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Hi! from Angie

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Hi! from Angie
angesoph Offline
Newbie


Posts: 1
Threads: 1
Joined: Jun 2017
Gender: Female
Location: Sydney, Australia
Treatment: Coal Tar
#1
Thu-01-06-2017, 06:54 AM
Hi everyone!

I am Angie from Sydney, Australia! I am 32 years old and am a psoriasis sufferer.

I discovered this forum while I was doing my weekly search into different options to treat my psoriasis. 

I have had psoriasis for 8 years now, when I was pregnant. Initially, it was on different spots on my back, which didn't really bother me until it started appearing on my arm and now my leg and knees. 
The problem I have is being able to afford creams and wanting to ideally purchase my own UV light that I can do treatment at home.
I find that the prescription creams and coal tar help more than the natural method, but I find that my psoriasis likes to attack my body when I am on the off chance of not having any creams :(

But anyway, this is me and my journey.

Angie
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#2
Thu-01-06-2017, 08:16 AM (This post was last modified: Thu-01-06-2017, 08:17 AM by JohnB. Edited 1 time in total.)
Hi Angie and a warm welcome to our club.  Wave 

You will find us a friendly bunch. Fred the sites owner does an excellent job keeping us free of trolls and scammers. Pretty nearly everyone on here suffers from some form of psoriasis or other and will happily share their experience of this disease.
Like yourself I found the older coal tar treatments better than the more up to date topical. Just be careful if you decide to go down the home UV route. Although some people do get significant clearance, it shouldn't be considered as a long term treatment as it can have some nasty side effects. And let's face it Sydney isn't exactly shy on the natural sun  Whistle . If that doesn't help, a expensive lamp won't. I am assuming your are under the care of a dermatologist? If not they have an arsenal treatments available to them both topical and systemic.
Feel free to ask any questions and have a good hunt through the site there is a wealth of information. 
Don't forget the off topic area, you will often find somebody in the bar if you need some light refreshment.
JohnB
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Thu-01-06-2017, 08:50 AM
(Thu-01-06-2017, 06:54 AM)angesoph Wrote: Hi everyone!

I am Angie from Sydney, Australia! I am 32 years old and am a psoriasis sufferer.

I discovered this forum while I was doing my weekly search into different options to treat my psoriasis. 

I have had psoriasis for 8 years now, when I was pregnant. Initially, it was on different spots on my back, which didn't really bother me until it started appearing on my arm and now my leg and knees. 
The problem I have is being able to afford creams and wanting to ideally purchase my own UV light that I can do treatment at home.
I find that the prescription creams and coal tar help more than the natural method, but I find that my psoriasis likes to attack my body when I am on the off chance of not having any creams :(

But anyway, this is me and my journey.

Angie

Hi Angie and  Welcome to the club you will find us a very friendly group of fellow sufferers. And this site gives us a platform to share our experiences and support each other through the good periods and the bad periods with the disease, there is so much information here, about the disease and its treatment. If you need any help navigating around the site or a question just shout out and someone will reply

Creams and light treatment will give some temporary relief, but ideally you should see a dermatologist and explain that the disease is affecting your life badly and it's time to move on to something to restore your self esteem check out the treatments available here Prescribed Treatments For Psoriasis as the over the counter creams and scams that are advertised are usually no more than expensive moisturisers, and will just empty your purse

Good luck


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Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#4
Thu-01-06-2017, 09:54 AM
G'day Angie and Welcome


Please, do not buy your own UV light Confused

You need to have that sort of a thing under controlled circumstances, ie; Dermatology departments.

As our John said, you have that big hot orangey thing up in the sky called a sun to help you Big Grin

If you do try and purchase a uv lamp, i'll call my cousins, the Koala bear family and get them to gang up on you, OK ? Whistle

Enjoy yourself on here Angie Thumb

GB GB
pingu Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 429
Threads: 19
Joined: Jun 2015
Gender: Male
Location: UK
Treatment: Dovobet
#5
Thu-01-06-2017, 10:57 AM
Hi Angie and welcome.

Everyone here is very supportive and friendly.

Surprised you don't notice a difference in the natural sun. I know I did and went down the home UV route with a specialised lamp after lots of research, very easy to burn etc. I wouldn't have if I had sun but the UK is considerably different to Sydney.
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#6
Thu-01-06-2017, 12:12 PM
Hi, nice to meet you!
Wave
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#7
Thu-01-06-2017, 12:15 PM
Hi Angie,

I can second Andy re the UV light. Besides, there is all the sun you need in Australia. You can get Stockholm tar from horse supply shops. It is the basis of tar based creams and shampoos. Most importantly, see a dermatologist and get a treatment plan devised for yourself. It may be that topicals are all you need, but if they are not up to the job you should be accessing the health system. It is not perfect, but it is very likely your best option.

Best wishes.
Fred Online
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,206
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#8
Thu-01-06-2017, 12:44 PM
Hello Angie Welcome to Psoriasis Club.

Be very careful self treating especially with your own UV light it could actually make your problem worse. I don't know how you health system works but like Bill said "it's not perfect" but it's best to get treated properly.

Have a good look around and feel free to start new threads to ask specific questions, none of us a medicaly trained but between us we have a lot of hands on experience on dealing with psoriasis.

Regards.

Fred.
dyorke Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 182
Threads: 4
Joined: Apr 2016
Gender: Female
Location: UK
Treatment: Acitretin
#9
Wed-07-06-2017, 12:36 PM
Hi Angie

welcome to the club - you will find lots of info here - just keep asking questions and you will receive answers with our personal experiences

Tink xxx
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#10
Fri-09-06-2017, 15:28 PM
Hi Angie, Welcome to the club.
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