hello from hedgehog

[hedgehog]

i originally joined this forum to ask a simple question, but i guess i may as well join the group.

since adolescence i had really bad dandruff, but after a few years, lesions appeared on my private areas, which made me go to the doctor, leading to my diagnosis of inverse psoriasis. this was about 10 years ago. these days i get lesions on my back and stomach too, and recently my arms and legs have joined in on the fun.

originally i treated with steroid creams, but then discovered protopic, which i used happily for years. however, one day i got incredible side effects - i could not stop scratching. as a sufferer from psoriasis, i know very well what itching can be like - this was 100 times worse, i ran into the bathroom and stayed for 15 min in a cold shower.
despite this experience, i tried again the next night, and went through the same thing again.
so it was back to daivobet for me. see im fortunate enough to have a light case, so no biological or systematic treatment for me.
now ill rant:
this nasty "gel" stains my cloths, so i only use it before going to bed. but see i work really long hours, and i study 2 nights a week ontop of that, not to mention my drinking habit. so by the time i get home im usually starving and exhausted, theres no way im spending 15 minuets rubbing horrible creams into my skin.. even if im a good little boy and i use the cream 4-5 nights in a row (a rare occurrence) theres no way in hell it will happen on the weekend. so i use the "gel" in 2-3 day patches, with a few days interval in between. 
all this to say, im treating my p all wrong, and im very much aware of it.
i went online to find out the the recommended diet is (for me) virtually impossible. i get stressed easily too...  

i may have been diagnosed 10 years ago, but i still feel like a novice, and i simply do not know what to do. i hope to gather some more info (partly from this forum), and go back to my doctor. but im pretty sure he'll just tell me again that for my case, daivobet is my best option...

thanks for the opportunity to let all that out.

hello everyone

[Fred]

Hello Hedgehog, we have already spoken but as you have posted an intro I thought I would give you a proper welcome.



I'm glad you have decided to join in, you will find a great bunch of people always willing to share information and support. Also if you want a break from psoriasis and get to know some of our members I can recommend the [Group Specific] board as a good starting point.

The creams you are using wrong are not going to help you so it's time to start looking at something else that will be easier for you to use and save you a lot of time. Have a look at this thread Oral Treatments For Psoriasis for some ideas *But avoid the Methotxate if you like a drink.

Regards.

Fred.

[Turnedlight]

Hi Hedgehog

[glenda grant]

i originally joined this forum to ask a simple question, but i guess i may as well join the group.

since adolescence i had really bad dandruff, but after a few years, lesions appeared on my private areas, which made me go to the doctor, leading to my diagnosis of inverse psoriasis. this was about 10 years ago. these days i get lesions on my back and stomach too, and recently my arms and legs have joined in on the fun.

originally i treated with steroid creams, but then discovered protopic, which i used happily for years. however, one day i got incredible side effects - i could not stop scratching. as a sufferer from psoriasis, i know very well what itching can be like - this was 100 times worse, i ran into the bathroom and stayed for 15 min in a cold shower.
despite this experience, i tried again the next night, and went through the same thing again.
so it was back to daivobet for me. see im fortunate enough to have a light case, so no biological or systematic treatment for me.
now ill rant:
this nasty "gel" stains my cloths, so i only use it before going to bed. but see i work really long hours, and i study 2 nights a week ontop of that, not to mention my drinking habit. so by the time i get home im usually starving and exhausted, theres no way im spending 15 minuets rubbing horrible creams into my skin.. even if im a good little boy and i use the cream 4-5 nights in a row (a rare occurrence) theres no way in hell it will happen on the weekend. so i use the "gel" in 2-3 day patches, with a few days interval in between. 
all this to say, im treating my p all wrong, and im very much aware of it.
i went online to find out the the recommended diet is (for me) virtually impossible. i get stressed easily too...  

i may have been diagnosed 10 years ago, but i still feel like a novice, and i simply do not know what to do. i hope to gather some more info (partly from this forum), and go back to my doctor. but im pretty sure he'll just tell me again that for my case, daivobet is my best option...

thanks for the opportunity to let all that out.

hello everyone

Hedgehog from Planet Earth you will learn a lot from our group.We all have all kinds of psorosis and lots of different ways to treat it.I take Embrel 50 mg Sure Click Shot every week.I am fortunate that my husband is a US Disabled Veteran and he is 100% disabled and I am on his insurance so my Embrel is paid for.Otherwise the cost would be $6000 a month.How could anyone afford such a price?I sure hope you can find something to give you some relief!

[hedgehog]

...

Hedgehog from Planet Earth you will learn a lot from our group.We all have all kinds of psorosis and lots of different ways to treat it.I take Embrel 50 mg Sure Click Shot every week.I am fortunate that my husband is a US Disabled Veteran and he is 100% disabled and I am on his insurance so my Embrel is paid for.Otherwise the cost would be $6000 a month.How could anyone afford such a price?I sure hope you can find something to give you some relief!

hi grenda, thanks for the relply, i sure have learned alot from this forum. just from lurking and searching through i have found alot of info, not to mention all the kind people who replied to my posts.
thanks again 

[D Foster]

Hi Hedgehog , welcome to the forum , I don't know where on earth you are living but I think the time has come when you need to see a dermatologist and treat the P with the proper treatments , GPs are OK but they don't specialise enough.
We are all friendly on here so ask any questions you need to ask and the inmates will answer truthfully.

[Kat]

Welcome Hedgehog!

Lots of info here so you've found the right place.

Most doctors seems to start with ointments and it seems they don't normally help much if at all. Looks like you know this isn't working for you so I'd get back to my dermatologist (or if you're seeing a gp, I'd ask for a dermatologist recommendation) and tell him/her that it's not working and you need relief! This forum has lots of info on what has worked for others and the pros and cons of treatments and members more than willing to share information.

Good luck and hope you get relief soon!

[dyorke]

Hi Hedgehog  (my favourite animal)

Welcome to the Club - you will find lots of support here and  always someone to listen.
I hope you find the info useful and please do what I did - ask lots of questions - I am much happier since I found this club !

If you are really suffering get your GP to refer you to a Dermatologist - 

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