AmandaL's Stelera Journey

[AmandaL]

Hi everyone, hope it's okay, but I'm going to try and keep a diary of the progress with Stelera.  Just got my first injection about an hour ago.  Feeling really tired at the moment, but I don't think that would come on as quickly as a side effect.  Will try and upload pictures later of skin so that I can see when the medication kicks in

[jiml]

Great idea Amanda I will follow your progress and hope it works out well for you
If you need help posting pictures see [Group Specific]
Good luck if in doubt just ask

[Fred]

No you go ahead the more the better as it will help others, and give you something to look back on.  

I've made an edit to your heading as we have a lot of Stelara threads and it will make it easier to find again, if you want it changed to something different let me know.

Good luck with it, I hope you have the success I had with it.  

[AmandaL]

Thank you I'm starting to run out of options if this doesn't work. I've already tried methotrexate, cyclosporine, humira, uvb, infliximab. I was surprised that they don't let you take the medication home meaning I have to go back every time for my injections.

[jiml]

Thank you  I'm starting to run out of options if this doesn't work.  I've already tried methotrexate, cyclosporine, humira, uvb, infliximab.  I was surprised that they don't let you take the medication home meaning I have to go back every time for my injections.

Hi Amanda I'm sure this will work it's probably one of the best bio's out there and if it doesn't ( and let's assume it does work ) but if it doesn't there are still options available and many more in the pipeline there are some really encouraging clinical trials taking place and the results from many of these give great hope for the future for us psoriasis sufferers... And if you go away from bio's there's always my drug Fumaderm available to your dermatologist to prescribe. I'm sure they will let you self administer the Stelara when they are happy with your blood tests I guess they are just keeping a close eye on you to start with

Stay positive if you can and come back here for a dose of cheer anytime you feel low
Jim

[D Foster]

Thank you  I'm starting to run out of options if this doesn't work.  I've already tried methotrexate, cyclosporine, humira, uvb, infliximab.  I was surprised that they don't let you take the medication home meaning I have to go back every time for my injections.

Hi Amanda I'm sure this will work it's probably one of the best bio's out there and if it doesn't ( and let's assume it does work ) but if it doesn't there are still options available and many more in the pipeline there are some really encouraging clinical trials taking place and the results from many of these give great hope for the future for us psoriasis sufferers... And if you go away from bio's there's always my drug Fumaderm available to your dermatologist to prescribe.  I'm sure they will let you self administer the Stelara when they are happy with your blood tests I guess they are just keeping a close eye on you to start with

Stay positive if you can and come back here for a dose of cheer anytime you feel low
Jim

Hi Amanda . it worked fantastic for me and I like you I had all the alternatives as well including 9 years on MTX .I found that it was only after the second injection of Stelara at 4 weeks that any improvements started to show and from then it improved so that at the first 12 week one I was really on the way. I self inject now and that gives me some flexibility . Best of luck and I am sure that you will be fine . By the way the only side effect I have is tiredness for a couple of days after the injection.

Dave

[Fred]

I was surprised that they don't let you take the medication home meaning I have to go back every time for my injections.

They probably will do once they are happy you can self inject, if not tell them you would rather self inject they may think you don't want to.

Re the tiredness I don't think you would notice it that quick, but like Dave said you may feel it for a few days after the injection. You may also get a flu like feeling, but once your body gets used to it you won't experience anything but clear skin.

[mataribot]

I'd be in bed 3 hours after injection. My derm said it's common.

[Plaque32092]

Amanda,

When I used Stelara and Humira I was out cold within 60 minutes for at least 2 hours and the next day I was always a little "slow" to start.

Good luck

[jiml]

Thank you  I'm starting to run out of options if this doesn't work.  I've already tried methotrexate, cyclosporine, humira, uvb, infliximab.  I was surprised that they don't let you take the medication home meaning I have to go back every time for my injections.

Hi Amanda
Was wondering if you have noticed any changes to your psoriasis yet. I know it's still early but are you feeling any better in yourself, and is there any improvement to your skin.
I'm not a stelara user so I don't know how often you have your shots and have you discussed yet the possibility of doing it yourself ( after training)