Cosentyx - Kat's journey

[Kat]

Thanks guys!

And yes, I know many here understand what it feels like. I try very hard to take the attitude that Dave has, but for some reason it's not working. I usually don't care what people think but for some reason lately it's bothered me a bit more than usual. Human nature I guess.... sometimes we are more vulnerable than others.

[Fred]

 Human nature I guess.... sometimes we are more vulnerable than others.

Yep in our daily life that is true, but here we are all equal. Call escapism, but I find when i'm logged-in I feel more comfortable talking about psoriasis.

[jiml]

I can relate as well kat ...I would only wear light clothes and was constantly brushing my shoulders off and when visiting people was always horrified seeing the white flakes when standing up from a dark sofa and tried to brush them off before anyone else noticed

[Kat]

Thanks

I feel a bit better, it helps knowing that people understand where you're coming from.

[Kat]

Got the callback. Rheumatologist says he wouldn't recommend Ilumya or Skyrizi for psoriatic arthritis at this time. Recommends me trying Taltz.

Honestly I don't know....... I need to call and let the dermatologist know what he said but I think I'll wait until at least after lunch and think about it a bit.

[jiml]

Got the callback.  Rheumatologist says he wouldn't recommend Ilumya or Skyrizi  for psoriatic arthritis at this time.  Recommends me trying Taltz.

Honestly I don't know.......  I need to call and let the dermatologist know what he said but I think I'll wait until at least after lunch and think about it a bit.

What a shame they don't talk to each other Kat it would be so much simpler than you being pig in the middle

[Kat]

Got the callback.  Rheumatologist says he wouldn't recommend Ilumya or Skyrizi  for psoriatic arthritis at this time.  Recommends me trying Taltz.

Honestly I don't know.......  I need to call and let the dermatologist know what he said but I think I'll wait until at least after lunch and think about it a bit.

What a shame they don't talk to each other Kat it would be so much simpler than you being pig in the middle

I did think about that Jim. Usually most doctors will simply talk to the others but I think this came more from my telling the dermatologist when she asked me if I wanted to try Consentyx or Tremfya that I would like to talk it over with my rheumatologist and general practitioner before deciding. When I call her office, I will tell her nurse that if she is opposed to trying Taltz that she needs to talk to my rheumatologist directly to work it out. For some reason I feel like Taltz isn't the answer and I have no clue why I feel that way.

[Caroline]

Got the callback.  Rheumatologist says he wouldn't recommend Ilumya or Skyrizi  for psoriatic arthritis at this time.  Recommends me trying Taltz.

Honestly I don't know.......  I need to call and let the dermatologist know what he said but I think I'll wait until at least after lunch and think about it a bit.

What a shame they don't talk to each other Kat it would be so much simpler than you being pig in the middle

I did think about that Jim.  Usually most doctors will simply talk to the others but I think this came more from my telling the dermatologist when she asked me if I wanted to try Consentyx or Tremfya that I would like to talk it over with my rheumatologist and general practitioner before deciding.  When I call her office, I will tell her nurse that if she is opposed to trying Taltz that she needs to talk to my rheumatologist directly to work it out.  For some reason I feel like Taltz isn't the answer and I have no clue why I feel that way.  

Taltz and Consentyx are two products of the same class. They are both IL-17 inhibitors, therefore they are the first choice for Psoriatic Arthritis.
But people differ. We all are different and will react differently. Therefore e.g. DMF, my stuff, won’t work for everyone, just because we are so different.
So it might be that the Taltz works better for you, it is a possible try and I think better then the Ilumya and Skyrizi, though they might work better for your Psoriasis.
I am with Fred in this story, you are not into the final working zone of Cosentyx yet. I think it is valuable to fully try it out.

In Europe a large investigation has started, called BioMap, What they are trying to map is all the different types of people and their different types of Psoriasis. They are going to measure all possible markers that are involved and will match that data into a typing of person and Psoriasis. 50.000 patients will be involved.
The aim is to find and validate the markers and the effect of the substances that cause the Psoriasis, and thus the effect of the medication. All is aimed to be able to categorise a patient in such a way, that a drop of blood will tell what kind of Psoriasis you have and what medication will work best. So you will get the right medication instantly after the diagnoses.
The project will run 5 to 10 years.

[Kat]

The BioMap sounds interesting.

And perhaps I should just stay on the Cosentyx a bit longer. I called and left a message with the dermatologist. I hate messages as you can only leave a small amount of information. I expect her nurse to call back ready to get me going on Taltz since all I said was that was what the rheumatologist would suggest next. Or maybe not. I don't know. I guess I'll find out when they call back. The dermatologist did say I could stay on Cosentyx a bit longer (when I was there), but she doesn't think it's going to clear my scalp.

[Fred]

Yes as Caroline said Cosentyx and Taltz are much the same. Think of it as Coke or Pepsi both will rot your teeth, but they market themselves differently.

Could be worth asking to try 3 weeks between shots. It didn't make any difference for me but could be worth a try.