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Darcy Offline
Member


Posts: 10
Threads: 2
Joined: May 2017
Gender: Female
Location: California
Treatment: Stelara
#1
Tue-23-05-2017, 07:33 AM
Hello everyone!
I was diagnosed with psoriasis about 3 years ago after having a bout with strep throat. A few months later I noticed these weird itchy, scaly patches on my calves and hairline...made an apt. with my dermatologist and she diagnosed it as psoriasis. I'd never had it before and I'm in my 50's.

It was manageable at first but in the last year, it has been spreading to more of my calves and the itching has intensified. I've been using topical steroids (Taclonex) and a Vit. D cream. I've gone through about 11-12 Exemer light therapy sessions but the itching, scaling, stinging and burning sensations have turned me off to continuing....plus, my legs now look like leopard skin! The Dr. has suggested Stelara but not sure I want to go down that path. I hate the thought of the side effects...thank you to all who have posted on here your experiences with it....seems like the side effects can be worse than the disease. I really don't want to end up damaging other organs (kidneys? liver? etc) in trying to clear up my skin.

I've cleaned up my diet, thinking that would help...not noticeably other than lost some weight (not complaining). Read the threads on here about eliminating gluten, sugars, etc. which is what I have done. Eliminated wine/alcohol for awhile but sometimes, you just need that lil' sumthin' sumthin'. Aiming for just the weekends for now. Someone posted about "leaky gut" which I've been hypothesizing about, as well. Been on probiotics for about 7 months. After I started on those, the onset of PA went away! #Win!

That's my story...look forward to all the great information on this site and thank you, everyone, for sharing your stories, trials, and information!
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#2
Tue-23-05-2017, 08:13 AM
Helly Darcy,

Welcome to Psoriasisclub. I hope you will enjoy yourself over here.

Thanks already for the very positive introduction, you seem to have already been reading around.

Unfortunately I will have to keep this welcome short, as I am at my work so I am expected to be working. Wink

Others will pick up and welcome you during the day.

Wave
Caroline
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#3
Tue-23-05-2017, 09:18 AM
Hi Darcy! Nice to meet you Smile
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#4
Tue-23-05-2017, 10:09 AM
Welcome, Darcy.

"Do I go on systemics?". That is the big question for anyone not controlling things with topicals. Had I known the difference systemics could make for me I'd have gone on them twenty years ago. I have eliminated almost all of the disease with systemics. For me, dietary triggers are a sign of an out of control disease, and dietary measures have failed as a treatment. But that is me, and you have to make your own choices. If you have worries about the risks then stay as you are. Systemics are not to be taken lightly, so you need to commit to a decision. So learn as much as you can about the disease, its management, and the experience of others with it.

Cheers
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#5
Tue-23-05-2017, 10:12 AM
Hello Darcy Welcome to Psoriasis Club.

Yes we have a lot of information and news but the best information is from our members, so don't hesitate to share you journey with others if you wish.

Regards.

Fred.
dyorke Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 182
Threads: 4
Joined: Apr 2016
Gender: Female
Location: UK
Treatment: Acitretin
#6
Tue-23-05-2017, 12:40 PM
Welcome Darcy - nice to meet you, you will find a nice group of people here all willing to listen  Welcome
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#7
Tue-23-05-2017, 15:36 PM
Hi Darcy, Welcome to the club.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#8
Tue-23-05-2017, 22:52 PM
(Tue-23-05-2017, 07:33 AM)Darcy Wrote: Hello everyone!
I was diagnosed with psoriasis about 3 years ago after having a bout with strep throat. A few months later I noticed these weird itchy, scaly patches on my calves and hairline...made an apt. with my dermatologist and she diagnosed it as psoriasis. I'd never had it before and I'm in my 50's.

It was manageable at first but in the last year, it has been spreading to more of my calves and the itching has intensified. I've been using topical steroids (Taclonex) and a Vit. D cream. I've gone through about 11-12 Exemer light therapy sessions but the itching, scaling, stinging and burning sensations have turned me off to continuing....plus, my legs now look like leopard skin! The Dr. has suggested Stelara but not sure I want to go down that path. I hate the thought of the side effects...thank you to all who have posted on here your experiences with it....seems like the side effects can be worse than the disease. I really don't want to end up damaging other organs (kidneys? liver? etc) in trying to clear up my skin.

I've cleaned up my diet, thinking that would help...not noticeably other than lost some weight (not complaining). Read the threads on here about eliminating gluten, sugars, etc. which is what I have done. Eliminated wine/alcohol for awhile but sometimes, you just need that lil' sumthin' sumthin'. Aiming for just the weekends for now. Someone posted about "leaky gut" which I've been hypothesizing about, as well. Been on probiotics for about 7 months. After I started on those, the onset of PA went away! #Win!

That's my story...look forward to all the great information on this site and thank you, everyone, for sharing your stories, trials, and information!

Hi Darcy good to meet you and say  Welcome to the club .....sorry I'm rather late to meet you as I've been out all day
I can understand your reluctance to go onto biological drugs, although they are very safe if monitored properly and usually if they start to cause problems the dermatologists will take you off them and allow your body to recover
You can read about the biological drugs here Biological Treatments For Psoriasis
Stelara is very well reported here ....although you are more likely to read about problems that people have taking any  drug on a forum,  because that's why people come to forums to see if others have the same reaction to the drug......there will be thousands that use the drugs and never have any real problems ....they don't go looking for answers on a forum ...so don't let the odd story of bad side effects colour your judgement about a safe way forward

Bill mentioned systemic drugs there are several of those that might work for you before you move on to biological Stelara .....you can read about those here Oral Treatments For Psoriasis
Yes there are some genuine posts here about natural treatments and diet , not a thing I have tried as I have no willpower and enjoy all the wrong things ....but have a read of the natural treatment board here Natural Treatments For Psoriasis
I look forward to reading more from you, to see which way you decide to go

Jim Thumb

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