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Psoriasis Club › HealthHealth Boards › Introductions v
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G'Day from Sydney

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G'Day from Sydney
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#11
Wed-20-07-2016, 11:26 AM
(Wed-20-07-2016, 11:11 AM)Fred Wrote:
(Wed-20-07-2016, 10:57 AM)Bill Wrote: Aussie Bill, Fred? You make me sound like a friggin koala.

What you mean you're not a Koala. I thought you was a cute little Koala in a white coat.  Snigger

Snigger
dyorke Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 182
Threads: 4
Joined: Apr 2016
Gender: Female
Location: UK
Treatment: Acitretin
#12
Wed-20-07-2016, 12:35 PM
Hi AaLF
Welcome to the Club... as you can already see we are all friendly (some are a bit mad ! )
and you will find lots of helpful information and personal experiences to help you.

Good luck and hope to see you progress !

Tink x
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#13
Wed-20-07-2016, 12:37 PM
Yes, a white coat with long sleeves and buckles, but no square head to go with it. Have you tried eating some gum leaves, Fred? The DMF is working a treat for me along with your coconut oil. The patch on one knee I can only distinguish by rubbing the edge of a fingernail over the skin. I hope you can get something good for yourself before it gets cold again.

Cheers,

Bill
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#14
Thu-21-07-2016, 13:34 PM
Welcome Aalf!

Coconut oil makes a great moisturizer (although I find it a bit messy to use on my scalp, but if you have short hair it's easier.)

There's a lot of info here on different types of treatment including diet suggestions as well as a nice bunch of people who are always willing to share what worked for them. Glad you found your way here. Smile
Fiftyplus Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 670
Threads: 3
Joined: Apr 2016
Gender: Female
Location: Liverpool
Treatment: Nothing
#15
Thu-21-07-2016, 23:25 PM
Hello there Aalf,

I agree with the coconut oil for a moisturiser and it sinks in really well...it has however put me off eating a Bounty but that can only be a blessing.

Welcome to the club and as you can see from some of the replies things tend to go off subject a little, lol, but coming on here does lift your spirits, so enjoy.

Fifty
AaLF Offline Author
Novice


Posts: 6
Threads: 2
Joined: Jul 2016
Gender: Male
Location: Sydney
Treatment: Licorice + fenegreek
#16
Thu-28-07-2016, 22:18 PM
Thanks for the replies.   I agree that diet/natural is in the minority.  Have seen two dermatologists.  They only have a one-track mind.  Cortisone.  And I'm of the opinion cortisone is a long-term loser for P.

So is there a dermatology solution without cortisone?
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#17
Thu-28-07-2016, 22:24 PM
(Thu-28-07-2016, 22:18 PM)AaLF Wrote: Thanks for the replies.   I agree that diet/natural is in the minority.  Have seen two dermatologists.  They only have a one-track mind.  Cortisone.  And I'm of the opinion cortisone is a long-term loser for P.

So is there a dermatology solution without cortisone?

Sounds like you have bad luck with dermatologists. I'm not sure how your system works but there are lot's of choices.

Including and usually given in this order.

#1 Creams for example: Dovobet And Dovonex (What's the difference ?)

#2 Light therapy.

#3 Oral Treatments For Psoriasis

#4 Biological Treatments For Psoriasis
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#18
Thu-28-07-2016, 23:52 PM
Hi Aalf yes as Fred has pointed out there are many options and it does depend on the severity of your psoriasis what they are likely to offer
Cortisone creams tend to be a first step for mild psoriasis and are the least potent creams they can prescribe
And you will be lucky if they clear your skin ..you said in an earlier post that the dermatologists will only vary the cortisone treatment they will offer...
Like Fred I don't know your system but I know that if the psoriasis is spreading over the rest of your body after previously being just in your scalp..it's time to move on to a different treatment and there are many as Fred has pointed out

Personally I would get on to my dermatologist and tell them that cortisone is less than useless and you need to be on something to tackle the root of the problem and a good place to start is with an oral systemic treatment. But not knowing how things work in Oz it's difficult to know their protocol ...but I would think cortisone is their cheap starting position ...make a fuss and read up on here about the various treatments that are available and go and argue for something to help you, not something to keep their budget down

But it's up to you the natural route might just work , but I have never had the will or inclination to deny myself the food I like
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#19
Fri-29-07-2016, 09:36 AM
Exercise, take D3 supplements, lose weight, and eat plenty of cabbage, cauliflower and broccoli. If you can do that and improve your liver function you might give yourself more treatment options if the lifestyle changes dont deliver for you. If your disease is getting to the point where your dermatologist would consider systemics then poor liver function may be a hurdle.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#20
Fri-29-07-2016, 11:00 AM
(Fri-29-07-2016, 09:36 AM)Bill Wrote: If your disease is getting to the point where your dermatologist would consider systemics then poor liver function may be a hurdle.

Good point. I forgot you mentioned poor liver earlier.
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