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Psoriasis Club › HealthHealth Boards › Introductions v
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Hi from Jen

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Hi from Jen
JennyBee76 Offline
Newbie


Posts: 2
Threads: 1
Joined: Nov 2016
Gender: Female
Location: Michigan
Treatment: Topicals, Biologics
#1
Thu-10-11-2016, 13:37 PM
Hi I am Jen. I've had psoriasis since I was 10 years old (now 40). I've got guttate, plaque, inverse, scalp,PsA, and I had bout of Von Zumbusch.

Since it's been 30 years, I've been on a million different creams, ointments, etc. I'm currently only using topicals but I'm planning to return to biologics. I'm in the midst of a horrible flare.

Beyond psoriasis, I am a mom to two kids, a wife, a school paraprofessional to a girl with CP, and an avid reader.
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Thu-10-11-2016, 13:51 PM
Hello Jen  Welcome to Psoriasis Club.

I'm a big fan of the Bio's they gave me my life back. I found the creams just never kept it in check for long.

Enjoy yourself here, we have a good mix of people and if you ever need a break we have an active [Group Specific] section. If you do venture in there, I'm the sensible one.

Regards.

Fred.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Thu-10-11-2016, 13:53 PM
(Thu-10-11-2016, 13:37 PM)JennyBee76 Wrote: Hi I am Jen. I've had psoriasis since I was 10 years old (now 40). I've got guttate, plaque, inverse, scalp,PsA, and I had bout of Von Zumbusch.

Since it's been 30 years, I've been on a million different creams, ointments, etc. I'm currently only using topicals but I'm planning to return to biologics. I'm in the midst of a horrible flare.

Beyond psoriasis, I am a mom to two kids, a wife, a school paraprofessional to a girl with CP, and an avid reader.

Hi Jen and a big  Welcome to the site.....I have to admit you had me running for my dictionary to find Von Zumbusch psoriasis ...but I learn something every day

Sorry you are having a big flare at the moment I hope whatever you go on will clear it up

You say you may go back on biologicals ...why did you stop them ?
Which biological do you hope to get ....if you can get Stelara of better still Cosentyx it will be good as they have a different method of working to most of the other biologicals
See here Biological Treatments For Psoriasis

Have a good look around and if you have any questions just shout, as we have a friendly group of members always happy to respond

Another way to stay in Touch is with our monthly newsletter Groups free to all members that opt to receive it

JennyBee76 Offline Author
Newbie


Posts: 2
Threads: 1
Joined: Nov 2016
Gender: Female
Location: Michigan
Treatment: Topicals, Biologics
#4
Thu-10-11-2016, 14:00 PM
No worries, most people don't know about VZ. My derm sees one case a year at most. I stopped biologics because I needed a break mentally. I'm Tired of having psoriasis and all the issues that go with it. Silly I know but after 30 years, I was tired. Now
My body is paying me back though! Ugh. 

Stelara has been the best for me. Enbrel and Humira don't work for me; and methotrexate stopped working after a long period on it.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#5
Thu-10-11-2016, 14:16 PM
Many members here have great results with stelara . I hope you do as well . Do let us know Thumb
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#6
Thu-10-11-2016, 15:11 PM
Hi Jen,

Welcome to Psoriasisclub.
Not much to inform you. You seem to be a pro in psoriasis, unfortunately.
But in that case we will we able to learn from you whenever you start again on bio's.
How long have you been using Stelara?

Caroline
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#7
Thu-10-11-2016, 17:23 PM
[Image: m0152.gif][Image: m0152.gif][Image: m0152.gif] [Image: m1277.gif] JennyBee76 [Image: t67107.gif] [Image: m0152.gif][Image: m0152.gif][Image: m0152.gif]

Nice to see you Jen Wave

I'm the insane one on here Whistle

Never heard of Von Zumbusch, unless he was a german general ? Confused

You say that you are a school paraprofessional, is that like an Airborne school teacher where you jump out of an aircraft to avoid the traffic ? Big Grin

Hope you enjoy yourself on here Jen, we're all sufferers of psoriasis and ask any questions you may have ?

I'm on stelara, it's brilliant for clearing P. I hope that you get the right treatment Jen Thumb

GB GB

[Image: g41032.gif]
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#8
Thu-10-11-2016, 17:25 PM
Nice raccoon!

Hi Jen, it's very nice to meet you, I hope you like it here Smile
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#9
Sat-12-11-2016, 22:16 PM
Hi Jen  Wave welcome to the club.
I can understand your hesitance to go back on some form of treatment, but chances are the P won't clear up on its own. Nip it in the bud before it starts to take over your life.
Don't forget the off topic section to help lighten the load  Big Grin .
dyorke Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 182
Threads: 4
Joined: Apr 2016
Gender: Female
Location: UK
Treatment: Acitretin
#10
Thu-17-11-2016, 13:29 PM
Hi Jen

Welcome to the club -  Hope you find the right treatment plan

Keep us updated  xx
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