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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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total negligence.

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total negligence.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#21
Fri-30-10-2020, 22:00 PM
Ohhh no Martin I hoped you would have been sorted out by now Confused do you keep chasing them
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martin222 Offline Author
Member


Posts: 91
Threads: 6
Joined: May 2017
Gender: Male
Location: doncaster
Psoriasis Score: 6
Treatment: cosentyx
#22
Fri-30-10-2020, 22:24 PM
(Fri-30-10-2020, 22:00 PM)jiml Wrote: Ohhh no Martin I hoped you would have been sorted out by now  Confused do you keep chasing them
Yep all the time. It's in the hands of the pharmacy company now apparently. Rang again today. Answer service. Left a message and nothing. Life's been hell nearly 2 months now. Been so ill with it. Had blood test. That showed liver damage. Amemia. And signs oh hepatitis. Dr said it has nothing to do with flare up. But I didn't have thoes problems before.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#23
Fri-30-10-2020, 22:41 PM
That's terrible Martin. Covid has messed you up without even caching it... I hope the pharmacy get the cosentyx to you soon. Seems strange  you have liver damage. I wouldn't have put that down to psoriasis but who knows..... I hope it reverses as soon as you start the injections though and your bloods get back to normal
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#24
Fri-30-10-2020, 22:50 PM
Best of luck Martin I hope that you get sorted out soon. Clare eventually got the operation but she still has had problems with the NHS so we contacted my MP who, to be fair, is really giving them some stick.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#25
Fri-30-10-2020, 22:51 PM
Indeed very weird those other things, the liver, the hepatitis... that is not known with psoriasis.
Hope this unfortunate situation will resolve soon. I can have no other advice than keep on chasing..
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,211
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#26
Fri-30-10-2020, 22:53 PM
Sorry Martin I can be of no more help as your health care system in the UK seems to be letting it's people down, so I will opt out of this thread and wish you well.
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martin222 Offline Author
Member


Posts: 91
Threads: 6
Joined: May 2017
Gender: Male
Location: doncaster
Psoriasis Score: 6
Treatment: cosentyx
#27
Fri-30-10-2020, 23:36 PM
(Fri-30-10-2020, 22:41 PM)jiml Wrote: That's terrible Martin. Covid has messed you up without even caching it... I hope the pharmacy get the cosentyx to you soon. Seems strange  you have liver damage. I wouldn't have put that down to psoriasis but who knows..... I hope it reverses as soon as you start the injections though and your bloods get back to normal
Dr said. during lockdown have I drank more alcohol then usual. I said no I don't drink. As I don't. So god knows where the damage came from
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martin222 Offline Author
Member


Posts: 91
Threads: 6
Joined: May 2017
Gender: Male
Location: doncaster
Psoriasis Score: 6
Treatment: cosentyx
#28
Fri-30-10-2020, 23:38 PM
(Fri-30-10-2020, 22:51 PM)Caroline Wrote: Indeed very weird those other things, the liver, the hepatitis... that is not known with psoriasis.
Hope this unfortunate situation will resolve soon. I can have no other advice than keep on chasing..
Thanks caroline
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KatT Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 5,775
Threads: 50
Joined: Sep 2019
Gender: Female
Location: Canada
Psoriasis Score: 1
Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#29
Sat-31-10-2020, 01:52 AM
Absolutely unacceptable! I really hope you escalate this!  Things usually start moving when it goes to the MPs or the media.
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martin222 Offline Author
Member


Posts: 91
Threads: 6
Joined: May 2017
Gender: Male
Location: doncaster
Psoriasis Score: 6
Treatment: cosentyx
#30
Sat-31-10-2020, 02:21 AM
(Sat-31-10-2020, 01:52 AM)KatT Wrote: Absolutely unacceptable! I really hope you escalate this!  Things usually start moving when it goes to the MPs or the media.
Thanks kat. And your dead right it is unacceptable.
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