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Psoriasis Club › HealthHealth Boards › Introductions v
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intro i guess

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intro i guess
yato Offline
Newbie


Posts: 1
Threads: 1
Joined: Sep 2018
Gender: Female
Location: somewhere
Treatment: uhh usually just goldbond ultimate healing lotion
#1
Thu-20-09-2018, 14:58 PM
hi im yato, 13 had psoriasis since i was like 6?? it started on my scalp and gradually went down into my eyebrows but never progressed further until about 5 years later. now its all over my body (at least 50-60%) and i have no pill/shot i can take since i'm not 18 yet. 

the only medicated thing i can use is one of those weak steroid creams, but those have proven ineffective as there isn't enough for me to use it on a regular basis. 

has anyone ever tried regular gold bond lotion (the healing kind), for me it's pretty effective. though it doesnt make it go away super fast, it lessens the impact on my daily life + it doesn't cling to my skin like some other medicated creams.  Wall

okay im going on a tangent but hello!!
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Thu-20-09-2018, 15:09 PM
Hello yato  Welcome to Psoriasis Club.

Are you seeing a dermatologist ? They could prescribe light treatment.

I'm not sure where you are but Stelara is approved for over 12s, but I doubt you would get it till you have tried other things from a dermatologist.

Goldbond isn't going to do a lot or have lasting results, you may as well try Coconut Oil  

Or if you're up to it a diet may help, there are some trying it here: Natural Treatments For Psoriasis

Regards.

Fred.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Thu-20-09-2018, 15:31 PM
Hi yato and  Welcome to the club
I hope you enjoy your time with us and hope you can find an effective treatment but as fred has said you do need to see a dermatologist to get an effective treatment
The stuff you are using is unlikely to do very much as it’s a moisturiser with aloe .
My suggestion is to see a dermatologist who can give you more than just creams
Good luck
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#4
Thu-20-09-2018, 18:28 PM (This post was last modified: Thu-20-09-2018, 18:29 PM by Kat. Edited 1 time in total.)
Welcome Yato!

I agree with the others, a dermatologist is the best way to go.  I'm not sure what is approved at certain ages but I'm certain there are options.

Glad to hear you're getting at least some relief with the Gold Bond.  Any moisturizer has the chance of lessening some of the itching but usually as you know, it's a very short relief and for some, offers no relief at all.  

Happy you found your way here  Smile
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,595
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#5
Thu-20-09-2018, 20:07 PM
Hello Yato,

Welcome to psoriasisclub. Welcome

You are quite young to already have this stage of Psoriasis. I also agree with the others. Do you have access to a dermatologist where you live in somewhere?

Have fun over here with us.
Caroline
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#6
Thu-27-09-2018, 20:03 PM
Unfortunately Yato we have lost some posts on the forum, your thread did have more answers and hopefully others will check to see if theirs is still there.

But we are here for you if you need us.

Fred.
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,178
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#7
Thu-27-09-2018, 22:48 PM
Hi Yato nice to meet you Wave hope you find the forum helpful.
Imapsomom Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 295
Threads: 12
Joined: Aug 2018
Gender: Female
Location: Canada
Treatment: Stelara
#8
Fri-28-09-2018, 07:06 AM
(Thu-20-09-2018, 14:58 PM)yato Wrote: the only medicated thing i can use is one of those weak steroid creams, but those have proven ineffective as there isn't enough for me to use it on a regular basis. 

Hi Yato, my reply disappeared. I cant remember what I said, but I am the mother of a 13 year old who also has psoriasis.  When you say there isn't enough is that because you have difficulty getting medication? The weak steroid creams do not work for my son either. Only the very strong ones. Stelera is a biologic (shot) approved for children over 12 years old and he may try that soon. This is a great forum of people, I hope you come back to check your messages and stay in touch with people here.
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,287
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#9
Fri-28-09-2018, 08:54 AM
Hi Yato and welcome to the club, we are all in the same boat here so any questions you ask are from people who have the same problems. I feel for you having P at such a young age but things have come on a long way in the last few years so i think that in the next few years you stand a good chance of a "cure" .
A good dermatologist is essential and certainly light treatment may be a good idea , coconut oil is really good for moisturising , have a good look around and ask all the questions that you want .
bav101 Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 919
Threads: 7
Joined: Apr 2015
Gender: Male
Location: Bristol
Treatment: Tremfya
#10
Fri-28-09-2018, 12:04 PM
Hi Yato!

Welcome! I'm a little late to the party but hey, there's cookies somewhere if you get the munchies.. i think.. but then someone keeps eating them..... NoNo

I would definitely ask to see a dermatologist first and foremost, reason being that there's only so much your usual doctor can do and give you. In my experience your usual family doctor can only give you creams and one or two other things which are ok but I've found they usually dont do much except leave greasy marks on everything which is annoying as hell.

As others have suggested coconut oil is a pretty decent thing to use as well, although you do end up smelling like a coconut, i'd recommend using it before bed then wash it off before you go out, unless you really dont mind it. Dont slap it on or it'll go in your eyes and that stuff stings like a son of a... been there done that. But if you do just run a sink of hot water (or as hot as you can stand it) and wash your face where your eyes are that should help get it out.

One thing i would also suggest is to educate your parents, give them an idea of how you feel, let them read some of these replies so they have an idea what they need to do to help you. I'm not a parent but once i explained to my parents whats going on it helped them understand what the problem is and how they can help even if its just someone to talk to that can help a bunch as well.
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