and quick for you and relieves the pain
My drug you won't get in the US it's called Fumaderm and to me it has worked miracles ... I have suffered all my adult life with psoriasis but the last three years in Fumaderm have been great im clear and am enjoying the summers now I can wear shorts and t shirts
I'm sorry you are breaking out all over with psoriasis. I hope it starts clearing soon ... When did you start the Enbrell lets hope it does something for the skin soon
Don't ever be miserable you will always be welcome here if your feeling low come and talk on the chatting thread someone will soon pick it up
Thanks for finding us
Jim
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#5
Tue-20-01-2015, 02:21 AM
Welcome! I hope the Enbrel starts helping with your skin soon and you get some relief. I'm happy you've found your way here as there is lots of information and a lot of nice people. It's nice to have a place where people understand.
Quest4Cure Offline
As long as there is breath there is life. Life is a gift!

100 + Member I Just Cant Stop !
Posts: 639
Threads: 19
Joined: Aug 2014
Gender: Male
Location: US
Psoriasis Score: 13
Treatment: light treatments and a variety of many others.
#6
Tue-20-01-2015, 05:33 AM
Hi there.... Yeap we have all been down this road and many more.

The important thing is that we stay in touch with the new drugs, know what works for us and share .
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#7
Tue-20-01-2015, 08:16 AM
Hello Crazilady,
Welcome to the forum !
Have a nice time over here.

Caroline
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#8
Tue-20-01-2015, 10:39 AM
(Tue-20-01-2015, 00:46 AM)crazilady Wrote: Hi everybody! Im not really crazy!  Ive had psoriasis for 44 years ago. Ran the gamut of treatment.  Just wanted to see what y'all do. Wall

I am Welcome to Psoriasis Club.

As for what we all do: You will find a good mix of people trying all sorts of treatments, some have their own threads which they update (when they remember)  Rolleyes
and some have journals in the members section too.

Have a good look around and just shout our, someone will find you.

Regards.

Fred.

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