Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
« Previous 1 2 3 4 5 … 26 Next »

Tremfya for psoriatic arthritis Fred's journey

Pages (37): « Previous 1 … 31 32 33 34 35 … 37 Next »
Jump to page 
Threaded Mode
Tremfya for psoriatic arthritis Fred's journey
KatT Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 5,775
Threads: 50
Joined: Sep 2019
Gender: Female
Location: Canada
Psoriasis Score: 1
Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#321
Sun-05-09-2021, 06:32 AM
Hoping it's just a flare due to the weather and not Tremfya failing  Confused
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#322
Sun-05-09-2021, 11:17 AM
(Sun-05-09-2021, 06:32 AM)KatT Wrote: Hoping it's just a flare due to the weather and not Tremfya failing  Confused

Thank you KatT it doesn't feel so bad this morning, but it's still there.
Quote
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#323
Sun-05-09-2021, 12:05 PM
If we could sort of attribute your other flairs to having your Covid jab as nothing else had changed, is there anything different now or is it because there is an R in the month and the less favourable weather is drawing in?
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#324
Sun-05-09-2021, 12:10 PM
(Sun-05-09-2021, 12:05 PM)JohnB Wrote: If we could sort of attribute your other flairs to having your Covid jab as nothing else had changed, is there anything different now or is it because there is an R in the month and the less favourable weather is drawing in?

Not the weather it's sunny and 28c

R in the month though I may have to look into that. But maybe it was going through this months music revues. Big Grin

I've given up trying to work out if anything has changed, especially food wise but my ankle has swollen up again.

Only a couple more weeks to my next appointment, so will see then.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#325
Thu-09-09-2021, 09:58 AM
It's very strange Fred how with tremfya it has been a very bumpy journey with several of flares and while you try to see a pattern there is no obvious reason for it .
Life has got less stressful with the Brexit thing behind you and the pension is all sorted out and covid jabs out of the way. You are having good weather . So rather than it being you it seems as if it's the tremfya messing around .
Hopefully it will be sorted out at the upcoming derm appointment have you any ideas about the way forward ?
Have you looked at Bimzekex (bimekizumab) as a possibility as it's an IL-17a and F inhibitor and might be worth a look if it's approved in France
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#326
Thu-09-09-2021, 11:21 AM
(Thu-09-09-2021, 09:58 AM)jiml Wrote: It's very strange Fred how with tremfya it has been a very bumpy journey with several of flares and while you try to see a pattern there is no obvious reason for it .
Life has got less stressful with the Brexit thing behind you and the pension is all sorted out and covid jabs out of the way. You are having good weather . So rather than it being you it seems as if it's the tremfya messing around .
Hopefully it will be sorted out at the upcoming derm appointment have you any ideas about the way forward ?
Have you looked at Bimzekex (bimekizumab) as a possibility as it's an IL-17a  and F inhibitor and might be worth a look if it's approved in France

Yep things are good life wise, so it doesn't make sense.

As for "bimekizumab" it has been given a positive recommendation Bimzelx gets positive opinion from (CHMP) for psoriasis But not yet available in France.

My only option at the moment would be Taltz or Skyrizi but as they are IL17 and IL23 I may as well stay on Tremfya, but I'll see what she says.

*Skyrizi is not easy to get at the moment.
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#327
Thu-09-09-2021, 11:32 AM
(Thu-09-09-2021, 11:21 AM)Fred Wrote:
(Thu-09-09-2021, 09:58 AM)jiml Wrote: It's very strange Fred how with tremfya it has been a very bumpy journey with several of flares and while you try to see a pattern there is no obvious reason for it .
Life has got less stressful with the Brexit thing behind you and the pension is all sorted out and covid jabs out of the way. You are having good weather . So rather than it being you it seems as if it's the tremfya messing around .
Hopefully it will be sorted out at the upcoming derm appointment have you any ideas about the way forward ?
Have you looked at Bimzekex (bimekizumab) as a possibility as it's an IL-17a  and F inhibitor and might be worth a look if it's approved in France

Yep things are good life wise, so it doesn't make sense.

As for "bimekizumab" it has been given a positive recommendation Bimzelx gets positive opinion from (CHMP) for psoriasis But not yet available in France.

My only option at the moment would be Taltz or Skyrizi but as they are IL17 and IL23 I may as well stay on Tremfya, but I'll see what she says.

*Skyrizi is not easy to get at the moment.

If it's IL17&23 are they are another version of Stelara.
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#328
Thu-09-09-2021, 11:35 AM
(Thu-09-09-2021, 11:32 AM)D Foster Wrote: If it's IL17&23 are they are another version of Stelara.

No Stelara is a mix of IL12 and IL23 Dave.
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#329
Thu-09-09-2021, 12:21 PM
(Thu-09-09-2021, 11:35 AM)Fred Wrote:
(Thu-09-09-2021, 11:32 AM)D Foster Wrote: If it's IL17&23 are they are another version of Stelara.

No Stelara is a mix of IL12 and IL23 Dave.
It's worth trying one that targets the same as stelara as they may well target to inhibit those ILs in a different way
Quote
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#330
Thu-09-09-2021, 12:39 PM
(Thu-09-09-2021, 12:21 PM)jiml Wrote:
(Thu-09-09-2021, 11:35 AM)Fred Wrote:
(Thu-09-09-2021, 11:32 AM)D Foster Wrote: If it's IL17&23 are they are another version of Stelara.

No Stelara is a mix of IL12 and IL23 Dave.
It's worth trying one that targets the same as stelara as they may well target to inhibit those ILs in a different way

There isn't one that targets both 12 and 23.

Tremfya which I'm on now targets IL23
Quote
« Next Oldest | Next Newest »
Pages (37): « Previous 1 … 31 32 33 34 35 … 37 Next »
Jump to page 


Possibly Related Threads…
Thread Author Replies Views Last Post
  Bimzelx for psoriatic arthritis Fred's journey Fred 234 126,533 Mon-16-06-2025, 13:21 PM
Last Post: Fred
  Jims journey on Skilarence jiml 295 225,577 Thu-17-04-2025, 11:05 AM
Last Post: Angie
  Kat's Skyrizi Journey Part 2 Kat 120 54,699 Fri-22-11-2024, 15:08 PM
Last Post: Fred
  The Journey Begins! AGAIN!!!! pingu 10 4,926 Tue-17-09-2024, 17:44 PM
Last Post: mataribot
  Kat's Skyrizi journey Kat 48 28,698 Fri-26-01-2024, 21:16 PM
Last Post: Fred



Users browsing this thread: 2 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode