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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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My Fumaderm Journey

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My Fumaderm Journey
Fleurgiddy Offline
Member


Posts: 31
Threads: 3
Joined: Nov 2015
Gender: Female
Location: Newport
Treatment: Fumaderm
#1
Sun-29-11-2015, 19:25 PM
I joined this site just one week ago, and have already appreciated its true value. Having suffered with psoriasis for 24 years it was well over due! But I'm glad I did. Never a friendlier bunch of crazy people have I encountered in one space (apart from maybe my Facebook friends), but the big difference is our shared experience of this unpleasant (and for many, distressing) condition.

If anyone should stumble upon this site just as I did, please stay and join in, you will be made very welcome Bigarm

And so my journey begins. I started taking Fumaderm on 5th November 2015, so I shall back track a little to create a fuller picture.

Week 1, Day 1. Very excited! One dose of Fumaderm initial each day for one week. No adverse effects to report for the week.

Week 2, day 1. So far so good. Two initial doses, all good for a few days.

Week 2 day 3(approx). My first flush today around 2.00pm - wow! Looked and felt like a beacon, lasted around 20 minutes. Nothing there after.

Week 2, day 4. My first cramp - and I felt it. Happened around same time, accompanied by a milder flush. Was unpleasant but copable, lasted around 10 minutes then as good as new.

-this pattern continued for the rest of that week-

Week 3 day 1. Increased initial dose to 3 per day. First day, same as above though symptoms lessening.

Week 3, day 2. Woken with flushes but not severe (quite pleasant!).  Later, nausea lasting around 20 minutes. Not pleasant!

-these symptoms continued through the course of the week, though for brief periods -

Week 4, day 1. Increased dose to 1 x 120mg. Normal day, slight cramps and flushes.

Week 4, day 2. Woke to severe nausea and cramps. Very painful and unpleasant, lasted approx 30 minutes and felt  fatigued afterwards - worse day so far. When passed, felt normal for rest of day.

Week 4, day 3. Woke poorly again, severe cramps and nausea, flushes now extending to hands accompanied with itching. Once passes, very tired then all OK.

Week 4, day 4. Woken with severe cramps and nausea, this time extending to sickness, extreme fatigue afterwards, slept and woke half hour later feeling normal again.

Week 4, day 5. Woken with cramps/nausea and sickness again. Mild flushing. Lasted approx an hour, felt OK once passed. No side effects for rest of day. Took decision to change timing of meds from dinner to lunch time to avoid morning side effects. Experienced brief cramps in evening but very mild.

Week 4, day 6 (today). Woke this morning with no side effects at all! Took meds at lunchtime, experiencing a little nausea and cramp whilst writing this and feel a flush coming on but very mild all considered, compared to morning experiences.

That is all for now folks, will update when necessary.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#2
Sun-29-11-2015, 20:13 PM
Fleurgiddy, one question.
Do you allow comments and questions in your experiences thread?
Some do, some don't as we know.


And one other thing.... Have you seen crazy people on the site? Where ??? Angry Just point them out and we'll get them Angry

Whistle
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Sun-29-11-2015, 20:20 PM
Thanks for starting your journal, I will be following with great interest,
Have you noticed any difference on your skin yet ?
I see Caroline has asked my other question about comments Big Grin
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Fleurgiddy Offline Author
Member


Posts: 31
Threads: 3
Joined: Nov 2015
Gender: Female
Location: Newport
Treatment: Fumaderm
#4
Sun-29-11-2015, 20:21 PM
Ha-ha, Caroline I would never tell for its the craziness that makes me feel at home  Rolaf.

Yes, I'm happy to take questions, comments and/or advice. It's what's helped me so far so I'd be pleased to do the same  Smile
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Fleurgiddy Offline Author
Member


Posts: 31
Threads: 3
Joined: Nov 2015
Gender: Female
Location: Newport
Treatment: Fumaderm
#5
Sun-29-11-2015, 20:26 PM
Hi Jim, I think I may just have noticed a slight clearing on my hands, but not sure if it's wishful thinking as yet! Not noticeable anywhere else yet though I'm not really expecting to for a few more weeks yet - or so I have been advised.

I'll be sure to let you know when I see any real changes! And boy am I looking forward to it Tongue
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#6
Sun-29-11-2015, 20:35 PM
(Sun-29-11-2015, 20:26 PM)Fleurgiddy Wrote: Hi Jim, I think I may just have noticed a slight clearing on my hands, but not sure if it's wishful thinking as yet! Not noticeable anywhere else yet though I'm not really expecting to for a few more weeks yet - or so I have been advised.

I'll be sure to let you know when I see any real changes! And boy am I looking forward to it Tongue

Thanks I only asked so it would help complete your record ....
I have high hopes for you and will keep my fingers crossed that you start to notice clearing soon, although it's not a fast worker but when it works it should give lengthy clearance, at least it has for me  Thumb
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Fleurgiddy Offline Author
Member


Posts: 31
Threads: 3
Joined: Nov 2015
Gender: Female
Location: Newport
Treatment: Fumaderm
#7
Sun-29-11-2015, 20:57 PM
Thanks, I appreciate that  Thumb. I'm should mention I'm due to get my Bloods done tomorrow, will call the nurse for results and a chat on Tuesday so will report the outcome then. Fingers crossed all will be OK so far...
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#8
Sun-29-11-2015, 21:06 PM
(Sun-29-11-2015, 20:57 PM)Fleurgiddy Wrote: Thanks, I appreciate that  Thumb. I'm should mention I'm due to get my Bloods done tomorrow, will call the nurse for results and a chat on Tuesday so will report the outcome then. Fingers crossed all will be OK so far...

Great fleurgiddy when you speak to them do ask for specific values particularly of the lymphocyte count
and liver and kidney function. Then you can see for yourself what effect the Fumaderm is having on your blood as time goes on. You will notice that I always publish my lymphocyte count as that is an important indicator.

With the knowledge of what they are in relation to the previous test you can begin to judge your own tolerance to Fumaderm and later if you feel you need to increase or decrease your dose, you will better be able to discuss this with the dermatologist if you know the way your blood is trending
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#9
Sun-29-11-2015, 21:08 PM
(Sun-29-11-2015, 21:06 PM)jiml Wrote:
(Sun-29-11-2015, 20:57 PM)Fleurgiddy Wrote: Thanks, I appreciate that  Thumb. I'm should mention I'm due to get my Bloods done tomorrow, will call the nurse for results and a chat on Tuesday so will report the outcome then. Fingers crossed all will be OK so far...

Great fleurgiddy when you speak to them do ask for specific values particularly of the lymphocyte count
and liver and kidney function. Then you can see for yourself what effect the Fumaderm is having on your blood as time goes on. You will notice that I always publish my lymphocyte count as that is an important indicator.

With the knowledge of what they are in relation to the previous test you can begin to judge your own tolerance to Fumaderm and later if you feel you need to increase or decrease your dose, you will better be able to discuss this with the dermatologist if you know the way your blood is trending

Yes, it is very good to make a recording of your measurements. If Jim hadn't said it, I would have. Big Grin
Quote
Fleurgiddy Offline Author
Member


Posts: 31
Threads: 3
Joined: Nov 2015
Gender: Female
Location: Newport
Treatment: Fumaderm
#10
Sun-29-11-2015, 21:17 PM
Great, thanks both, I will do that, though no doubt I'll be asking advice on how to understand them when received Doh
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