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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Ixekizumab trial

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Ixekizumab trial
mataribot Offline
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#61
Thu-17-12-2015, 19:22 PM (This post was last modified: Thu-17-12-2015, 19:24 PM by mataribot.)
Cosentyx has a known weight based problem (does not work as well). The drug referenced here has a rumored infusion version. This would help us fat people out.
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flagstare Offline Author
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#62
Tue-05-01-2016, 21:31 PM
Had my visit to hospital this week expecting to receive an injection But was given my assessment ( 1%) and handed my meds for this week and and my next lot as well and told to go home and do it myself ****** NOT expecting that !!!!!!!!. since my last report here I have had stiff knees for a few day's ( not sure if it's connected ) but I am on top of the world !!! pity it's not summer would have liked to be out in the sun wearing shorts and t shirt LOL ( that will just have to wait ).
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Fred Offline
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#63
Tue-05-01-2016, 21:39 PM
I wonder if giving you the shot to do yourself is part of the things they like to iron out on a trial. I have heard of (and had it myself to start with) where you can lose some of the recommended dose by getting it wrong or some coming out.

Most tend to self inject the bio's after training, I'm just thinking they are seeing if anything has changed on self administration.

Sorry just my head thinking out loud.
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jiml Offline
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#64
Tue-05-01-2016, 21:43 PM
(Tue-05-01-2016, 21:31 PM)flagstare Wrote: Had my visit to hospital this week expecting to receive an injection But was given my assessment  ( 1%) and handed my meds for this week and and my next lot as well and told to go home and do it myself ****** NOT expecting  that !!!!!!!!. since my last report here I have had stiff knees for a few day's ( not sure if it's connected ) but I am on top of the world !!! pity it's not summer would have liked to be out in the sun wearing shorts and t shirt LOL ( that will just have to wait ).

That's a shock Tom having to do it yourself ..have you done the deed yet ...... But a good assessment does the (1%) mean that little coverage of psoriasis
What did they say at the hospital about the stiff knees? Is it a recognised side effect

I know that elated feeling when you just want to be in shorts and short sleeve shirts it's a great feeling ....well the summers on its way
Good luck



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flagstare Offline Author
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#65
Tue-05-01-2016, 22:55 PM
Hi Fred - I think since the trial is to last more than a year it is easier all round if I self administer the med, stared at it for a while before feeling brave enough to carry out the deed. each time I have done it I never seem able to extract the needle straight out again , I guess it could be the angle i attack from. In all fairness there is no pain involved JUST THE THOUGHT !!!!!
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Fred Offline
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#66
Tue-05-01-2016, 23:01 PM
(Tue-05-01-2016, 22:55 PM)flagstare Wrote: Hi Fred - I think since the trial is to last more than a year it is easier all round if I self administer the med, stared at it for a while before feeling brave enough to carry out the deed. each time I have done it I never seem able to extract the needle straight out again , I guess it could be the angle i attack from. In all fairness there is no pain involved JUST THE THOUGHT !!!!!

Yes the thought puts a lot of people off. But I have found by reminding people it is only just under the skin and not in the muscle or a blood vein it doesn't sound so bad.

Some say an angle is best, I have found straight in works best for me. I stab it in quick then slowly inject the product before slowly removing it.

Once you have done a few it gets to be a simple process.
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flagstare Offline Author
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Psoriasis Score: Not Sure any more :¬)
Treatment: IXEKIZUMAB
#67
Tue-05-01-2016, 23:08 PM
Hi Jiml - Just wasn't expecting to be presented with the meds and told " GO FORTH AND BE BRAVE " , The 1% is a patch of dry skin on my leg which I missed when applying moisturizer and not even on an area that would be affected by plaque. ( nurse felt good that she could put something on my data sheets ) the stiff knees, I did report it to the nurse ant it has been noted. since you posted I checked the data for the trial and it does list sore / stiff joints as a possible side effect, I will get a better idea on my next visit on the 27th Jan which is a Dr / Consultants assessment. I'll give the shorts and T shirt miss for the moment coz it's a touch cool and not a little soggy here at the moment.
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jiml Offline
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#68
Tue-05-01-2016, 23:35 PM
(Tue-05-01-2016, 23:08 PM)flagstare Wrote: Hi Jiml - Just wasn't expecting to be presented with the meds and told " GO FORTH AND BE BRAVE " , The 1% is a patch of dry skin on my leg which I missed when applying moisturizer and not even on an area that would be affected by plaque. ( nurse felt good that she could put something on my data sheets ) the stiff knees, I did report it to the nurse ant it has been noted. since you posted I checked the data for the trial and it does list sore / stiff joints as a possible side effect, I will get a better idea on my next visit on the 27th Jan which is a Dr / Consultants assessment.  I'll give the shorts and T shirt miss for the moment coz it's a touch cool and not a little soggy here at the moment.
1% is good I think anyone with psoriasis would be happy with 1% Tom
So at least the side effects are known of stiffness so it's not concerning

And yes I would wait till spring before getting your legs out  Big Grin
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D Foster Offline
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#69
Tue-05-01-2016, 23:58 PM
If you got your legs out here at the moment you would have to put guttering round your socks.
I self Inject my Stelara and go in at a 45 degrees angle 4 fingers away from my bellybutton but the plus is that the needle is spring loaded so it withdraws itself. I used self injections for 3 years for MTX but went in straight but I had to pull the needle out. Where do you inject.
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Grizzly Bear Offline
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#70
Tue-05-01-2016, 23:58 PM
(Tue-05-01-2016, 23:08 PM)flagstare Wrote: " GO FORTH AND BE BRAVE "

I thought all you Scottish people were brave ? Big Grin

I know what you mean about wanting it to be the summer season and wearing shorts and short sleeved t-shirts flaggy, I've had imixiflam stuff and it's cleared my P up so much I can't wait for the sun to pop out.

Good luck flaggy. Thumb
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