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Tremfya for psoriatic arthritis Fred's journey

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Tremfya for psoriatic arthritis Fred's journey
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#251
Fri-11-06-2021, 21:27 PM
Looks like Tremfya isn't going to be the one.

I'm finding it difficult around week 6 onwards for the psoriatic arthritis and I have just put my score up from 8 to 14 with one more week to go before my next shot.

Problem areas are:

Shoulders
Collarbone
Sternum
Elbows
left wrist
Most knuckles
Some toes

Still got the ankle problem but not sure yet if it is psoriatic arthritis.

I will still be taking my next shot next week as planned and at the moment I have no plans on getting an earlier appointment.

Will say Tremfya is great for psoriasis, so if you are thinking of trying it for that I would say it's the best yet. But we are all different and for me it's the psoriatic arthritis that needs sorting.



*Please no sympathy, I'm fine with it and No I won't be seeking an appointment sooner than September. I'm only posting this here in case it helps others.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#252
Fri-11-06-2021, 21:44 PM
No sympathy then, but hope in September you get something that keeps the arthritis at bay for much longer Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#253
Fri-11-06-2021, 21:45 PM
(Fri-11-06-2021, 21:44 PM)jiml Wrote: No sympathy then, but hope in September you get something that keeps the arthritis at bay for much longer  Thumb

Thank you Jim, yes I think I may have to review my options then. Thumb
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JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#254
Fri-11-06-2021, 22:11 PM
Damn that sucks.

What's this sympathy thing? Is it one of those new fangled woke things?
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#255
Fri-11-06-2021, 22:13 PM
(Fri-11-06-2021, 22:11 PM)JohnB Wrote: Damn that sucks.

What's this sympathy thing? Is it one of those new fangled woke things?

It's not that bad John. I've had a lot worse.

Lost me on the "woke thing" I count myself lucky if I wake up each day if that helps.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#256
Sat-12-06-2021, 06:30 AM
(Fri-11-06-2021, 22:13 PM)Fred Wrote:
(Fri-11-06-2021, 22:11 PM)JohnB Wrote: Damn that sucks.

What's this sympathy thing? Is it one of those new fangled woke things?

It's not that bad John. I've had a lot worse.

Lost me on the "woke thing" I count myself lucky if I wake up each day if that helps.

“Sympathy” 85 If we ever had that for you! …. Oh, Doh yes, we had… I remember now.. Rolleyes Tongue

Must remember this fancy expression and use it in a conversation, “new fangled woke things”, really great, I don’t have a clue what it means, just like you, but it sounds great.. Big Grin
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#257
Sat-12-06-2021, 11:12 AM
(Sat-12-06-2021, 06:30 AM)Caroline Wrote: “Sympathy” 85 If we ever had that for you! …. Oh, Doh yes, we had… I remember now..  Rolleyes  Tongue

It was the time I lost my hat. Big Grin
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#258
Sat-12-06-2021, 12:23 PM
Concerned then instead of sympathy Wave
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#259
Sat-12-06-2021, 21:07 PM
(Sat-12-06-2021, 12:23 PM)D Foster Wrote: Concerned then instead of sympathy  Wave

Nah don't be concerned Dave, I'm fine and can still make it to the Psoriasis Club Bar

[Image: oKzRagb.jpg]
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#260
Sat-12-06-2021, 21:39 PM
(Sat-12-06-2021, 21:07 PM)Fred Wrote:
(Sat-12-06-2021, 12:23 PM)D Foster Wrote: Concerned then instead of sympathy  Wave

Nah don't be concerned Dave, I'm fine and can still make it to the Psoriasis Club Bar

[Image: oKzRagb.jpg]

As long as you don't get a taste for my gin.
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