Newbie with an oldie disease

[Spotless]

Hi Spotless! Nice to meet you  

I started on Stelara early this year after trying Humira.

I cleared within about a week, and still clear at the mo. It's been amazing.

Sadly I've had a flare of psa symptoms which I attribute to going on Stelara but the derm and rheumy I've just seen say it's not the drug at fault.

I think most people don't experience this so don't worry about it, and I hope it clears your skin too  

Hi Turnedlight,
Thanks for sharing your experience with me. Did you have any side effects using Stelara?
So your PSA started when you started using Stelara? Mine stated towards the end of using Humira. It was very painful when I was completely off Humira waiting for Stelara to start. I taking Naproxen which has helped with the pain and can walk now but my right foot is swollen and I have a sausage finger which doesn't bend. It's just awful having one disease and then having another one now too. Totally unfair!

I haven't had any other side effects, though maybe I'm a bit more lethargic than I am when not on any treatment - but it's hard to say while you're in treatment!

I did have some aspects of psa before - I have had a carpal tunnel op., also had plantar fasciitis and Achilles tendinitis. But I had not had any lower back pain before, and this particularly affects my derrière so it's painful to sit very long, or at all on hard surfaces! I'm told this is tendon related also. But as I say, my docs refuse to ask the drug manufacturers if it's related, citing the fact they actually use Stelara against psa. I'm on meloxicam for it which helps but I'd rather know for sure if it's the Stelara. Could I suppose be a complete coincidence..

From what I've read Stelara is suppose to help PsA also but isn't very effective it's better for psoriasis.
I hope your arthritis gets better.

[artemie]

Welcome spotless, hope the Stelera is the drug for you, hopefully you can update us every now and again. Everybody fares different on it, it seems.
if not, there's always gin and tonic =]

[Spotless]

Good morning club!
So I had my first injection yesterday was very nervous but it was painless, sharp sting just like any other needle and it was quick.
No side effects to report. Thank goodness.
Woke up with sore joints though not sure if it's related.
Have been on a healthy diet since flare up 3weeks ago and started drinking turmeric lemon tea yesterday. 
Let's hope all these remedies combined will give me super powers to fight this Psoriasis!

[jiml]

Good morning club!
So I had my first injection yesterday was very nervous but it was painless, sharp sting just like any other needle and it was quick.
No side effects to report. Thank goodness.
Woke up with sore joints though not sure if it's related.
Have been on a healthy diet since flare up 3weeks ago and started drinking turmeric lemon tea yesterday. 
Let's hope all these remedies combined will give me super powers to fight this Psoriasis!

Hey great to get the first injection out of the way .... glad it all went well. Here's to a fast clearance and to your new super powers to fight psoriasis
Good luck

[Caroline]

Good morning club!
So I had my first injection yesterday was very nervous but it was painless, sharp sting just like any other needle and it was quick.
No side effects to report. Thank goodness.
Woke up with sore joints though not sure if it's related.
Have been on a healthy diet since flare up 3weeks ago and started drinking turmeric lemon tea yesterday. 
Let's hope all these remedies combined will give me super powers to fight this Psoriasis!

Good Luck !!
I hope the Stelara will do a good job for you.

[D Foster]

Good morning club!
So I had my first injection yesterday was very nervous but it was painless, sharp sting just like any other needle and it was quick.
No side effects to report. Thank goodness.
Woke up with sore joints though not sure if it's related.
Have been on a healthy diet since flare up 3weeks ago and started drinking turmeric lemon tea yesterday. 
Let's hope all these remedies combined will give me super powers to fight this Psoriasis!

Good Luck !!
I hope the Stelara will do a good job for you.    

Good luck from me as well , you may feel a little tired for a while after the injection, see about doing you're own injections as it's much easier especially if you do it sitting down into your stomach, no problems at all.

[Fred]

Hello Spotless   to Psoriasis Club.

Great to see you have stopped lurking and join us, you will find us a friendly bunch willing to share information and support. I see you mentioned you have read my threads about Stelara so I won't bore you with it again, and will wish you good luck.

Don't hesitate to start another thread in Prescribed Treatments For Psoriasis to track your progress if you wish. You can continue here of you want but Intros tend to get missed with updates and can get a bit muddled up.

But it's your choice.

Regards.

Fred.

[JohnB]

Hi Spotless and a warm welcome to our Club. Afraid I can't help any as I've not got to the Bio stage yet, I'm currently on Acitretin. Enjoy your stay with us 

[Cory]

Hi,
I thought I'll join the club been lurking here for a few days. I start Stelara today and very nervous about yet another biologic that may not work for me. Been on Enbrel and Humira.
I've had psoriasis for as long as I can remember and I've been on everything that's possible to treat psoriasis. Unfortunately after Humira stopped working I have developed arthritis (god hates me) and this is another ball game. When you can't walk that's just a different story.
So here all flared up waiting for the nurse to come inject me. It's taken 3 weeks to process through the NHS here in London I don't know if that's normal but it has been terrible waiting to start.
So here I am and so happy to read really good success stories about Stelara.

Cheers!
A girl who really really wants to be Spotless!

  Hello spotless.  New to the site and reading around. I have a question for ya. How long did you have P before you startarted showing signs of arthritis and where at(pain).  Sorry for being so forward but I have P and have been having joint pain. So I'm kinda freakin out about it.  Thank you, Cory

[Spotless]

Hi Spotless! Nice to meet you  

I started on Stelara early this year after trying Humira.

I cleared within about a week, and still clear at the mo. It's been amazing.

Sadly I've had a flare of psa symptoms which I attribute to going on Stelara but the derm and rheumy I've just seen say it's not the drug at fault.

I think most people don't experience this so don't worry about it, and I hope it clears your skin too  

Hi Turnedlight,
Thanks for sharing your experience with me. Did you have any side effects using Stelara?
So your PSA started when you started using Stelara? Mine stated towards the end of using Humira. It was very painful when I was completely off Humira waiting for Stelara to start. I taking Naproxen which has helped with the pain and can walk now but my right foot is swollen and I have a sausage finger which doesn't bend. It's just awful having one disease and then having another one now too. Totally unfair!

I haven't had any other side effects, though maybe I'm a bit more lethargic than I am when not on any treatment - but it's hard to say while you're in treatment!

I did have some aspects of psa before - I have had a carpal tunnel op., also had plantar fasciitis and Achilles tendinitis. But I had not had any lower back pain before, and this particularly affects my derrière so it's painful to sit very long, or at all on hard surfaces! I'm told this is tendon related also. But as I say, my docs refuse to ask the drug manufacturers if it's related, citing the fact they actually use Stelara against psa. I'm on meloxicam for it which helps but I'd rather know for sure if it's the Stelara. Could I suppose be a complete coincidence..

From what I've read Stelara is suppose to help PsA also but isn't very effective it's better for psoriasis.
I hope your arthritis gets better.

Hi,
I thought I'll join the club been lurking here for a few days. I start Stelara today and very nervous about yet another biologic that may not work for me. Been on Enbrel and Humira.
I've had psoriasis for as long as I can remember and I've been on everything that's possible to treat psoriasis. Unfortunately after Humira stopped working I have developed arthritis (god hates me) and this is another ball game. When you can't walk that's just a different story.
So here all flared up waiting for the nurse to come inject me. It's taken 3 weeks to process through the NHS here in London I don't know if that's normal but it has been terrible waiting to start.
So here I am and so happy to read really good success stories about Stelara.

Cheers!
A girl who really really wants to be Spotless!

  Hello spotless.  New to the site and reading around. I have a question for ya. How long did you have P before you startarted showing signs of arthritis and where at(pain).  Sorry for being so forward but I have P and have been having joint pain. So I'm kinda freakin out about it.  Thank you, Cory

Hi Cory,
I've had p for over 20 years now, since my teens I only started getting some joint pains in my ankles a few months ago. I was on Humira at the time but Humira stopped working for me and I had a flare which then triggered my arthritis. I started to have swollen ankles I couldn't walk and started to get sausage fingers. I am now starting Stelara which I was told should also help with PsA so I haven't seen a rheumatologist as yet. They are waiting to see how I go on my new treatment. So far it hasn't kicked in yet so I'm on Naproxen at the moment which is helping a lot. I can walk! 
What are you freaking out about Cory?