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A New Member

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A New Member
K Chicken Offline
Newbie


Posts: 3
Threads: 1
Joined: Jul 2016
Gender: Male
Location: West Midlands
Treatment: Various prescribed lotions & potions
#1
Sun-17-07-2016, 22:24 PM
Hi all,

Another new member here, I'm Abz (Abdul) from just outside of Birmingham (UK).  Now I myself am not a sufferer of Psoriasis but my wife is.

I've joined basically to get a better understanding of this condition and maybe some advice when it comes to treatments, etc.

About my wife, she's 26 years old and has suffered with psoriasis for around 10 years it initially started as scalp psoriasis but within the last 1-2 years she now has arthritis and plantar fasciitis due to the psoriasis, and now the psoriasis has spread to legs arms and torso. It really is getting her down and I will do absolutely anything to help.

We've been to the Dr's many times and tried all their lotions and potions.  A while back she was on Methotrexate but this caused her hair to start falling out, bruising easily and generally feeling run down so she's stopped taking it.  They have offered her Humeira injections but, she believes the Methotrexate was poison enough she doesn't want to inject anything.

The arthritis is really getting her down as she says she feels much older than she is and might not be able to go through another pregnancy with the pains she's experiencing.

Ideally she would like to go down a natural treatment route, but which one??? I've done so much reading and research on the internet my eyes have turned square and I no longer know the difference between which is genuine and which is a scam.

I did come across one cream that seemed to be a wonder cream every review I read was positive, results within days, all natural (and legal) ingrediants, very very reasonably priced (some moisturizers are dearer), some people saying you only need to apply the cream two or 3 times a year!!!! This sounded like most of my wifes' answers in a tub, but and it's a big but, the EU bufoons banned this cream from being produced and sold in Europe.  I even contacted the manufacturers thinking they may sell the product outside of the EU, but no they've stopped making it altogether.  

Some of you may know it or have tried it Potters Psorasolv, if anyone has tried it please can you tell me the results you got, if they're as good as I've read I will buy the ingredients or travel the earth to get them and mix it myself that's how much I want to help my wife.

Anyway, apologies for the long first post, I hope you guys don't mind that I'm not a psoriasis sufferer myself, but I look forward to speaking and getting on with you all.

Kindest regards

Abz
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Sun-17-07-2016, 22:39 PM
Hello Abz  Welcome to Psoriasis Club.

I have just sent you an email about having to change your username.

As for the Bio (injections) they are better than methotrexate in my opinion. Yes all treatments will have side effects, but I would suggest if your wife is being offered a Bio such as Humira she gives it a try. You can read more about the Bio's here: Biological Treatments For Psoriasis

As for the "Wonder Creams" I wouldn't waste your money on them as they are usually just a very cheap product made very expensive and won't give any long lasting results. A good quality coconut oil will do the same job. Also be careful of reviews, you get genuine ones here though.

You could have a look through Natural Treatments For Psoriasis there may be something there she would like to try, you won't find any scams there as we are very proactive against any scams. But your wife is better suited being treated by a dermatologist.

And No we don't mind you being a member for someone else, we have others here that do the same. And you probably suffer as much as us albeit in a different way by putting up with us. So you are welcome.

Regards.

Fred.



EDIT

Potters Psorasolv Ointment ingredients

Active ingredients: starch BP 5% w/w, Sublimed Sulphur BPC 7% w/w, Zinc Oxide BP 7% w/w, Liquid Extract Poke Root (1:1 37% alcohol) 0.5% w/w, soft extract Clivers 100=3 3% w/w. Also contains anhydrous woolfat, hydrous woolfat, liquefied phenol and yellow soft paraffin.

Don't wast your money it won't work for long and will cost a lot.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Sun-17-07-2016, 22:49 PM (This post was last modified: Sun-17-07-2016, 22:58 PM by jiml.)
Hi Abz and  Welcome to the club, of course you are welcome, it seems great to me the lengths you are going to help your wife ...
I can understand her concern at not taking strong drugs if you are considering having children, the natural route is always worth a try the worst that can happen is her psoriasis doesnt clear up

I would be very wary if anything cream that people say works for them....you are far better here where everything discussed is personal genuine experience

The other day Alan posted a useful thread that may be of interest How I Cured My Psoriasis By Diet
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,593
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#4
Sun-17-07-2016, 22:59 PM
Hi Abz,

Welcome to the club, I appreciate your drive to help your wife. Thumb

Unfortunately, if you want to have (more) children, most psoriasis medication is out of the question. That makes it difficult to advise you, and maybe the route via the Diet might be the way to try. Just like Jim already said.

Hopefully you will find something for your wife, keep on asking questions !

Cheers,
Caroline.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#5
Sun-17-07-2016, 23:05 PM
On the point of trying for a baby. Caroline and Jim are right there isn't much apart from diet, but the good thing with the bio's is that your wife can take them for say 6 months - a year to get some relief especially with the psoriatic arthritis. She could then stop taking it whilst trying for a baby an go back on again after the pregnancy.

Just thought I would throw it out there as a possible option depending on how quick you both wanted to try for the baby.
K Chicken Offline Author
Newbie


Posts: 3
Threads: 1
Joined: Jul 2016
Gender: Male
Location: West Midlands
Treatment: Various prescribed lotions & potions
#6
Sun-17-07-2016, 23:08 PM
Hi all

Thank you for your fast, informative and warm replies it is very much appreciated. 

My wife would like another baby, I on the other hand would be happy with a kitten but I never win an argument so looks like a baby it is (in good time though).

Our last appointment at the hospital we mentioned that we/she would like to try for a baby and the dr said my wife will be ok taking Humira up until the third trimester, personally me and wife think of being completely drug free during pregnancy.

I thought potters psorasolv was to be good to be true, I feel like I've wasted days all the reading I've done when all the information is right here and mainly all first hand experience. 

Thank you again for the warm welcome
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#7
Sun-17-07-2016, 23:19 PM
(Sun-17-07-2016, 23:08 PM)K Chicken Wrote: Hi all

Thank you for your fast, informative and warm replies it is very much appreciated. 

My wife would like another baby, I on the other hand would be happy with a kitten but I never win an argument so looks like a baby it is (in good time though).

Our last appointment at the hospital we mentioned that we/she would like to try for a baby and the dr said my wife will be ok taking Humira up until the third trimester, personally me and wife think of being completely drug free during pregnancy.

I thought potters psorasolv was to be good to be true, I feel like I've wasted days all the reading I've done when all the information is right here and mainly all first hand experience. 

Thank you again for the warm welcome

Have the Kitten they are easier.  Big Grin

I'm not sure about when you should stop the bio's but Humira shots are every two weeks so it would give her plenty of time to come off should she get pregnant. I'm biased as I love the bio's as they gave me back my life, so I would say give it a go get her psoriatic arthritis sorted and then go for the baby. Humira works fast and if she got rid of the pain and clearer skin she would be in a happier place.

Yes you get honest opinions and first hand experience here as there is no money involved.  Wink

Good luck, have a good look around and shout out anywhere someone will always answer or point you in the right direction. And if you venture in the [Group Specific] you will find others that like Kittens and Babies. What more could you want.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#8
Sun-17-07-2016, 23:27 PM
Yes you can spend a lot of energy chasing a "cure" and there's always someone ready to empty your pockets...... Whistle
Whereas here as you have seen and what is unique about this site is that there is no advertising  , no spam, no internet nasties ....just factual reporting of treatments and sufferers experiences, which are all genuine
We are a great support group, with friendly people offering their opinions on the full range of treatments

Keep reading here you will learn lots of information .....I learnt more about psoriasis in my first month here than I had learnt in my  previous 50 years
Jim
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#9
Mon-18-07-2016, 02:45 AM
Welcome Abz! Your wife is very lucky to have such a supporting husband. There are many options to try and what works for one doesn't always work for another but you'll find lots of helpful info here.

You mention your wife has arthritis, do you mean psoriatic arthritis? (I do not have psoriatic arthritis but I do have orthopedic arthritis.) There are others here who can comment on this more than I, but I wouldn't want to delay treatment with arthritis to help prevent as much damage as possible to the joints. Since you plan on a little one in the future (my bet is on the baby, wives usually win Big Grin ) then if it were me I think I'd want to be as clear as possible before starting that journey as treatments (even dieting) may have to stop or change during pregnancy.

Good luck and I hope you keep us updated.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#10
Mon-18-07-2016, 11:17 AM
(Mon-18-07-2016, 02:45 AM)Kat Wrote: You mention your wife has arthritis, do you mean psoriatic arthritis?

Good point Kat I just took it for granted it would be psoriatic arthritits. If it's another type of arthritis I don't know how well Humira would work for it.
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